{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T17:15:24Z","timestamp":1777914924119,"version":"3.51.4"},"reference-count":29,"publisher":"SAGE Publications","issue":"9","license":[{"start":{"date-parts":[[2019,9,1]],"date-time":"2019-09-01T00:00:00Z","timestamp":1567296000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2019,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Although palliative care is expanding globally for patients with serious illness, Turkey has not had widespread integration of early concurrent oncology palliative care. Hence, adapting and testing models of concurrent oncology palliative care for Turkish patients is imperative. Furthermore, it is critical that these care models also address the needs of family caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To assess needs and elicit suggestions that would inform the adaptation of the ENABLE (Educate, Nurture, Advise, Before Life Ends) evidence-based early palliative care model for Turkish family caregivers of older persons with cancer.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Formative evaluation study. Semi-structured interviews were conducted with 25 primary family caregivers of older individuals with cancer. Thematic analyses yielded themes in four domains: meaning of caregiving, effect of caregiving, education and consulting needs, and preferences about the delivery of the ENABLE model of palliative care support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Caregivers described the impact of the cancer on their daily lives and responsibilities in the areas of physical, psychological, work, social, and family life. Caregivers emphasized their needs for information about symptoms, physical care, cancer pathology, and prognosis. Regarding the ENABLE model of early concurrent palliative care, participants wanted encounters to be in-person with educational material support that was simple and focused on disease information (prognosis, medication, handling emergency situations), psychological support, caring, nutrition, and acquiring community services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Themes from this study will be used to modify the ENABLE intervention protocol for future pilot and efficacy testing in Turkish caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jpm.2018.0643","type":"journal-article","created":{"date-parts":[[2019,4,10]],"date-time":"2019-04-10T10:22:48Z","timestamp":1554891768000},"page":"1065-1074","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":18,"title":["Needs Assessment for Turkish Family Caregivers of Older Persons with Cancer: First-Phase Results of Adapting an Early Palliative Care Model"],"prefix":"10.1177","volume":"22","author":[{"given":"Imatullah","family":"Akyar","sequence":"first","affiliation":[{"name":"Faculty of Nursing, Hacettepe University, Ankara, Turkey."},{"name":"School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, Alabama."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. Nicholas","family":"Dionne-Odom","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, Alabama."},{"name":"Division of Geriatrics, Gerontology, and Palliative Care, Department of Medicine, UAB Center for Palliative and Supportive Care, Birmingham, Alabama."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Munevver","family":"Ozcan","sequence":"additional","affiliation":[{"name":"Faculty of Nursing, Hacettepe University, Ankara, Turkey."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marie A.","family":"Bakitas","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, Alabama."},{"name":"Division of Geriatrics, Gerontology, and Palliative Care, Department of Medicine, UAB Center for Palliative and Supportive Care, Birmingham, Alabama."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2019,9,3]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2016.70.1474"},{"key":"e_1_3_3_3_2","unstructured":"NCCN Clinical Practice Guidelines in Oncology: Palliative Care. National Comprehensive Cancer Network. www.nccn.org\/professionals\/physician_gls\/pdf\/palliative.pdf. Version 1.2018. (Last accessed July 23 2018)."},{"key":"e_1_3_3_4_2","unstructured":"Haun MW Estel S Ruecker G et al.: Early palliative care for adults with advanced cancer. The Cochrane database of systematic reviews 2017; 6:CD011129. http:\/\/cochranelibrary-wiley.com\/doi\/10.1002\/14651858.CD011129.pub2\/abstract;jsessionid=893E293C85E3E8208D593953C4192D53.f04t02 (Last accessed July 23 2018)."},{"key":"e_1_3_3_5_2","unstructured":"Worldwide Palliative Care Alliance and World Health Organization: Global atlas of palliative care at the end of life. London: Worldwide Palliative Care Alliance. 2014. www.who.int\/nmh\/Global_Atlas_of_Palliative_Care.pdf (Last accessed July 23 2018)"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.4103\/apjon.apjon_31_17"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-22912-6_12"},{"key":"e_1_3_3_8_2","unstructured":"International Agency for research on Cancer: GLOBOCAN: Online Analysis Estimated Cancer Incidence Mortality and Prevalence Worldwide in. 2012. http:\/\/globocan.iarc.fr\/Pages\/fact_sheets_cancer.aspx (Last accessed July 23 2018)"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.seminoncol.2003.12.024"},{"key":"e_1_3_3_10_2","unstructured":"Turkish Statistical Institute: Elderly Statistics. www.tuik.gov.tr\/PreHaberBultenleri.do?id=24644 (Last accessed July 23 2018)."},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1097\/PHH.0000000000000252"},{"key":"e_1_3_3_12_2","unstructured":"Current Situation of Palliative Care Centers. https:\/\/khgmozellikli.saglik.gov.tr\/svg\/palyatif.php (Last accessed July 11 2018)."},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jgo.2016.04.005"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11912-016-0535-8"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.12514"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2012.0046"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1089\/109662104773709530"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2009.1198"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2014.58.6362"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2014.58.7824"},{"key":"e_1_3_3_21_2","volume-title":"Qualitative Research & Evaluation Methods: Integrating Theory and Practice","author":"Patton MQ","year":"2015","unstructured":"Patton MQ: Qualitative Research & Evaluation Methods: Integrating Theory and Practice, 4th ed. 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