{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,15]],"date-time":"2026-05-15T03:06:14Z","timestamp":1778814374852,"version":"3.51.4"},"reference-count":6,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2022,12,30]],"date-time":"2022-12-30T00:00:00Z","timestamp":1672358400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The Infant Maternal Perinatal Advanced Care Team program was launched in 2018 to enhance perinatal palliative care services in Toronto, Canada.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Pilot patients were (1) carrying a fetus with a life-limiting diagnosis and (2) receiving care at the high-risk fetal center. Individualized care included opportunities for establishing goals, labor\/delivery planning, grief support, and pediatric palliative care support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>A total of 107 patients were included during the two-year clinical pilot program. Of those who continued their pregnancy, 45% had care goals focused on comfort while 55% had goals focused on life prolongation. A significant proportion in both groups experienced a fetal or neonatal death. For babies who received comfort-focused care, one-third were transferred to hospice or home.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>A comprehensive perinatal palliative care pathway ensures that more families receive options of pre- and postnatal palliative care supports in varied circumstances where there is significant risk of fetal and neonatal mortality.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jpm.2022.0076","type":"journal-article","created":{"date-parts":[[2022,12,16]],"date-time":"2022-12-16T14:16:30Z","timestamp":1671200190000},"page":"101-105","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Infant Maternal Perinatal Advanced Care Team: A Pilot Collaboration for Families Facing a Life-Threatening Fetal Diagnosis"],"prefix":"10.1177","volume":"26","author":[{"given":"Sarah","family":"Lord","sequence":"first","affiliation":[{"name":"Division of Paediatric Medicine, Hospital for Sick Children, Toronto, Ontario, Canada."},{"name":"Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Ontario, Canada."},{"name":"Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Williams","sequence":"additional","affiliation":[{"name":"Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lindsay","family":"Pollard","sequence":"additional","affiliation":[{"name":"Women's and Infants' Health, Sinai Health System, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lori","family":"Ives-Baine","sequence":"additional","affiliation":[{"name":"Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Van Meer","sequence":"additional","affiliation":[{"name":"Emily's House Children's Hospice, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kira","family":"Goodman","sequence":"additional","affiliation":[{"name":"Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joanne","family":"Mackenzie","sequence":"additional","affiliation":[{"name":"Women's and Infants' Health, Sinai Health System, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rauni","family":"Salminen","sequence":"additional","affiliation":[{"name":"Emily's House Children's Hospice, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adam","family":"Rapoport","sequence":"additional","affiliation":[{"name":"Division of Paediatric Medicine, Hospital for Sick Children, Toronto, Ontario, Canada."},{"name":"Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Ontario, Canada."},{"name":"Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada."},{"name":"Emily's House Children's Hospice, Toronto, Ontario, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2022,12,30]]},"reference":[{"key":"e_1_3_5_2_2","doi-asserted-by":"publisher","DOI":"10.21037\/atm.2016.10.34"},{"key":"e_1_3_5_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ogrm.2018.04.002"},{"key":"e_1_3_5_4_2","unstructured":"Center for Disease Control and Prevention. National Center for Health Statistics: Birth Defects or Congenital Anomalies. Available from: https:\/\/www.cdc.gov\/nchs\/fastats\/birth-defects.htm [Last accessed: November 29 2021]."},{"key":"e_1_3_5_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/AOG.0000000000003425"},{"key":"e_1_3_5_6_2","doi-asserted-by":"publisher","DOI":"10.31887\/DCNS.2012.14.2\/akersting"},{"key":"e_1_3_5_7_2","doi-asserted-by":"publisher","DOI":"10.1258\/1357633053499886"}],"container-title":["Journal of Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1089\/jpm.2022.0076","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jpm.2022.0076","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jpm.2022.0076","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T17:15:24Z","timestamp":1777655724000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1089\/jpm.2022.0076"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,30]]},"references-count":6,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,1]]}},"alternative-id":["10.1089\/jpm.2022.0076"],"URL":"https:\/\/doi.org\/10.1089\/jpm.2022.0076","relation":{},"ISSN":["1096-6218","1557-7740"],"issn-type":[{"value":"1096-6218","type":"print"},{"value":"1557-7740","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,12,30]]}}}