{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,29]],"date-time":"2026-08-29T20:36:21Z","timestamp":1788035781919,"version":"build-2784847793"},"reference-count":27,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2024,10,1]],"date-time":"2024-10-01T00:00:00Z","timestamp":1727740800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2024,10,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Little is known about the extent to which pediatric palliative care (PPC) clinicians are engaged in ethics consults or how they perceive interactions with ethics consultants.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>Describe the extent to which PPC team members serve in pediatric health care ethics (PHCE) consultancy roles and to describe their experiences interacting with pediatric ethic consultant services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Online survey distributed to members of the American Academy of Pediatrics and American Academy of Hospice and Palliative Care pediatric and ethics section and special interest groups in the United States.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Eighty-six responses were obtained (response rate 45%) from PPC teams in 70 different children\u2019s hospitals located in 34 states. Almost all (97%) reported a functional ethics consult service such that PPC is not expected to meet the ethics need of the institution. A person involved on the PPC team also performed ethics consults in half (49%) of the settings, predominantly the PPC physician. Most respondents who perceive PPC teams engage in ethics-relevant work as part of their everyday PPC work. Formal ethics training was lacking among PPC members involved in ethics consults with few ethics degrees (15%), certifications (6%), or fellowships (2%). Discord (67%), conflict (49%), limitations to treatment (48%), and distress (41%) were cited as the most frequent reasons for which PPC teams consult ethics. PPC respondents identified role clarity, coordinated engagement, timely presence, and open communication as strong PHCE consultant practices.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>PPC team members performing ethics consults may benefit from additional ethics education and training. Further research is warranted to delineate scope of ethics consultancy relevant to PPC and role clarity.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jpm.2023.0568","type":"journal-article","created":{"date-parts":[[2024,7,8]],"date-time":"2024-07-08T05:28:47Z","timestamp":1720416527000},"page":"1324-1331","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Everyday Ethics or Deference to Expertise: Experiences of Pediatric Palliative Care Teams with Ethics Consultancy"],"prefix":"10.1177","volume":"27","author":[{"given":"Anessa M.","family":"Foxwell","sequence":"first","affiliation":[{"name":"School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, USA."},{"name":"NewCourtland Center for Transitions and Health, School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, USA."},{"name":"Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, Pennsylvania, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Connie M.","family":"Ulrich","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, USA."},{"name":"NewCourtland Center for Transitions and Health, School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, USA."},{"name":"Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, Pennsylvania, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer K.","family":"Walter","sequence":"additional","affiliation":[{"name":"Department of Medical Ethics and Pediatric Advanced Care Team, The Children\u2019s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA."},{"name":"Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meaghann S.","family":"Weaver","sequence":"additional","affiliation":[{"name":"Pediatric Palliative Care, University of Nebraska Medical Center, Omaha, Nebraska, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,10,16]]},"reference":[{"key":"e_1_3_6_2_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2021.0521"},{"key":"e_1_3_6_3_2","doi-asserted-by":"publisher","DOI":"10.1086\/JCE201425202"},{"key":"e_1_3_6_4_2","doi-asserted-by":"publisher","DOI":"10.1086\/JCE2019303262"},{"key":"e_1_3_6_5_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2019-1741"},{"key":"e_1_3_6_6_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10730-014-9254-4"},{"key":"e_1_3_6_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049909111410560"},{"key":"e_1_3_6_8_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10730-010-9126-5"},{"key":"e_1_3_6_9_2","doi-asserted-by":"publisher","DOI":"10.1080\/15265161.2015.1021965"},{"key":"e_1_3_6_10_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10730-020-09397-6"},{"key":"e_1_3_6_11_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-049403"},{"key":"e_1_3_6_12_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"key":"e_1_3_6_13_2","doi-asserted-by":"publisher","DOI":"10.1177\/2158244014522633"},{"key":"e_1_3_6_14_2","doi-asserted-by":"publisher","DOI":"10.1080\/13814788.2017.1375092"},{"key":"e_1_3_6_15_2","unstructured":"NVivo qualitative data analysis software (Version 1.3). 2018."},{"key":"e_1_3_6_16_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2003.10.001"},{"key":"e_1_3_6_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"issue":"1","key":"e_1_3_6_18_2","first-page":"52","article-title":"Qualitative description \u2013 the poor cousin of health research","volume":"9","author":"Neergaard MA","year":"2009","unstructured":"Neergaard MA, , Olesen F, , Andersen RS, , Sondergaard J. 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