{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T22:18:38Z","timestamp":1792275518173,"version":"4.4.0"},"reference-count":22,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Home-based hospice and\/or palliative care (HBHPC) is an important pediatric care modality offering continuity of care and a deeper understanding of patient and family needs. There is limited guidance to address multi-faceted approaches to care in home-based settings through a care ethics model.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>Qualitatively examine patient and family home-based care experiences to formalize care ethics guidance for HBHPC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>\n                      Secondary thematic analysis of semi-structured, transcribed interviews (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 14) of 18 participants.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/Subjects:<\/jats:title>\n                    <jats:p>A group of 17 family caregivers and one adolescent\/young adult patient receiving HBHPC provided by two regional pediatric health systems in the United States.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Measurements:<\/jats:title>\n                    <jats:p>Three stages of thematic analysis were conducted: line-by-line coding of text, descriptive theme development, and analytic theme generation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Transcripts from 18 participants (88% female; 12% male) were analyzed. Four descriptive themes were generated through deductive analysis: relationships; home health environment; ways of caring; and values. Several analytic themes (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 22) and sub-themes (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 90) emerged and provided contextual meaning centered on a care ethic.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>A care ethic model is present in HBHPC experiences and, with validation, can offer guidance in the acknowledgment and delivery of care among professional and family caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jpm.2024.0358","type":"journal-article","created":{"date-parts":[[2025,3,17]],"date-time":"2025-03-17T21:16:51Z","timestamp":1742246211000},"page":"779-787","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["\u201cI Used to Feel my Child Was...the Property of the Hospital\u201d: An Examination of an Ethic of Care for Pediatric Home-Based Hospice and Palliative Care"],"prefix":"10.1177","volume":"28","author":[{"given":"Julie M.","family":"Aultman","sequence":"first","affiliation":[{"name":"College of Graduate Studies, Northeast Ohio Medical University, Rootstown, Ohio, USA."},{"name":"University Hospitals Faculty Scholar, Cleveland, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Max F.","family":"Gilliland","sequence":"additional","affiliation":[{"name":"College of Graduate Studies, Northeast Ohio Medical University, Rootstown, Ohio, USA."},{"name":"College of Medicine, Northeast Ohio Medical University, Rootstown, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brianna M.","family":"Bish","sequence":"additional","affiliation":[{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"College of Medicine, Northeast Ohio Medical University, Rootstown, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2119-2016","authenticated-orcid":false,"given":"Steven","family":"Smith","sequence":"additional","affiliation":[{"name":"Department of Anesthesia and Pain Medicine, Nationwide Children\u2019s Hospital, Columbus, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Friebert","sequence":"additional","affiliation":[{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Haslinger Family Pediatric Palliative Care Center, Akron Children\u2019s Hospital, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel H.","family":"Grossoehme","sequence":"additional","affiliation":[{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Haslinger Family Pediatric Palliative Care Center, Akron Children\u2019s Hospital, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,6,16]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/193758670800100403"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2020.04.004"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2019.0418"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/pq9.0000000000000328"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1097\/pq9.0000000000000663"},{"key":"e_1_3_3_7_2","unstructured":"Clinical Practice Guidelines \u2013 4th Edition. National Coalition For Hospice and Palliative Care [Internet]. 2023. 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