{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T19:15:34Z","timestamp":1777922134061,"version":"3.51.4"},"reference-count":27,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2019,4,1]],"date-time":"2019-04-01T00:00:00Z","timestamp":1554076800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,4,1]],"date-time":"2019-04-01T00:00:00Z","timestamp":1554076800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lymphatic Research and Biology"],"published-print":{"date-parts":[[2019,4,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The aims of this study were to explore, using visual art methodology, how children and adolescents perceive their lymphedema and conceptualize the barriers and enablers in self-management and to explore the role of an educational camp in promoting self-efficacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Participants (speaking English, French, and Italian) were recruited during an educational camp for children with lymphedema. Children and adolescents used different methodologies to depict living and self-managing their condition. Younger children (aged 5\u201312 years) drew pictures, and all children and adolescents (aged 5\u201318 years) were given cameras and asked to take photographs that depicted their experience of learning self-management of their condition during the camp. Rose's critical visual methodology framework was used for analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Analysis of the data produced five categories: Normal versus altered childhood, living with lymphedema; perceptions of lymphedema and self-care in younger children; adolescents' perception of living and managing lymphedema; learning self-efficacy; and insights into cultural differences in self-care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The study has shown that self-management is complex. Children and adolescents face many daily challenges and frustrations in managing their condition in addition to the normal challenges of development and growth that impact on: home life, time with friends, school activities, and relationships. Children expressed a deep longing for cure and a recognition that their lives were altered by having the condition that led to limitations in sport and wearing fashionable clothes and shoes. The importance of relationships with professionals was critical as was the experience of meeting and learning with other children through the camp experience. Attempts to simplify self-management techniques would appear to be a key priority as would a greater understanding of the self-beliefs young people have of their ability to influence and control their condition and its impact on their life.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/lrb.2018.0075","type":"journal-article","created":{"date-parts":[[2019,4,17]],"date-time":"2019-04-17T15:30:01Z","timestamp":1555515001000},"page":"231-244","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":12,"title":["A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema"],"prefix":"10.1177","volume":"17","author":[{"given":"Christine","family":"Moffatt","sequence":"first","affiliation":[{"name":"School of Social Sciences, Nottingham Trent University, Nottingham, United Kingdom."},{"name":"Department of Vascular Medicine, EA2992, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aimee","family":"Aubeeluck","sequence":"additional","affiliation":[{"name":"School of Health Science and Medicine, University of Nottingham, Nottingham, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elodie","family":"Stasi","sequence":"additional","affiliation":[{"name":"Center of Research of Immunopathology and Rare Diseases\u2014Coordinating Center of the Network for Rare Diseases of Piedmont and Aosta Valley, Turin, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sandrine","family":"Mestre","sequence":"additional","affiliation":[{"name":"Department of Vascular Medicine, EA2992, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sara","family":"Rowan","sequence":"additional","affiliation":[{"name":"Florence, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susie","family":"Murray","sequence":"additional","affiliation":[{"name":"Centre for Research and Implementation of Clinical Practice, London, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Isabelle","family":"Qu\u00e9r\u00e9","sequence":"additional","affiliation":[{"name":"Department of Vascular Medicine, EA2992, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2019,4,22]]},"reference":[{"key":"e_1_3_3_2_2","first-page":"206","article-title":"Primary lymphedema in children and adolescents: A follow-up study and review","volume":"76","author":"Smeltzer DM","year":"1985","unstructured":"Smeltzer DM, , Stickler GB, , Schirger A. 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