{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T19:15:38Z","timestamp":1777922138638,"version":"3.51.4"},"reference-count":31,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2019,4,1]],"date-time":"2019-04-01T00:00:00Z","timestamp":1554076800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,4,1]],"date-time":"2019-04-01T00:00:00Z","timestamp":1554076800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lymphatic Research and Biology"],"published-print":{"date-parts":[[2019,4,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Limited research has shown the impact lymphedema has on children and families. The aim of this study was to explore the parental experience of caring for a child or adolescent with lymphedema and the daily challenges of self-management and self-efficacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods and Results:<\/jats:title>\n                    <jats:p>\n                      Participants were recruited during an educational camp for children with lymphedema (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u200926). Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis. Analysis identified four superordinate themes; the journey, treatment management, independence, and psychosocial impact. Ten subthemes were identified: bandaging\/compression, professional support, holistic care, fear, self-efficacy, acceptance, friendship, guilt, distress, and hope.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Parental self-management of children with lymphedema is complex and invades many aspects of life. Lack of professional agreement over what constitutes self-management leads to parental confusion and anxiety. Self-management is demanding, and parents are ambivalent to its effectiveness, but choose to persevere through fear of their child's condition deteriorating. Self-efficacy is evident in complex problem solving, despite parents believing that they are not adequately prepared for this.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/lrb.2018.0077","type":"journal-article","created":{"date-parts":[[2019,4,17]],"date-time":"2019-04-17T15:30:01Z","timestamp":1555515001000},"page":"245-252","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":12,"title":["A Study to Explore the Parental Impact and Challenges of Self-Management in Children and Adolescents Suffering with Lymphedema"],"prefix":"10.1177","volume":"17","author":[{"given":"Christine","family":"Moffatt","sequence":"first","affiliation":[{"name":"School of Social Sciences, Nottingham Trent University, Nottingham, United Kingdom."},{"name":"Department of Vascular medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aimee","family":"Aubeeluck","sequence":"additional","affiliation":[{"name":"School of Health Science and Medicine, University of Nottingham, Nottingham, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elodie","family":"Stasi","sequence":"additional","affiliation":[{"name":"Center of Research of Immunopathology and Rare Diseases\u2014Coordinating Center of the Network for Rare Diseases of Piedmont and Aosta Valley, Turin, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roberto","family":"Bartoletti","sequence":"additional","affiliation":[{"name":"Dermopathic Institute of Immacolata, IDI-IRCCS, Rome, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christine","family":"Aussenac","sequence":"additional","affiliation":[{"name":"Department of Vascular medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dario","family":"Roccatello","sequence":"additional","affiliation":[{"name":"Dermopathic Institute of Immacolata, IDI-IRCCS, Rome, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Isabelle","family":"Qu\u00e9r\u00e9","sequence":"additional","affiliation":[{"name":"Department of Vascular medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2019,4,22]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2010.01394.x"},{"key":"e_1_3_3_3_2","first-page":"206","article-title":"Primary lymphedemas in children and adolescents: A follow-up study and review","volume":"76","author":"Smeltzer DM","year":"1985","unstructured":"Smeltzer DM, , Stickler GB, , Schirger A. 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