{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T19:16:33Z","timestamp":1777922193358,"version":"3.51.4"},"reference-count":20,"publisher":"SAGE Publications","issue":"5","license":[{"start":{"date-parts":[[2021,10,1]],"date-time":"2021-10-01T00:00:00Z","timestamp":1633046400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2021,10,1]],"date-time":"2021-10-01T00:00:00Z","timestamp":1633046400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lymphatic Research and Biology"],"published-print":{"date-parts":[[2021,10,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Self-management is a key aspect of lymphedema treatment and self-efficacy is a key factor linked to long-term adherence to treatment. The study aimed to generate self-efficacy scales to support the care of children and adolescents with lymphedema to support self-management.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods and Results:<\/jats:title>\n                    <jats:p>Parents of children with lymphedema and the professionals caring for them were recruited during a lymphedema educational camp. Six individual semistructured focus groups were undertaken in Italian, French, and English (three for parents and three for professionals) with simultaneous translation. Scale item generation was developed using interpretative phenomenological analysis and adopted Bandura's self-efficacy concept. Two self-efficacy tools were developed from research with 26 parents and 14 professionals. The parental tool (ILF parent SE) has 6 domains and 44 items: school; home and leisure; understanding the condition and treatment, and managing child and parent emotions. The professional tool (ILF Professional SE) has 4 domains and 21 items. This scale has two parts; the first indicates the level of professional autonomy in decision making, and the second covers assessment and treatment, patient understanding, and managing emotional reactions. Both tools adopt a 0- to 100-point scale using a 10-unit interval with 0 (cannot do) through to 100 (high certainty of being able to do). Initial face validity has been undertaken.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Self-efficacy has emerged as a complex issue faced by parents and professionals involved with children and young people with lymphedema. By being able to assess the challenges parents face in self-efficacy individualized programs can be developed that will assist families in managing this complex disease and lead to greater well-being. Increased professional self-awareness will help the development of mentorship programs to support professionals dealing daily with the stress of managing a rare disease in which the outcome may be uncertain.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/lrb.2021.0059","type":"journal-article","created":{"date-parts":[[2021,10,21]],"date-time":"2021-10-21T14:57:25Z","timestamp":1634828245000},"page":"460-467","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Development of Self-Efficacy Tools for Parents and Professionals Caring for Children and Young People with Lymphedema (ILF Parent SE and ILF Professional SE)"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2436-0129","authenticated-orcid":false,"given":"Christine J.","family":"Moffatt","sequence":"first","affiliation":[{"name":"Institute of Nursing and Midwifery Care Excellence, City Hospital, Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom."},{"name":"Copenhagen Wound Healing Centre, Department of Dermatology, Bispebjerg Hospital, Copenhagen, Denmark."},{"name":"Centre for Research and Implementation of Clinical Practice, London, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aimee","family":"Aubeeluck","sequence":"additional","affiliation":[{"name":"University of Nottingham, Nottingham, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elodie","family":"Stasi","sequence":"additional","affiliation":[{"name":"San Giovanni Bosco Hospital &amp; Department of Clinical and Biological Sciences, University of Turin, Turin, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roberto","family":"Bartoletti","sequence":"additional","affiliation":[{"name":"Instituto Dermopatico dell'Immacolata IDI-IRCCS, Rome, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dario","family":"Roccatello","sequence":"additional","affiliation":[{"name":"University of Turin, Turin, Italy."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Meadbh","family":"Mac Sweeney","sequence":"additional","affiliation":[{"name":"Sainte-Justine University Hospital Centre, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Chantal","family":"Lapointe","sequence":"additional","affiliation":[{"name":"Sainte-Justine University Hospital Centre, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helene","family":"Pourquier","sequence":"additional","affiliation":[{"name":"Vascular Department, University Hospital, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susie","family":"Murray","sequence":"additional","affiliation":[{"name":"Centre for Research and Implementation of Clinical Practice, London, United Kingdom."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sandrine","family":"Mestre","sequence":"additional","affiliation":[{"name":"Vascular Department, University Hospital, Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1492-9764","authenticated-orcid":false,"given":"Isabelle","family":"Qu\u00e9r\u00e9","sequence":"additional","affiliation":[{"name":"National Reference Centre for Rare and Vascular Diseases, Chu-Montpellier, France."},{"name":"Department of Vascular Medicine, UMR IDESP, Universit\u00e9 de Montpellier, Chu-Montpellier, France."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2021,10,15]]},"reference":[{"key":"e_1_3_3_2_2","volume-title":"International Consensus: Best Practice for the Management of Lymphoedema","author":"International Lymphoedema Framework","year":"2006","unstructured":"International Lymphoedema Framework. International Consensus: Best Practice for the Management of Lymphoedema. London, United Kingdom: MEP Ltd; 2006."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1089\/lrb.2013.1132"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1097\/NNR.0b013e31824f82b2"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1742-481X.2010.00657.x"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.3233\/PRM-140306"},{"key":"e_1_3_3_7_2","volume-title":"Social Foundations of Thought and Action: A Social Cognitive Theory","author":"Bandura A.","year":"1986","unstructured":"Bandura A. Social Foundations of Thought and Action: A Social Cognitive Theory. Englewood Cliffs, NJ: Prentice Hall; 1986."},{"key":"e_1_3_3_8_2","volume-title":"Self-Efficacy. The Exercise of Control","author":"Bandura A.","year":"1997","unstructured":"Bandura A. Self-Efficacy. The Exercise of Control. 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