{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T12:39:34Z","timestamp":1784723974240,"version":"3.55.0"},"reference-count":24,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2020,8,6]],"date-time":"2020-08-06T00:00:00Z","timestamp":1596672000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2020,8,6]],"date-time":"2020-08-06T00:00:00Z","timestamp":1596672000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliative Medicine Reports"],"published-print":{"date-parts":[[2020,10]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Legacy making has been the focus of recent literature; however, few studies examine how legacy making affects bereaved parents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To better understand legacy making's effect on bereaved parents, this study examined (1) the presentation of legacy making to parents, (2) parent satisfaction, and (3) parent utilization of the project.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Eko CORE (Eko Devices, Inc., Berkeley, CA), a digital stethoscope that generates a phonocardiogram, a graphical representation of S1 and S2 heart sounds, was used to record children's heartbeats as they approached end of life. The heartbeat was then overlaid to a song or voice recording or kept as a stand-alone file. An artistic embellishment of the phonocardiogram was also created. Parents were surveyed about their experience with the Music Therapy Heart Sounds (MTHS) program. Twelve parents completed the survey.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/subjects:<\/jats:title>\n                    <jats:p>Tertiary care children's hospital. The subjects were bereaved parents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Measurements:<\/jats:title>\n                    <jats:p>Five-question survey. Institutional Review Board review exempt.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      All respondents would recommend the MTHS program to other families experiencing end-of-life decision making. Forty-two percent (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20095) heard about the program from pediatric palliative physicians, and 50% (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20096) heard about it from therapists such as music or child life. The respondents varied in how often they utilized their child's heartbeat recordings: 25% (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20093) viewed or listened monthly, 33% (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20094) not at all, 17% (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20092) almost weekly, 17% less than monthly, and 8% (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      \u2009=\u20091) daily.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The MTHS program is an easy-to-implement and cost-effective way to perform legacy making that bereaved parents recommend for other families.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/pmr.2020.0028","type":"journal-article","created":{"date-parts":[[2020,8,6]],"date-time":"2020-08-06T13:53:20Z","timestamp":1596722000000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":20,"title":["Legacy Building in Pediatric End-of-Life Care through Innovative Use of a Digital Stethoscope"],"prefix":"10.1177","volume":"1","author":[{"given":"Elyse","family":"Andrews","sequence":"first","affiliation":[{"name":"Thomas Jefferson University Pediatrics Residency Program, Nemours\/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amelia","family":"Hayes","sequence":"additional","affiliation":[{"name":"Division of Palliative Medicine, Department of Pediatrics, Nemours\/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Cerulli","sequence":"additional","affiliation":[{"name":"Department of Child Life, Nemours\/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elissa G.","family":"Miller","sequence":"additional","affiliation":[{"name":"Division of Palliative Medicine, Department of Pediatrics, Nemours\/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA."},{"name":"Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicholas","family":"Slamon","sequence":"additional","affiliation":[{"name":"Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA."},{"name":"Division of Critical Care Medicine, Department of Pediatrics, Nemours\/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,8,6]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.3109\/00048679809062734"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2014.59.0406"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2018.0329"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2006.10.0743"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnu.2005.07.008"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10880-018-9590-7"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2014.08.021"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1097\/NMD.0000000000000539"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.psychres.2018.06.004"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2010.0291"},{"key":"e_1_3_3_12_2","first-page":"1536288","article-title":"Prolonged grief disorder for ICD-11: The primacy of clinical utility and international applicability","volume":"8","author":"Killikelly C","year":"2018","unstructured":"Killikelly C, , Maercker A: Prolonged grief disorder for ICD-11: The primacy of clinical utility and international applicability. 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