{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,4]],"date-time":"2026-03-04T15:14:55Z","timestamp":1772637295972,"version":"3.50.1"},"reference-count":39,"publisher":"Oxford University Press (OUP)","issue":"11","license":[{"start":{"date-parts":[[2020,9,3]],"date-time":"2020-09-03T00:00:00Z","timestamp":1599091200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"Patient-Centered Outcomes Research Institute Award","award":["CDRN-1306-04716"],"award-info":[{"award-number":["CDRN-1306-04716"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,11,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Health and healthcare disparities continue despite clinical, research, and policy efforts. Large clinical datasets may not contain data relevant to healthcare disparities and leveraging these for research may be crucial to improve health equity. The Health Disparities Collaborative Research Group was commissioned by the Patient-Centered Outcomes Research Institute to examine the data science needs for quality and complete data and provide recommendations for improving data science around health disparities. The group convened content experts, researchers, clinicians, and patients to produce these recommendations and suggestions for implementation. Our desire was to produce recommendations to improve the usability of healthcare datasets for health equity research. The recommendations are summarized in 3 primary domains: patient voice, accurate variables, and data linkage. The implementation of these recommendations in national datasets has the potential to accelerate health disparities research and promote efforts to reduce health inequities.<\/jats:p>","DOI":"10.1093\/jamia\/ocaa144","type":"journal-article","created":{"date-parts":[[2020,6,23]],"date-time":"2020-06-23T03:26:38Z","timestamp":1592882798000},"page":"1802-1807","source":"Crossref","is-referenced-by-count":13,"title":["Recommendations for improving national clinical datasets for health equity research"],"prefix":"10.1093","volume":"27","author":[{"given":"Rebecca G","family":"Block","sequence":"first","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"}]},{"given":"Jon","family":"Puro","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"}]},{"given":"Erika","family":"Cottrell","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"},{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA"}]},{"given":"Mitchell R","family":"Lunn","sequence":"additional","affiliation":[{"name":"Division of Nephrology, Department of Medicine, Stanford University School of Medicine, Stanford, California, USA"}]},{"given":"M J","family":"Dunne","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"}]},{"given":"Ana R","family":"Qui\u00f1ones","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"},{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA"}]},{"given":"Bowen","family":"Chung","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine, University of California Los Angeles, Los Angeles, California, USA"}]},{"given":"William","family":"Pinnock","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"}]},{"given":"Georgia M","family":"Reid","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"},{"name":"Department of Sociology and Anthropology, Lewis and Clark College, Portland, Oregon, USA"}]},{"given":"John","family":"Heintzman","sequence":"additional","affiliation":[{"name":"Department of Research, OCHIN, Portland, Oregon, USA"},{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA"}]}],"member":"286","published-online":{"date-parts":[[2020,9,3]]},"reference":[{"key":"2021060422085058400_ocaa144-B1","volume-title":"Report of the Secretary\u2019s Task Force Report on Black and Minority Health","author":"Heckler","year":"1985"},{"key":"2021060422085058400_ocaa144-B2","volume-title":"The Health of Lesbian, Gay, Bisexual, Transgender People: Building a Foundation for Better 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