{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,21]],"date-time":"2025-09-21T18:25:58Z","timestamp":1758479158215},"reference-count":13,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2020,11,5]],"date-time":"2020-11-05T00:00:00Z","timestamp":1604534400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"National Center for Advancing Translational Sciences of the National Institutes of Health under Grant","award":["UL1TR002378","UL1TR002319"],"award-info":[{"award-number":["UL1TR002378","UL1TR002319"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,2,15]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>We conducted an online experimental survey to evaluate attitudes toward an authorization for contact (AFC) program allowing researchers to contact patients about studies based on electronic record review. A total of 1070 participants were randomly assigned to 1 of 3 flyers varying in design and framing. Participants were asked to select concerns about and reasons for signing up for AFC. Logistic regression and latent class analysis were conducted. The most commonly selected concerns included needing more information (43%), privacy (40%), and needing more time to think (28%). A minority were not interested in participating in research (16%) and did not want to be bothered (15%). Latent class analysis identified clusters with specific concerns about privacy, lack of interest in research, and not wanting to be bothered. A novel flyer with simple and positive framing was associated with lower odds of both not wanting to be bothered (P\u2009=\u2009.01) and not being interested in research (P\u2009=\u2009.01). Many concerns about AFC programs appear nonspecific. Addressing privacy, lack of interest in research, and not wanting to be bothered warrant further study as ways to enhance recruitment.<\/jats:p>","DOI":"10.1093\/jamia\/ocaa214","type":"journal-article","created":{"date-parts":[[2020,9,2]],"date-time":"2020-09-02T19:15:01Z","timestamp":1599074101000},"page":"354-359","source":"Crossref","is-referenced-by-count":4,"title":["Public attitudes toward an authorization for contact program for clinical research"],"prefix":"10.1093","volume":"28","author":[{"given":"Nyiramugisha K","family":"Niyibizi","sequence":"first","affiliation":[{"name":"Georgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Candace D","family":"Speight","sequence":"additional","affiliation":[{"name":"Georgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA"},{"name":"Division of Cardiology, Department of Medicine, Emory University School of Medicine, Atlanta, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlie","family":"Gregor","sequence":"additional","affiliation":[{"name":"Institute of Translational Health Sciences, University of Washington, Seattle, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yi-An","family":"Ko","sequence":"additional","affiliation":[{"name":"Department of Biostatistics and Bioinformatics, Emory University Rollins School of Public Health, Atlanta, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephanie A","family":"Kraft","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA"},{"name":"Treuman Katz Center for Pediatric Bioethics, Seattle Children\u2019s Hospital and Research Institute, Seattle, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea R","family":"Mitchell","sequence":"additional","affiliation":[{"name":"Georgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA"},{"name":"Division of Cardiology, Department of Medicine, Emory University School of Medicine, Atlanta, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bradley G","family":"Phillips","sequence":"additional","affiliation":[{"name":"Department of Clinical and Administrative Pharmacy, University of Georgia College of Pharmacy, Athens, Georgia, USA"},{"name":"Biomedical and Health Sciences Institute, University of Georgia Office of Research, Athens, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathryn M","family":"Porter","sequence":"additional","affiliation":[{"name":"Treuman Katz Center for Pediatric Bioethics, Seattle Children\u2019s Hospital and Research Institute, Seattle, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Seema K","family":"Shah","sequence":"additional","affiliation":[{"name":"Research Ethics, Stanley Manne Research Institute, Ann and Robert Lurie Children\u2019s Hospital of Chicago, Chicago, Illinois, USA"},{"name":"Department of Pediatrics, Northwestern Feinberg School of Medicine, Chicago, Illinois, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeremy","family":"Sugarman","sequence":"additional","affiliation":[{"name":"Johns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Benjamin S","family":"Wilfond","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA"},{"name":"Treuman Katz Center for Pediatric Bioethics, Seattle Children\u2019s Hospital and Research Institute, Seattle, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Neal W","family":"Dickert","sequence":"additional","affiliation":[{"name":"Georgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA"},{"name":"Division of Cardiology, Department of Medicine, Emory University School of Medicine, Atlanta, Georgia, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2020,11,5]]},"reference":[{"issue":"4","key":"2021021519090530500_ocaa214-B1","doi-asserted-by":"crossref","first-page":"e0168223","DOI":"10.1371\/journal.pone.0168223","article-title":"A population-based approach for implementing change from opt-out to opt-in research permissions","volume":"12","author":"Marshall","year":"2017","journal-title":"PLoS One"},{"key":"2021021519090530500_ocaa214-B2","first-page":"1","article-title":"CTSA recruitment resources: an inventory of what CTSA hubs are currently 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