{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T20:42:39Z","timestamp":1783975359563,"version":"3.55.0"},"reference-count":54,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[2021,2,27]],"date-time":"2021-02-27T00:00:00Z","timestamp":1614384000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"GlaxoSmithKline and Engineering and Physical Sciences Research Council","award":["17100053"],"award-info":[{"award-number":["17100053"]}]},{"name":"Embiricos Trust Scholarship of Jesus College Cambridge and the Engineering and Physical Sciences Research Council","award":["EP\/N509620\/1"],"award-info":[{"award-number":["EP\/N509620\/1"]}]},{"name":"The Alan Turing Institute"},{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,8,13]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>In this perspective we want to highlight the rise of what we call \u201cdigital phenotyping\u201d or inferring insights about people\u00e3s health and behavior from their digital devices and data, and the challenges this introduces. Indeed, the collection, processing, and storage of data comes with significant ethical, security and data governance considerations. The COVID-19 pandemic has laid bare the importance of scientific data and modeling, both to understand the nature and spread of the disease, and to develop treatment. But digital devices have also played a (controversial) role, with track and trace systems and increasingly \u201cvaccine passports\u201d being rolled out to help societies open back up. These systems epitomize a wider and longer-standing trend towards seeing almost any form of personal data as potentially health data, especially with the rise of consumer health trackers and other gadgets. Here, we offer an overview of the risks this introduces, drawing on the earlier revolution in genomic sequencing, and propose guidelines to help protect privacy whilst utilizing personal data to help get society back up to speed.<\/jats:p>","DOI":"10.1093\/jamia\/ocab012","type":"journal-article","created":{"date-parts":[[2021,1,21]],"date-time":"2021-01-21T15:18:44Z","timestamp":1611242324000},"page":"2002-2008","source":"Crossref","is-referenced-by-count":35,"title":["Digital phenotyping and sensitive health data: Implications for data governance"],"prefix":"10.1093","volume":"28","author":[{"given":"Ignacio","family":"Perez-Pozuelo","sequence":"first","affiliation":[{"name":"MRC Epidemiology Unit, School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom"},{"name":"The Alan Turing Institute, London, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9761-951X","authenticated-orcid":false,"given":"Dimitris","family":"Spathis","sequence":"additional","affiliation":[{"name":"Department of Computer Science and Technology, University of Cambridge, Cambridge, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jordan","family":"Gifford-Moore","sequence":"additional","affiliation":[{"name":"School of Law, University of Oxford, Oxford, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Morley","sequence":"additional","affiliation":[{"name":"Oxford Internet Institute, University of Oxford, Oxford, United Kingdom"},{"name":"Nuffield Department of Primary Care, University of Oxford, Oxford, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josh","family":"Cowls","sequence":"additional","affiliation":[{"name":"The Alan Turing Institute, London, United Kingdom"},{"name":"Oxford Internet Institute, University of Oxford, Oxford, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2021,2,27]]},"reference":[{"key":"2021102516280374100_ocab012-B1","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1093\/idpl\/ipz023","article-title":"Should consent for data processing be privileged in health research? 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