{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,19]],"date-time":"2026-02-19T11:29:22Z","timestamp":1771500562739,"version":"3.50.1"},"reference-count":97,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2021,6,12]],"date-time":"2021-06-12T00:00:00Z","timestamp":1623456000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["IHS-1503-27848"],"award-info":[{"award-number":["IHS-1503-27848"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["#UL1RR024986"],"award-info":[{"award-number":["#UL1RR024986"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,7,30]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>Hemodialysis patients frequently experience dialysis therapy sessions complicated by intradialytic hypotension (IDH), a major patient safety concern. We investigate user-centered design requirements for a theory-informed, peer mentoring-based, informatics intervention to activate patients toward IDH prevention.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>We conducted observations (156 hours) and interviews (n\u2009=\u200928) with patients in 3 hemodialysis clinics, followed by 9 focus groups (including participatory design activities) with patients (n\u2009=\u200917). Inductive and deductive analyses resulted in themes and design principles linked to constructs from social, cognitive, and self-determination theories.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Hemodialysis patients want an informatics intervention for IDH prevention that collapses distance between patients, peers, and family; harnesses patients\u2019 strength of character and resolve in all parts of their life; respects and supports patients\u2019 individual needs, preferences, and choices; and links \u201cfeeling better on dialysis\u201d to becoming more involved in IDH prevention. Related design principles included designing for: depth of interpersonal connections; positivity; individual choice and initiative; and comprehension of connections and possible actions.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>Findings advance the design of informatics interventions by presenting design requirements for outpatient safety and addressing key design opportunities for informatics to support patient involvement; these include incorporation of behavior change theories. Results also demonstrate the meaning of design choices for hemodialysis patients in the context of their experiences; this may have applicability to other populations with serious illnesses.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>The resulting patient-facing informatics intervention will be evaluated in a pragmatic cluster-randomized controlled trial in 28 hemodialysis facilities in 4 US regions.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jamia\/ocab033","type":"journal-article","created":{"date-parts":[[2021,2,10]],"date-time":"2021-02-10T04:50:10Z","timestamp":1612932610000},"page":"1612-1631","source":"Crossref","is-referenced-by-count":18,"title":["Feeling better on hemodialysis: user-centered design requirements for promoting patient involvement in the prevention of treatment complications"],"prefix":"10.1093","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9120-7319","authenticated-orcid":false,"given":"Matthew A","family":"Willis","sequence":"first","affiliation":[{"name":"School of Information, University of Michigan, Ann Arbor, Michigan, USA"}]},{"given":"Leah Brand","family":"Hein","sequence":"additional","affiliation":[{"name":"School of Information, University of Michigan, Ann Arbor, Michigan, USA"}]},{"given":"Zhaoxian","family":"Hu","sequence":"additional","affiliation":[{"name":"School of Information and Computer Sciences, University of California, Irvine, California, USA"}]},{"given":"Rajiv","family":"Saran","sequence":"additional","affiliation":[{"name":"Division of Nephrology, Department of Medicine, University of Michigan, Ann Arbor, Michigan, USA"},{"name":"Kidney Epidemiology and Cost Center, University of Michigan, Ann Arbor, Michigan, USA"}]},{"given":"Marissa","family":"Argentina","sequence":"additional","affiliation":[{"name":"National Kidney Foundation, New York City, New York, USA"}]},{"given":"Jennifer","family":"Bragg-Gresham","sequence":"additional","affiliation":[{"name":"Division of Nephrology, Department of Medicine, University of Michigan, Ann Arbor, Michigan, USA"},{"name":"Kidney Epidemiology and Cost Center, University of Michigan, Ann Arbor, Michigan, USA"}]},{"given":"Sarah L","family":"Krein","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, Michigan, USA"},{"name":"Veterans Affairs Ann Arbor Center for Clinical Management Research, Ann Arbor, Michigan, USA"}]},{"given":"Brenda","family":"Gillespie","sequence":"additional","affiliation":[{"name":"Department of Biostatistics, Consulting for Statistics, Computing and Analytics Research, University of Michigan, Ann Arbor, Michigan, 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