{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,17]],"date-time":"2025-11-17T14:24:03Z","timestamp":1763389443586,"version":"3.37.3"},"reference-count":28,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[2021,6,21]],"date-time":"2021-06-21T00:00:00Z","timestamp":1624233600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,8,13]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.<\/jats:p>","DOI":"10.1093\/jamia\/ocab088","type":"journal-article","created":{"date-parts":[[2021,5,6]],"date-time":"2021-05-06T19:53:30Z","timestamp":1620330810000},"page":"2009-2012","source":"Crossref","is-referenced-by-count":8,"title":["Informatics-enabled citizen science to advance health equity"],"prefix":"10.1093","volume":"28","author":[{"given":"Rupa S","family":"Valdez","sequence":"first","affiliation":[{"name":"Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA"},{"name":"Department of Engineering Systems and Environment, University of Virginia, Charlottesville, Virginia, USA"},{"name":"Advisory Board, Residents for Respectful Research, Public Housing Association of Residents, Charlottesville, Virginia, USA"}]},{"given":"Don E","family":"Detmer","sequence":"additional","affiliation":[{"name":"Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA"}]},{"given":"Philip","family":"Bourne","sequence":"additional","affiliation":[{"name":"School of Data Science and Department of Biomedical Engineering, University of Virginia, Charlottesville, Virginia, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5766-3938","authenticated-orcid":false,"given":"Katherine K","family":"Kim","sequence":"additional","affiliation":[{"name":"Betty Irene Moore School of Nursing, University of California-Davis, Sacramento, California, USA"}]},{"given":"Robin","family":"Austin","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Minnesota, Minneapolis, Minnesota, USA"}]},{"given":"Anna","family":"McCollister","sequence":"additional","affiliation":[{"name":"Four Lights Consulting LLC, Washington, District of Columbia, USA"}]},{"given":"Courtney C","family":"Rogers","sequence":"additional","affiliation":[{"name":"Department of Engineering Systems and Environment, University of Virginia, Charlottesville, Virginia, USA"}]},{"given":"Karen C","family":"Waters-Wicks","sequence":"additional","affiliation":[{"name":"Advisory Board, Residents for Respectful Research, Public Housing Association of Residents, Charlottesville, Virginia, USA"},{"name":"Department of Community Engagement, Albemarle County Public Schools, Charlottesville, Virginia, USA"},{"name":"Department of Humanities, Piedmont Virginia Community College, Charlottesville, Virginia, USA"}]}],"member":"286","published-online":{"date-parts":[[2021,6,21]]},"reference":[{"issue":"8","key":"2021081407013383600_ocab088-B1","doi-asserted-by":"crossref","first-page":"2441","DOI":"10.1007\/s11606-020-05881-4","article-title":"COVID-19: magnifying the effect of health disparities","volume":"35","author":"Kim","year":"2020","journal-title":"J Gen Intern Med"},{"issue":"4","key":"2021081407013383600_ocab088-B2","doi-asserted-by":"crossref","first-page":"S149","DOI":"10.1016\/j.amepre.2011.07.013","article-title":"Public health and medicine: where the twain shall meet","volume":"41","author":"Fineberg","year":"2011","journal-title":"Am J Prev Med"},{"issue":"9","key":"2021081407013383600_ocab088-B3","doi-asserted-by":"crossref","first-page":"793","DOI":"10.1056\/NEJMp1500523","article-title":"A new initiative on precision medicine","volume":"372","author":"Collins","year":"2015","journal-title":"N Engl J Med"},{"issue":"4","key":"2021081407013383600_ocab088-B4","doi-asserted-by":"crossref","first-page":"658","DOI":"10.1093\/jamia\/ocaa009","article-title":"Language matters: precision health as a cross-cutting care, research, and policy agenda","volume":"27","author":"Payne","year":"2020","journal-title":"J Am Med Inform Assoc"},{"issue":"12","key":"2021081407013383600_ocab088-B5","doi-asserted-by":"crossref","first-page":"1646","DOI":"10.1097\/ACM.0000000000000794","article-title":"Community engagement studios: a structured approach to obtaining meaningful input from stakeholders to inform research","volume":"90","author":"Joosten","year":"2015","journal-title":"Acad Med J Assoc Am Med Coll"},{"key":"2021081407013383600_ocab088-B6","first-page":"386","article-title":"Is community-based participatory research (CBPR) useful? 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