{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,10]],"date-time":"2026-05-10T07:02:16Z","timestamp":1778396536292,"version":"3.51.4"},"reference-count":42,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[2022,6,9]],"date-time":"2022-06-09T00:00:00Z","timestamp":1654732800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["1U24MD016258"],"award-info":[{"award-number":["1U24MD016258"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["U24 MD016258"],"award-info":[{"award-number":["U24 MD016258"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000060","name":"National Institute of Allergy and Infectious Diseases","doi-asserted-by":"publisher","award":["HHSN272201500006I"],"award-info":[{"award-number":["HHSN272201500006I"]}],"id":[{"id":"10.13039\/100000060","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000060","name":"National Institute of Allergy and Infectious Diseases","doi-asserted-by":"publisher","award":["HHSN272201300017I"],"award-info":[{"award-number":["HHSN272201300017I"]}],"id":[{"id":"10.13039\/100000060","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000060","name":"National Institute of Allergy and Infectious Diseases","doi-asserted-by":"publisher","award":["1K24-AI143971"],"award-info":[{"award-number":["1K24-AI143971"]}],"id":[{"id":"10.13039\/100000060","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["HHSN275201000003I"],"award-info":[{"award-number":["HHSN275201000003I"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000038","name":"U.S. Food and Drug Administration","doi-asserted-by":"publisher","award":["5U18-FD006298"],"award-info":[{"award-number":["5U18-FD006298"]}],"id":[{"id":"10.13039\/100000038","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["CC2-Duke-2016"],"award-info":[{"award-number":["CC2-Duke-2016"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["CER-2018C2-13320"],"award-info":[{"award-number":["CER-2018C2-13320"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["RD-2020C2-20338"],"award-info":[{"award-number":["RD-2020C2-20338"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["COVID-2020C2-10761"],"award-info":[{"award-number":["COVID-2020C2-10761"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["1U24-AT010961"],"award-info":[{"award-number":["1U24-AT010961"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["1U24-MD016258"],"award-info":[{"award-number":["1U24-MD016258"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["5U19-AG065188"],"award-info":[{"award-number":["5U19-AG065188"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["5R01-MD013493"],"award-info":[{"award-number":["5R01-MD013493"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["75N97019F00181"],"award-info":[{"award-number":["75N97019F00181"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"NIH","doi-asserted-by":"publisher","award":["5U18-FD006298"],"award-info":[{"award-number":["5U18-FD006298"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Centers for Medicare & Medicaid Service","award":["75FCMC18D0047"],"award-info":[{"award-number":["75FCMC18D0047"]}]},{"DOI":"10.13039\/100000038","name":"FDA","doi-asserted-by":"publisher","award":["75F40119C10086"],"award-info":[{"award-number":["75F40119C10086"]}],"id":[{"id":"10.13039\/100000038","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000038","name":"FDA","doi-asserted-by":"publisher","award":["75F40119D10037"],"award-info":[{"award-number":["75F40119D10037"]}],"id":[{"id":"10.13039\/100000038","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["NU38OT000316"],"award-info":[{"award-number":["NU38OT000316"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Medical Device Innovation Consortium","award":["6292-2020-DQ\/5U01-FD006292"],"award-info":[{"award-number":["6292-2020-DQ\/5U01-FD006292"]}]},{"DOI":"10.13039\/100006545","name":"National Institute on Minority Health and Health Disparities","doi-asserted-by":"publisher","award":["1U24-MD016258"],"award-info":[{"award-number":["1U24-MD016258"]}],"id":[{"id":"10.13039\/100006545","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["5UL1-TR002553"],"award-info":[{"award-number":["5UL1-TR002553"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000051","name":"National Human Genome Research Institute","doi-asserted-by":"publisher","award":["1RM1-HG011123"],"award-info":[{"award-number":["1RM1-HG011123"]}],"id":[{"id":"10.13039\/100000051","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000054","name":"National Cancer Institute","doi-asserted-by":"publisher","award":["1UC2-CA233254"],"award-info":[{"award-number":["1UC2-CA233254"]}],"id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000054","name":"National Cancer Institute","doi-asserted-by":"publisher","award":["5P30-CA014236"],"award-info":[{"award-number":["5P30-CA014236"]}],"id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,8,16]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) program is a consortium of community-engaged research projects with the goal of increasing access to Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) tests in underserved populations. To accelerate clinical research, common data elements (CDEs) were selected and refined to standardize data collection and enhance cross-consortium analysis.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Materials and Methods<\/jats:title>\n                  <jats:p>The RADx-UP consortium began with more than 700 CDEs from the National Institutes of Health (NIH) CDE Repository, Disaster Research Response (DR2) guidelines, and the PHENotypes and eXposures (PhenX) Toolkit. Following a review of initial CDEs, we made selections and further refinements through an iterative process that included live forums, consultations, and surveys completed by the first 69 RADx-UP projects.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Following a multistep CDE development process, we decreased the number of CDEs, modified the question types, and changed the CDE wording. Most research projects were willing to collect and share demographic NIH Tier 1 CDEs, with the top exception reason being a lack of CDE applicability to the project. The NIH RADx-UP Tier 1 CDE with the lowest frequency of collection and sharing was sexual orientation.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>We engaged a wide range of projects and solicited bidirectional input to create CDEs. These RADx-UP CDEs could serve as the foundation for a patient-centered informatics architecture allowing the integration of disease-specific databases to support hypothesis-driven clinical research in underserved populations.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>A community-engaged approach using bidirectional feedback can lead to the better development and implementation of CDEs in underserved populations during public health emergencies.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jamia\/ocac097","type":"journal-article","created":{"date-parts":[[2022,6,9]],"date-time":"2022-06-09T13:01:57Z","timestamp":1654779717000},"page":"1480-1488","source":"Crossref","is-referenced-by-count":23,"title":["Standardizing, harmonizing, and protecting data collection to broaden the impact of COVID-19 research: the rapid acceleration of diagnostics-underserved populations (RADx-UP) initiative"],"prefix":"10.1093","volume":"29","author":[{"given":"Gabriel A","family":"Carrillo","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Cohen-Wolkowiez","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emily M","family":"D\u2019Agostino","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Department of Orthopaedic Surgery, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Department of Population Health Sciences, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Keith","family":"Marsolo","sequence":"additional","affiliation":[{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Department of Population Health Sciences, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa M","family":"Wruck","sequence":"additional","affiliation":[{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Department of Biostatistics and Bioinformatics, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Johnson","sequence":"additional","affiliation":[{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"James","family":"Topping","sequence":"additional","affiliation":[{"name":"Duke Clinical Research Institute, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Al","family":"Richmond","sequence":"additional","affiliation":[{"name":"Community-Campus Partnerships for Health , Raleigh, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Giselle","family":"Corbie","sequence":"additional","affiliation":[{"name":"Center for Health Equity Research, University of North Carolina , Chapel Hill, North Carolina, USA"},{"name":"Department of Social Medicine and Department of Medicine, University of North Carolina , Chapel Hill, North Carolina, USA"},{"name":"Department of Internal Medicine, University of North Carolina , Chapel Hill, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5622-7659","authenticated-orcid":false,"given":"Warren A","family":"Kibbe","sequence":"additional","affiliation":[{"name":"Department of Biostatistics and Bioinformatics, Duke University School of Medicine , Durham, North Carolina, USA"},{"name":"Duke Cancer Institute, Duke University School of Medicine , Durham, North Carolina, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2022,6,9]]},"reference":[{"issue":"1","key":"2022081707580448300_ocac097-B1","doi-asserted-by":"crossref","first-page":"147","DOI":"10.1186\/s12911-020-01168-0","article-title":"Composite CDE: modeling composite relationships between common data elements for representing complex clinical data","volume":"20","author":"Kim","year":"2020","journal-title":"BMC Med Inform Decis Mak"},{"key":"2022081707580448300_ocac097-B2","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1197\/jamia.M1963","article-title":"The clinical document architecture and the continuity of care record: a critical analysis","author":"Ferranti","year":"2006","journal-title":"J Am Med Inform Assoc"},{"issue":"4","key":"2022081707580448300_ocac097-B3","doi-asserted-by":"crossref","first-page":"675","DOI":"10.1111\/cts.12764","article-title":"Clinical trial generalizability assessment in the Big Data Era: a review","volume":"13","author":"He","year":"2020","journal-title":"Clin Transl Sci"},{"issue":"1","key":"2022081707580448300_ocac097-B4","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1186\/s12910-017-0179-8","article-title":"Implicit bias in healthcare professionals: a systematic review","volume":"18","author":"FitzGerald","year":"2017","journal-title":"BMC Med Ethics"},{"key":"2022081707580448300_ocac097-B5","doi-asserted-by":"crossref","first-page":"n304","DOI":"10.1136\/bmj.n304","article-title":"Does \u201cAI\u201d stand for augmenting inequality in the era of covid-19 healthcare?","volume":"372","author":"Leslie","year":"2021","journal-title":"BMJ"},{"issue":"11","key":"2022081707580448300_ocac097-B6","doi-asserted-by":"crossref","first-page":"1544","DOI":"10.1001\/jamainternmed.2018.3763","article-title":"Potential biases in machine learning algorithms using electronic health record data","volume":"178","author":"Gianfrancesco","year":"2018","journal-title":"JAMA Intern Med"},{"issue":"1","key":"2022081707580448300_ocac097-B7","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1093\/jamiaopen\/ooz054","article-title":"Stigma, biomarkers, and algorithmic bias: recommendations for precision behavioral health with artificial intelligence","volume":"3","author":"Walsh","year":"2020","journal-title":"JAMIA Open"},{"issue":"1","key":"2022081707580448300_ocac097-B8","doi-asserted-by":"crossref","first-page":"e179","DOI":"10.1017\/cts.2021.844","article-title":"How many minors are participating in clinical research today? An estimate and important lessons learned","volume":"5","author":"Ittenbach","year":"2021","journal-title":"J Clin Transl Sci"},{"issue":"1","key":"2022081707580448300_ocac097-B9","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1186\/s13063-017-2402-9","article-title":"Fair inclusion of pregnant women in clinical trials: an integrated scientific and ethical approach","volume":"19","author":"van der Graaf","year":"2018","journal-title":"Trials"},{"issue":"9","key":"2022081707580448300_ocac097-B10","doi-asserted-by":"crossref","first-page":"e012265","DOI":"10.1136\/bmjopen-2016-012265","article-title":"Exclusion of patients with concomitant chronic conditions in ongoing randomised controlled trials targeting 10 common chronic conditions and registered at ClinicalTrials.gov: a systematic review of registration details","volume":"6","author":"Buffel du Vaure","year":"2016","journal-title":"BMJ Open"},{"issue":"9","key":"2022081707580448300_ocac097-B11","doi-asserted-by":"crossref","first-page":"e59","DOI":"10.1056\/NEJMp2021971","article-title":"Racial disproportionality in Covid clinical trials","volume":"383","author":"Chastain","year":"2020","journal-title":"N Engl J Med"},{"issue":"4","key":"2022081707580448300_ocac097-B12","doi-asserted-by":"crossref","first-page":"327","DOI":"10.1177\/107327481602300404","article-title":"Barriers to clinical trial enrollment in racial and ethnic minority patients with cancer","volume":"23","author":"Hamel","year":"2016","journal-title":"Cancer Control"},{"issue":"19","key":"2022081707580448300_ocac097-B13","doi-asserted-by":"crossref","first-page":"1813","DOI":"10.1056\/NEJMoa2007764","article-title":"Remdesivir for the treatment of Covid-19\u2014final report","volume":"383","author":"Beigel","year":"2020","journal-title":"N Engl J Med"},{"issue":"7","key":"2022081707580448300_ocac097-B14","doi-asserted-by":"crossref","first-page":"e2117074","DOI":"10.1001\/jamanetworkopen.2021.17074","article-title":"Black and Latinx community perspectives on COVID-19 mitigation behaviors, testing, and vaccines","volume":"4","author":"Jimenez","year":"2021","journal-title":"JAMA Netw Open"},{"issue":"24","key":"2022081707580448300_ocac097-B15","doi-asserted-by":"crossref","first-page":"2466","DOI":"10.1001\/jama.2020.8598","article-title":"COVID-19 and racial\/ethnic disparities","volume":"323","author":"Webb Hooper","year":"2020","journal-title":"JAMA"},{"key":"2022081707580448300_ocac097-B16","doi-asserted-by":"crossref","first-page":"29842","DOI":"10.3402\/gha.v8.29842","article-title":"Exploring the role of community engagement in improving the health of disadvantaged populations: a systematic review","volume":"8","author":"Cyril","year":"2015","journal-title":"Glob Health Action"},{"key":"2022081707580448300_ocac097-B17","first-page":"16","article-title":"Promoting community and population health in public health and medicine: a stepwise guide to initiating and conducting community-engaged research","volume":"11","author":"Rhodes","year":"2018","journal-title":"J Health Disparities Res Pract"},{"issue":"1","key":"2022081707580448300_ocac097-B18","doi-asserted-by":"crossref","first-page":"49","DOI":"10.1097\/OLQ.0000000000001267","article-title":"Critical elements of community engagement to address disparities and related social determinants of health: the CDC Community Approaches to Reducing STDs (CARS) initiative","volume":"48","author":"Rhodes","year":"2021","journal-title":"Sex Transm Dis"},{"key":"2022081707580448300_ocac097-B19","first-page":"438","article-title":"CONSIDER statement: consolidated recommendations for sharing individual participant data from human clinical studies","volume":"2021","author":"Mayer","year":"2021","journal-title":"AMIA Jt Summits Transl Sci Proc"},{"key":"2022081707580448300_ocac097-B20","first-page":"602","article-title":"Analyzing real-world use of research common data elements","volume":"2018","author":"Huser","year":"2018","journal-title":"AMIA Annu Symp Proc"},{"issue":"6","key":"2022081707580448300_ocac097-B21","doi-asserted-by":"crossref","first-page":"671","DOI":"10.1177\/1740774516653238","article-title":"Improving the value of clinical research through the use of Common Data Elements","volume":"13","author":"Sheehan","year":"2016","journal-title":"Clin Trials"},{"key":"2022081707580448300_ocac097-B22","first-page":"681","article-title":"Unleashing the value of common data elements through the CEDAR Workbench","volume":"2019","author":"O\u2019Connor","year":"2019","journal-title":"AMIA Annu Symp Proc"},{"issue":"2","key":"2022081707580448300_ocac097-B23","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1016\/j.outlook.2014.11.006","article-title":"Implementing common data elements across studies to advance research","volume":"63","author":"Cohen","year":"2015","journal-title":"Nurs Outlook"},{"issue":"3","key":"2022081707580448300_ocac097-B24","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1007\/s10545-017-0035-5","article-title":"Common data elements for clinical research in mitochondrial disease: a National Institute for Neurological Disorders and Stroke project","volume":"40","author":"Karaa","year":"2017","journal-title":"J Inherit Metab Dis"},{"key":"2022081707580448300_ocac097-B25","year":"2022"},{"key":"2022081707580448300_ocac097-B26","year":"2022"},{"key":"2022081707580448300_ocac097-B27"},{"issue":"11","key":"2022081707580448300_ocac097-B28","doi-asserted-by":"crossref","first-page":"1071","DOI":"10.1056\/NEJMsr2022263","article-title":"Rapid scaling up of Covid-19 diagnostic testing in the United States \u2013 The NIH RADx Initiative","volume":"383","author":"Tromberg","year":"2020","journal-title":"N Engl J Med"},{"key":"2022081707580448300_ocac097-B29"},{"key":"2022081707580448300_ocac097-B30","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1146\/annurev.publhealth.27.021405.102113","article-title":"Effective recruitment and retention of minority research participants","volume":"27","author":"Yancey","year":"2006","journal-title":"Annu Rev Public Health"},{"key":"2022081707580448300_ocac097-B31","article-title":"Disaster research response (DR2) resources portal: frequently asked questions"},{"key":"2022081707580448300_ocac097-B32","doi-asserted-by":"crossref","first-page":"103421","DOI":"10.1016\/j.jbi.2020.103421","article-title":"FAIR data sharing: the roles of common data elements and harmonization","volume":"107","author":"Kush","year":"2020","journal-title":"J Biomed Inform"},{"issue":"1","key":"2022081707580448300_ocac097-B33","doi-asserted-by":"crossref","first-page":"e17187","DOI":"10.2196\/17187","article-title":"Prevalence of health misinformation on social media: systematic review","volume":"23","author":"Suarez-Lledo","year":"2021","journal-title":"J Med Internet Res"},{"issue":"4","key":"2022081707580448300_ocac097-B34","doi-asserted-by":"crossref","first-page":"652","DOI":"10.1093\/jamia\/ocaa008","article-title":"National health information technology priorities for research: a policy and development agenda","volume":"27","author":"Zayas-Cab\u00e1n","year":"2020","journal-title":"J Am Med Inform Assoc"},{"issue":"6","key":"2022081707580448300_ocac097-B35","doi-asserted-by":"crossref","first-page":"4975","DOI":"10.1007\/s11192-021-03971-6","article-title":"The sharing of research data facing the COVID-19 pandemic","volume":"126","author":"Lucas-Dominguez","year":"2021","journal-title":"Scientometrics"},{"issue":"3","key":"2022081707580448300_ocac097-B36","doi-asserted-by":"crossref","first-page":"427","DOI":"10.1093\/jamia\/ocaa196","article-title":"The National COVID Cohort Collaborative (N3C): rationale, design, infrastructure, and deployment","volume":"28","author":"Haendel","year":"2021","journal-title":"J Am Med Inform Assoc"},{"issue":"1","key":"2022081707580448300_ocac097-B37","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1038\/s41746-020-00362-8","article-title":"Privacy protections to encourage use of health-relevant digital data in a learning health system","volume":"4","author":"McGraw","year":"2021","journal-title":"NPJ Digit Med"},{"issue":"6","key":"2022081707580448300_ocac097-B38","doi-asserted-by":"crossref","first-page":"963","DOI":"10.1093\/jamia\/ocaa039","article-title":"Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic","volume":"27","author":"Lenert","year":"2020","journal-title":"J Am Med Inform Assoc"},{"issue":"9","key":"2022081707580448300_ocac097-B39","doi-asserted-by":"crossref","first-page":"e12861","DOI":"10.2196\/12861","article-title":"Wearable health technology and electronic health record integration: scoping review and future directions","volume":"7","author":"Dinh-Le","year":"2019","journal-title":"JMIR Mhealth Uhealth"},{"issue":"1","key":"2022081707580448300_ocac097-B40","doi-asserted-by":"crossref","first-page":"122","DOI":"10.1186\/s12910-021-00687-3","article-title":"Privacy and artificial intelligence: challenges for protecting health information in a new era","volume":"22","author":"Murdoch","year":"2021","journal-title":"BMC Med Ethics"},{"key":"2022081707580448300_ocac097-B41","article-title":"Verily\u2019s COVID-19 screening website leaves privacy questions unanswered","author":"Gebhart","journal-title":"EFF: Electronic Frontier Foundation"},{"issue":"2","key":"2022081707580448300_ocac097-B42","doi-asserted-by":"crossref","first-page":"020103","DOI":"10.7189\/jogh.10.020103","article-title":"The ethics and value of contact tracing apps: international insights and implications for Scotland\u2019s COVID-19 response","volume":"10","author":"Pagliari","year":"2020","journal-title":"J Glob Health"}],"container-title":["Journal of the American Medical Informatics Association"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/jamia\/advance-article-pdf\/doi\/10.1093\/jamia\/ocac097\/43989735\/ocac097.pdf","content-type":"application\/pdf","content-version":"am","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/jamia\/article-pdf\/29\/9\/1480\/45444482\/ocac097.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/jamia\/article-pdf\/29\/9\/1480\/45444482\/ocac097.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T07:59:03Z","timestamp":1660723143000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/jamia\/article\/29\/9\/1480\/6604758"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,6,9]]},"references-count":42,"journal-issue":{"issue":"9","published-online":{"date-parts":[[2022,6,9]]},"published-print":{"date-parts":[[2022,8,16]]}},"URL":"https:\/\/doi.org\/10.1093\/jamia\/ocac097","relation":{},"ISSN":["1527-974X"],"issn-type":[{"value":"1527-974X","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2022,9,1]]},"published":{"date-parts":[[2022,6,9]]}}}