{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,11]],"date-time":"2025-12-11T21:02:00Z","timestamp":1765486920124,"version":"3.37.3"},"reference-count":56,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2023,6,5]],"date-time":"2023-06-05T00:00:00Z","timestamp":1685923200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100027896","name":"Patrick J. McGovern Foundation","doi-asserted-by":"publisher","award":["C-7000-112110-7030755-45"],"award-info":[{"award-number":["C-7000-112110-7030755-45"]}],"id":[{"id":"10.13039\/100027896","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Centers for Disease Control and Prevention, Center for State, Tribal, Local and Territorial","award":["CDC-RFA-OT21-2103"],"award-info":[{"award-number":["CDC-RFA-OT21-2103"]}]},{"name":"COVID-19 Health Disparities Among Populations at High-Risk and Underserved, Including Racial"},{"name":"Ethnic Minority Populations and Rural Communities","award":["A138216"],"award-info":[{"award-number":["A138216"]}]},{"name":"San Francisco Department of Public Health"},{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,1,18]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>This scoping review aims to address a gap in the literature on community engagement in developing data visualizations intended to improve population health. The review objectives are to: (1) synthesize literature on the types of community engagement activities conducted by researchers working with community partners and (2) characterize instances of \u201ccreative data literacy\u201d within data visualizations developed in community-researcher partnerships.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>Using the 2018 PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) guidelines, the review focuses on peer-reviewed journal articles from 2010 to 2022 in PubMed, Web of Science, and Google Scholar. A community engagement tool was applied to the studies by independent reviewers to classify levels of community engagement, social determinants, and vulnerable populations.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Twenty-seven articles were included in the scoping review. Twelve articles worked with vulnerable populations. Four articles attempted to alleviate barriers to representation in their respective studies, with addressing language barriers being the most prevalent approach. Thirteen articles considered social determinants of health. Sixteen studies engaged in iterative approaches with intended users when developing the visualization or tool.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>Only a few significant examples of creative data literacy are incorporated in the studies. We recommend a specific focus on engaging intended users at every step of the development process, addressing language and cultural differences, and empowering intended users as data storytellers.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>There is room for deeper and more meaningful community involvement in the development of health-related data visualizations geared towards them.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jamia\/ocad090","type":"journal-article","created":{"date-parts":[[2023,6,9]],"date-time":"2023-06-09T13:45:17Z","timestamp":1686318317000},"page":"479-487","source":"Crossref","is-referenced-by-count":3,"title":["Community engagement in the development of health-related data visualizations: a scoping review"],"prefix":"10.1093","volume":"31","author":[{"given":"Darren","family":"Chau","sequence":"first","affiliation":[{"name":"University of California Berkeley , Berkeley, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jos\u00e9","family":"Parra","sequence":"additional","affiliation":[{"name":"Partnerships for Research in Implementation Science for Equity (PRISE) Center at University of California San Francisco , San Francisco, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maricel G","family":"Santos","sequence":"additional","affiliation":[{"name":"Department of English Language & Literature, San Francisco State University , San Francisco, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda Jos\u00e9","family":"Bast\u00edas","sequence":"additional","affiliation":[{"name":"Graduate College of Education, San Francisco State University, San Francisco, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Kim","sequence":"additional","affiliation":[{"name":"Department of English Language & Literature, San Francisco State University , San Francisco, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margaret A","family":"Handley","sequence":"additional","affiliation":[{"name":"Partnerships for Research in Implementation Science for Equity (PRISE) Center at University of California San Francisco , San Francisco, California, USA"},{"name":"Department of Epidemiology and Biostatistics, University of California San Francisco , San Francisco, California, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2023,6,5]]},"reference":[{"key":"2024011907285350800_ocad090-B1","volume-title":"W.E.B Du Bois\u2019s Data Portraits: Visualizing Black America","author":"Du Bois","year":"2018","edition":"1st ed"},{"key":"2024011907285350800_ocad090-B2","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1145\/3411764.3445381","author":"Zhang","year":"2021"},{"issue":"4","key":"2024011907285350800_ocad090-B3","doi-asserted-by":"crossref","first-page":"532","DOI":"10.1177\/0272989X11424926","article-title":"The influence of graphic display format on the interpretations of quantitative risk information among adults with lower education and literacy: a randomized experimental study","volume":"32","author":"McCaffery","year":"2012","journal-title":"Med Decis Making"},{"author":"Read","key":"2024011907285350800_ocad090-B4"},{"year":"2017","author":"de Sa","key":"2024011907285350800_ocad090-B5"},{"issue":"1","key":"2024011907285350800_ocad090-B6","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1055\/s-0042-1742503","article-title":"Social media, digital health literacy, and digital ethics in the light of health equity: IMIA participatory health and social media working group","volume":"31","author":"Rivera-Romero","year":"2022","journal-title":"Yearb Med Inform"},{"issue":"5","key":"2024011907285350800_ocad090-B7","doi-asserted-by":"crossref","first-page":"643","DOI":"10.1377\/hlthaff.2022.00300","article-title":"Policy considerations to ensure telemedicine equity: perspective examines policy considerations to ensure telemedicine equity","volume":"41","author":"Khoong","year":"2022","journal-title":"Health Aff (Millwood)"},{"issue":"8","key":"2024011907285350800_ocad090-B8","doi-asserted-by":"crossref","first-page":"e526","DOI":"10.1016\/S2589-7500(21)00118-7","article-title":"The need for feminist intersectionality in digital health","volume":"3","author":"Figueroa","year":"2021","journal-title":"Lancet Digit Health"},{"key":"2024011907285350800_ocad090-B9","first-page":"21","article-title":"Human rights and digital health technologies","volume":"22","author":"Sun","year":"2020","journal-title":"Health Hum Rights"},{"key":"2024011907285350800_ocad090-B10","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1146\/annurev-publhealth-051920-110928","article-title":"Risks and opportunities to ensure equity in the application of big data research in public health","volume":"43","author":"Wesson","year":"2022","journal-title":"Annu Rev Public Health"},{"issue":"18","key":"2024011907285350800_ocad090-B11","doi-asserted-by":"crossref","first-page":"1795","DOI":"10.1001\/jama.2021.18459","article-title":"Focusing on digital health equity","volume":"326","author":"Lyles","year":"2021","journal-title":"Jama"},{"key":"2024011907285350800_ocad090-B12","doi-asserted-by":"crossref","first-page":"205520762210769","DOI":"10.1177\/20552076221076927","article-title":"COVID-19 infodemic and digital health literacy in vulnerable populations: a scoping review","volume":"8","author":"Choukou","year":"2022","journal-title":"Digit Health"},{"key":"2024011907285350800_ocad090-B13","volume-title":"Automating Inequality: How High-Tech Tools Profile, Police, and Punish the Poor","author":"Eubanks","year":"2017","edition":"ed"},{"issue":"1","key":"2024011907285350800_ocad090-B14","first-page":"6","article-title":"Creative data literacy: bridging the gap between the data-haves and data-have nots","volume":"23","author":"D\u2019Ignazio","year":"2022","journal-title":"Inf Des J"},{"issue":"1","key":"2024011907285350800_ocad090-B15","doi-asserted-by":"crossref","first-page":"122","DOI":"10.5993\/AJHB.31.s1.16","article-title":"Integrating literacy, culture, and language to improve health care quality for diverse populations","volume":"31","author":"Andrulis","year":"2007","journal-title":"Am J Health Behav"},{"issue":"Suppl. 3","key":"2024011907285350800_ocad090-B16","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1080\/10810730.2012.712621","article-title":"Low health literacy, limited English proficiency, and health status in Asians, Latinos, and other racial\/ethnic groups in California","volume":"17","author":"Sentell","year":"2012","journal-title":"J Health Commun"},{"issue":"3","key":"2024011907285350800_ocad090-B17","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1177\/0739986312445566","article-title":"An ecological perspective on U.S. Latinos\u2019 health communication behaviors, access, and outcomes","volume":"34","author":"Katz","year":"2012","journal-title":"Hisp J Behav Sci"},{"issue":"1","key":"2024011907285350800_ocad090-B18","doi-asserted-by":"crossref","first-page":"205395171664834","DOI":"10.1177\/2053951716648346","article-title":"Critical data studies: a dialog on data and space","volume":"3","author":"Dalton","year":"2016","journal-title":"Big Data Soc"},{"key":"2024011907285350800_ocad090-B19","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1145\/3481549.3481558","author":"Stoiber","year":"2021"},{"issue":"4","key":"2024011907285350800_ocad090-B20","doi-asserted-by":"crossref","first-page":"751","DOI":"10.1055\/s-0039-1697592","article-title":"A systematic review of patient-facing visualizations of personal health data","volume":"10","author":"Turchioe","year":"2019","journal-title":"Appl Clin Inform"},{"issue":"6","key":"2024011907285350800_ocad090-B21","doi-asserted-by":"crossref","first-page":"1090","DOI":"10.1016\/j.pec.2018.12.029","article-title":"Patient and clinician perspectives on optimizing graphical displays of longitudinal medication adherence data","volume":"102","author":"Pack","year":"2019","journal-title":"Patient Educ Couns"},{"issue":"3","key":"2024011907285350800_ocad090-B22","doi-asserted-by":"publisher","first-page":"108","DOI":"10.15353\/joci.v12i3.3279","article-title":"Contributions of Paulo Freire for a critical data literacy: a popular education approach","volume":"12","author":"Tygel","year":"2016","journal-title":"J Commun Inform"},{"issue":"4","key":"2024011907285350800_ocad090-B23","doi-asserted-by":"crossref","first-page":"339","DOI":"10.1080\/10810730.2019.1597949","article-title":"Visualizing air pollution: communication of environmental health information in a Chinese immigrant community","volume":"24","author":"Wong","year":"2019","journal-title":"J Health Commun"},{"issue":"6","key":"2024011907285350800_ocad090-B24","doi-asserted-by":"crossref","first-page":"1857","DOI":"10.1073\/pnas.1807180116","article-title":"Data visualization literacy: definitions, conceptual frameworks, exercises, and assessments","volume":"116","author":"B\u00f6rner","year":"2019","journal-title":"Proc Natl Acad Sci USA"},{"issue":"4","key":"2024011907285350800_ocad090-B25","doi-asserted-by":"crossref","first-page":"1031","DOI":"10.4338\/ACI-2017-06-RA-0096","article-title":"Core components for a clinically integrated mHealth app for asthma symptom monitoring","volume":"8","author":"Rudin","year":"2017","journal-title":"Appl Clin Inform"},{"issue":"4","key":"2024011907285350800_ocad090-B26","doi-asserted-by":"crossref","first-page":"597","DOI":"10.1055\/s-0039-1694001","article-title":"Developing infographics to facilitate HIV-related patient\u2013provider communication in a limited-resource setting","volume":"10","author":"Stonbraker","year":"2019","journal-title":"Appl Clin Inform"},{"issue":"2","key":"2024011907285350800_ocad090-B27","doi-asserted-by":"crossref","first-page":"e11342","DOI":"10.2196\/11342","article-title":"Developing a data dashboard framework for population health surveillance: widening access to clinical trial findings","volume":"3","author":"Concannon","year":"2019","journal-title":"JMIR Form Res"},{"issue":"4","key":"2024011907285350800_ocad090-B28","doi-asserted-by":"crossref","first-page":"33","DOI":"10.3390\/informatics4040033","article-title":"Health literacy for the general public: making a case for non-trivial visualizations","volume":"4","author":"Ola","year":"2017","journal-title":"Informatics"},{"issue":"1","key":"2024011907285350800_ocad090-B29","doi-asserted-by":"crossref","first-page":"696","DOI":"10.3390\/ijerph20010696","article-title":"Working with data in adult english classrooms: lessons learned about communicative justice during the COVID-19 pandemic","volume":"20","author":"Handley","year":"2022","journal-title":"Int J Environ Res Public Health"},{"volume-title":"Acts of Meaning","year":"1990","author":"Bruner","key":"2024011907285350800_ocad090-B30"},{"issue":"11","key":"2024011907285350800_ocad090-B31","doi-asserted-by":"crossref","first-page":"1640","DOI":"10.1080\/1369118X.2020.1716041","article-title":"Conceptualising critical data literacies for civil society organisations: agency, care, and social responsibility","volume":"24","author":"Fotopoulou","year":"2021","journal-title":"Inf Commun Soc"},{"issue":"1","key":"2024011907285350800_ocad090-B32","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1186\/s12874-018-0611-x","article-title":"Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach","volume":"18","author":"Munn","year":"2018","journal-title":"BMC Med Res Methodol"},{"issue":"7","key":"2024011907285350800_ocad090-B33","doi-asserted-by":"crossref","first-page":"467","DOI":"10.7326\/M18-0850","article-title":"PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation","volume":"169","author":"Tricco","year":"2018","journal-title":"Ann Intern Med"},{"key":"2024011907285350800_ocad090-B34","first-page":"407","volume-title":"Community-Based Participatory Research for Health: From Process to Outcomes","author":"Mercer","year":"2008"},{"author":"Office of Disease Prevention and Health Promotion","key":"2024011907285350800_ocad090-B35"},{"issue":"6","key":"2024011907285350800_ocad090-B36","doi-asserted-by":"crossref","first-page":"635","DOI":"10.1007\/s10900-010-9254-5","article-title":"Disease maps as context for community mapping: a methodological approach for linking confidential health information with local geographical knowledge for community health research","volume":"35","author":"Beyer","year":"2010","journal-title":"J Community Health"},{"issue":"6","key":"2024011907285350800_ocad090-B37","doi-asserted-by":"crossref","first-page":"e124","DOI":"10.2196\/resprot.6927","article-title":"An interactive, mobile-based tool for personal social network data collection and visualization among a geographically isolated and socioeconomically disadvantaged population: early-stage feasibility study with qualitative user feedback","volume":"6","author":"Eddens","year":"2017","journal-title":"JMIR Res Protoc"},{"key":"2024011907285350800_ocad090-B38","doi-asserted-by":"crossref","first-page":"004695802110592","DOI":"10.1177\/00469580211059290","article-title":"An evaluation of an environmental health infographic in community settings","volume":"58","author":"Lerman Ginzburg","year":"2021","journal-title":"Inquiry"},{"issue":"1","key":"2024011907285350800_ocad090-B39","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1080\/17538157.2018.1540422","article-title":"Color-encoding visualizations as a tool to assist a nonliterate population in completing health survey responses","volume":"45","author":"Lor","year":"2020","journal-title":"Inform Health Soc Care"},{"issue":"2","key":"2024011907285350800_ocad090-B40","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1353\/cpr.2016.0030","article-title":"Multidirectional translation of environmental health science in community settings: the case of oxidative stress pathways","volume":"10","author":"Sampson","year":"2016","journal-title":"Prog Community Health Partnersh"},{"issue":"1","key":"2024011907285350800_ocad090-B41","first-page":"54","article-title":"Public participation, trust and data sharing: gardens as hubs for citizen science and environmental health literacy efforts","volume":"9","author":"Sandhaus","year":"2019","journal-title":"Int J Sci Educ B Commun Public Engagem"},{"key":"2024011907285350800_ocad090-B42","first-page":"395","article-title":"Using feedback intervention theory to guide clinical dashboard design","volume":"2018","author":"Dowding","year":"2018","journal-title":"AMIA Annu Symp Proc AMIA Symp"},{"issue":"3","key":"2024011907285350800_ocad090-B43","doi-asserted-by":"crossref","first-page":"475","DOI":"10.1111\/j.1539-6924.2010.01527.x","article-title":"Assessment and application of national environmental databases and mapping tools at the local level to two community case studies: assessment and application of national environmental databases","volume":"31","author":"Hammond","year":"2011","journal-title":"Risk Anal"},{"issue":"5","key":"2024011907285350800_ocad090-B44","doi-asserted-by":"crossref","first-page":"gnz085","DOI":"10.1093\/geront\/gnz085","article-title":"Helping Hispanic family caregivers of persons with dementia \u201cget the picture\u201d about health status through tailored infographics","volume":"59","author":"Arcia","year":"2019","journal-title":"Gerontologist"},{"issue":"2","key":"2024011907285350800_ocad090-B45","doi-asserted-by":"crossref","first-page":"020319","DOI":"10.7189\/jogh.09.020319","article-title":"Leveraging data visualization to improve the use of data for global health decision-making","volume":"9","author":"Aung","year":"2019","journal-title":"J Glob Health"},{"issue":"1\u20132","key":"2024011907285350800_ocad090-B46","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1159\/000505854","article-title":"Illustrating cancer risk: patient risk communication preferences and interest regarding a novel BRCA1\/2 genetic risk modifier test","volume":"23","author":"Hamilton","year":"2020","journal-title":"Public Health Genomics"},{"issue":"22","key":"2024011907285350800_ocad090-B47","doi-asserted-by":"crossref","first-page":"11881","DOI":"10.3390\/ijerph182211881","article-title":"Participatory design of a web-based HIV oral self-testing infographic experiment (HOTIE) for emerging adult sexual minority men of color: a mixed methods randomized control trial","volume":"18","author":"Ramos","year":"2021","journal-title":"Int J Environ Res Public Health"},{"issue":"10","key":"2024011907285350800_ocad090-B48","doi-asserted-by":"crossref","first-page":"1939","DOI":"10.1016\/j.pec.2019.05.004","article-title":"Presenting time-based risks of stroke and death for Patients facing carotid stenosis treatment options: patients prefer pie charts over icon arrays","volume":"102","author":"Scalia","year":"2019","journal-title":"Patient Educ Couns"},{"key":"2024011907285350800_ocad090-B49","doi-asserted-by":"publisher","first-page":"2314","DOI":"10.1145\/2851581.2892523","author":"Solomon","year":"2016"},{"issue":"2","key":"2024011907285350800_ocad090-B50","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1093\/jamia\/ocz189","article-title":"Patient preferences for visualization of longitudinal patient-reported outcomes data","volume":"27","author":"Stonbraker","year":"2020","journal-title":"J Am Med Inform Assoc"},{"issue":"4","key":"2024011907285350800_ocad090-B51","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1080\/09540121.2021.1883517","article-title":"Feasibility and acceptability of using information visualizations to improve HIV-related communication in a limited-resource setting: a short report","volume":"34","author":"Stonbraker","year":"2022","journal-title":"AIDS Care"},{"issue":"2","key":"2024011907285350800_ocad090-B52","doi-asserted-by":"crossref","first-page":"450","DOI":"10.1016\/j.jstrokecerebrovasdis.2018.10.018","article-title":"The role of personalized virtual reality in education for patients post stroke\u2014a qualitative case series","volume":"28","author":"Thompson-Butel","year":"2019","journal-title":"J Stroke Cerebrovasc Dis"},{"issue":"2","key":"2024011907285350800_ocad090-B53","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1016\/j.cvdhj.2020.09.003","article-title":"Patient responses to daily cardiac resynchronization therapy device data: A pilot trial assessing a novel patient-centered digital dashboard in everyday life","volume":"1","author":"Toscos","year":"2020","journal-title":"Cardiovasc Digit Health J"},{"issue":"4","key":"2024011907285350800_ocad090-B54","doi-asserted-by":"crossref","first-page":"352","DOI":"10.1016\/j.ergon.2011.02.004","article-title":"Design and validation of an Individual Health Report (IHR)","volume":"41","author":"Douglas","year":"2011","journal-title":"Int J Ind Ergon"},{"issue":"11","key":"2024011907285350800_ocad090-B55","doi-asserted-by":"crossref","first-page":"1838","DOI":"10.1093\/jamia\/ocac148","article-title":"Comprehension, utility, and preferences of prostate cancer survivors for visual timelines of patient-reported outcomes co-designed for limited graph literacy: meters and emojis over comics","volume":"29","author":"Snyder","year":"2022","journal-title":"J Am Med Inform Assoc"},{"key":"2024011907285350800_ocad090-B56","doi-asserted-by":"publisher","first-page":"17","DOI":"10.1109\/VAHC53729.2020.00009","author":"Snyder","year":"2020"}],"container-title":["Journal of the American Medical Informatics Association"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/jamia\/article-pdf\/31\/2\/479\/56209436\/ocad090.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/jamia\/article-pdf\/31\/2\/479\/56209436\/ocad090.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,1,19]],"date-time":"2024-01-19T07:31:27Z","timestamp":1705649487000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/jamia\/article\/31\/2\/479\/7190595"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,6,5]]},"references-count":56,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2023,6,5]]},"published-print":{"date-parts":[[2024,1,18]]}},"URL":"https:\/\/doi.org\/10.1093\/jamia\/ocad090","relation":{},"ISSN":["1067-5027","1527-974X"],"issn-type":[{"type":"print","value":"1067-5027"},{"type":"electronic","value":"1527-974X"}],"subject":[],"published-other":{"date-parts":[[2024,2,1]]},"published":{"date-parts":[[2023,6,5]]}}}