{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T06:21:28Z","timestamp":1778134888184,"version":"3.51.4"},"reference-count":54,"publisher":"Oxford University Press (OUP)","issue":"3","funder":[{"DOI":"10.13039\/100000016","name":"Department of Health and Human Services","doi-asserted-by":"publisher","award":["75P00122P00130"],"award-info":[{"award-number":["75P00122P00130"]}],"id":[{"id":"10.13039\/100000016","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,3,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>Timely access to data is needed to improve care for substance-exposed birthing persons and their infants, a significant public health problem in the United States. We examined the current state of birthing person and infant\/child (dyad) data-sharing capabilities supported by health information exchange (HIE) standards and HIE network capabilities for data exchange to inform point-of-care needs assessment for the substance-exposed dyad.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Material and Methods<\/jats:title>\n                  <jats:p>A cross-map analysis was performed using a set of dyadic data elements focused on pediatric development and longitudinal supportive care for substance-exposed dyads (70 birthing person and 110 infant\/child elements). Cross-mapping was conducted to identify definitional alignment to standardized data fields within national healthcare data exchange standards, the United States Core Data for Interoperability (USCDI) version 4 (v4) and Fast Healthcare Interoperability Resources (FHIR) release 4 (R4), and applicable structured vocabulary standards or terminology associated with USCDI. Subsequent survey analysis examined representative HIE network sharing capabilities, focusing on USCDI and FHIR usage.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>91.11% of dyadic data elements cross-mapped to at least 1 USCDI v4 standardized data field (87.80% of those structured) and 88.89% to FHIR R4. 75% of the surveyed HIE networks reported supporting USCDI versions 1 or 2 and the capability to use FHIR, though demand is limited.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>HIE of clinical and supportive care data for substance-exposed dyads is supported by current national standards, though limitations exist.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>These findings offer a dyadic-focused framework for electronic health record-centered data exchange to inform bedside care longitudinally across clinical touchpoints and population-level health.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jamia\/ocae315","type":"journal-article","created":{"date-parts":[[2025,1,3]],"date-time":"2025-01-03T12:30:48Z","timestamp":1735907448000},"page":"417-425","source":"Crossref","is-referenced-by-count":3,"title":["The substance-exposed birthing person-infant\/child dyad and health information exchange in the United States"],"prefix":"10.1093","volume":"32","author":[{"given":"Fabienne C","family":"Bourgeois","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]},{"name":"Harvard Medical School , Boston, MA 02115,","place":["United States"]}]},{"given":"Amrita","family":"Sinha","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]},{"name":"Harvard Medical School , Boston, MA 02115,","place":["United States"]}]},{"given":"Gaurav","family":"Tuli","sequence":"additional","affiliation":[{"name":"Innovation and Digital Health Accelerator, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]}]},{"given":"Marvin B","family":"Harper","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]},{"name":"Harvard Medical School , Boston, MA 02115,","place":["United States"]}]},{"given":"Virginia K","family":"Robbins","sequence":"additional","affiliation":[{"name":"Office of the Assistant Secretary for Health, United States Department of Health and Human Services , Washington, DC 20201,","place":["United States"]},{"name":"Center for Consumer Information and Insurance Oversight, Centers for Medicare and Medicaid Services , Bethesda, MD 20814,","place":["United States"]}]},{"given":"Sydney","family":"Jeffrey","sequence":"additional","affiliation":[{"name":"Innovation and Digital Health Accelerator, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]}]},{"given":"John S","family":"Brownstein","sequence":"additional","affiliation":[{"name":"Harvard Medical School , Boston, MA 02115,","place":["United States"]},{"name":"Innovation and Digital Health Accelerator, Boston Children\u2019s Hospital , Boston, MA 02115,","place":["United States"]}]},{"given":"Shahla M","family":"Jilani","sequence":"additional","affiliation":[{"name":"Office of the Assistant Secretary for Health, United States Department of Health and Human Services , Washington, DC 20201,","place":["United 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