{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,27]],"date-time":"2026-03-27T20:57:23Z","timestamp":1774645043297,"version":"3.50.1"},"reference-count":25,"publisher":"Oxford University Press (OUP)","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2016,5,1]]},"abstract":"<jats:p>Electronic health record content is created by clinicians and is driven largely by intermittent and brief encounters with patients. Collecting data directly from patients in the form of patient-generated data (PGD) provides an unprecedented opportunity to capture personal, contextual patient information that can supplement clinical data and enhance patients\u2019 self-care. The US Department of Veterans Affairs (VA) is striving to implement the enterprise-wide capability to collect and use PGD in order to partner with patients in their care, improve the patient healthcare experience, and promote shared decision making. Through knowledge gained from Veterans\u2019 and healthcare teams\u2019 perspectives, VA created a taxonomy and an evolving framework on which to design and develop applications that capture and help physicians utilize PGD. Ten recommendations for effectively collecting and integrating PGD into patient care are discussed, addressing health system culture, data value, architecture, policy, data standards, clinical workflow, data visualization, and analytics and population reach.<\/jats:p>","DOI":"10.1093\/jamia\/ocv199","type":"journal-article","created":{"date-parts":[[2016,2,6]],"date-time":"2016-02-06T03:04:19Z","timestamp":1454727859000},"page":"491-495","source":"Crossref","is-referenced-by-count":61,"title":["Integrating patient voices into health information for self-care and patient-clinician partnerships: Veterans Affairs design recommendations for patient-generated data applications"],"prefix":"10.1093","volume":"23","author":[{"given":"Susan S","family":"Woods","sequence":"first","affiliation":[{"name":"VA Maine Healthcare System, 1 VA Center, Augusta, ME 04330, USA, Connected Health Office, Veterans Health Administration, Washington, DC 20420, USA, Susan.woods@va.gov, 503-504-4205"}]},{"given":"Neil C","family":"Evans","sequence":"additional","affiliation":[{"name":"VA Maine Healthcare System, 1 VA Center, Augusta, ME 04330, USA, Connected Health Office, Veterans Health Administration, Washington, DC 20420, USA, Susan.woods@va.gov, 503-504-4205"}]},{"given":"Kathleen L","family":"Frisbee","sequence":"additional","affiliation":[{"name":"VA Maine Healthcare System, 1 VA Center, Augusta, ME 04330, USA, Connected Health Office, Veterans Health Administration, Washington, DC 20420, USA, Susan.woods@va.gov, 503-504-4205"}]}],"member":"286","published-online":{"date-parts":[[2016,2,5]]},"reference":[{"issue":"1","key":"2020110613010985500_ocv199-B1","first-page":"2","article-title":"Transforming consumer health informatics through a patient work framework: connecting patients to context","volume":"22","author":"Valdez","year":"2015","journal-title":"JAMIA."},{"key":"2020110613010985500_ocv199-B2","first-page":"193","article-title":"Blowing in the wind: 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