{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,6,2]],"date-time":"2025-06-02T07:48:53Z","timestamp":1748850533708},"reference-count":85,"publisher":"Oxford University Press (OUP)","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2017,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Background and significance. It is increasingly recognized that some patients self-manage in the context of social networks rather than alone. Consumer health information technology (IT) designed to support socially embedded self-management must be responsive to patients\u2019 everyday communication practices. There is an opportunity to improve consumer health IT design by explicating how patients currently leverage social media to support health information communication.<\/jats:p><jats:p>Objective. The objective of this study was to determine types of health information communication patterns that typify Facebook users with chronic health conditions to guide consumer health IT design.<\/jats:p><jats:p>Materials and methods. Seven hundred participants with type 2 diabetes were recruited through a commercial survey access panel. Cluster analysis was used to identify distinct approaches to health information communication both on and off Facebook. Analysis of variance (ANOVA) methods were used to identify demographic and behavioral differences among profiles. Secondary analysis of qualitative interviews (n\u2009=\u200925) and analysis of open-ended survey questions were conducted to understand participant rationales for each profile.<\/jats:p><jats:p>Results. Our analysis yielded 7 distinct health information communication profiles. Five of 7 profiles had consistent patterns both on and off Facebook, while the remaining 2 demonstrated distinct practices, with no health information communication on Facebook but some off Facebook. One profile was distinct from all others in both health information communication practices and demographic composition. Rationales for following specific health information communication practices were categorized under 6 themes: altruism, instrumental support, social support, privacy and stigma, convenience, and Facebook knowledge.<\/jats:p><jats:p>Conclusion. Facebook has been widely adopted for health information communication; This study demonstrates that Facebook has been widely adopted for health information communication. It also shows that the ways in which patients communicate health information on and off Facebook are diverse.<\/jats:p>","DOI":"10.1093\/jamia\/ocw155","type":"journal-article","created":{"date-parts":[[2016,10,11]],"date-time":"2016-10-11T14:19:40Z","timestamp":1476195580000},"page":"680-696","source":"Crossref","is-referenced-by-count":19,"title":["From loquacious to reticent: understanding patient health information communication to guide consumer health IT design"],"prefix":"10.1093","volume":"24","author":[{"given":"Rupa S","family":"Valdez","sequence":"first","affiliation":[{"name":"Center for Survey Research, Department of Sociology, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Thomas M","family":"Guterbock","sequence":"additional","affiliation":[{"name":"Center for Survey Research, Department of Sociology, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Kara","family":"Fitzgibbon","sequence":"additional","affiliation":[{"name":"Center for Survey Research, Department of Sociology, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Ishan C","family":"Williams","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Claire A","family":"Wellbeloved-Stone","sequence":"additional","affiliation":[{"name":"Department of Public Health Sciences, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Jaime E","family":"Bears","sequence":"additional","affiliation":[{"name":"Department of Public Health Sciences, University of Virginia, Charlottesville, VA, USA"}]},{"given":"Hannah K","family":"Menefee","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Virginia Polytechnic Institute and State University, Blacksburg, VA, USA"}]}],"member":"286","published-online":{"date-parts":[[2017,1,9]]},"reference":[{"issue":"7","key":"2020110612440082900_ocw155-B1","doi-asserted-by":"crossref","first-page":"509","DOI":"10.1136\/bmjqs-2015-004315","article-title":"Coproduction of healthcare service","volume":"25","author":"Batalden","year":"2016","journal-title":"BMJ Qual Saf."},{"issue":"4","key":"2020110612440082900_ocw155-B2","doi-asserted-by":"crossref","DOI":"10.1016\/j.hlpt.2015.08.004","article-title":"Online Filipino-Americans' perspectives on informatics-enabled health management","volume":"4","author":"Thompson","year":"2015","journal-title":"Health Policy and Technol."},{"issue":"2","key":"2020110612440082900_ocw155-B3","doi-asserted-by":"crossref","first-page":"223","DOI":"10.1377\/hlthaff.2012.1133","article-title":"Patient and family engagement: a framework for understanding the elements and developing interventions and policies","volume":"32","author":"Carman","year":"2013","journal-title":"Health Aff (Millwood)."},{"issue":"1","key":"2020110612440082900_ocw155-B4","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1136\/amiajnl-2014-002826","article-title":"Transforming consumer health informatics through a patient work framework: connecting patients to context","volume":"22","author":"Valdez","year":"2015","journal-title":"J Am Med Inform Assoc."},{"issue":"2","key":"2020110612440082900_ocw155-B5","doi-asserted-by":"crossref","first-page":"207","DOI":"10.1377\/hlthaff.2012.1061","article-title":"What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs","volume":"32","author":"Hibbard","year":"2013","journal-title":"Health Aff (Millwood)."},{"issue":"2","key":"2020110612440082900_ocw155-B6","first-page":"216","article-title":"Patients with lower activation associated with higher costs; delivery systems should know their patients' \u2018scores.' 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