{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T18:37:19Z","timestamp":1774895839005,"version":"3.50.1"},"reference-count":58,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2018,5,14]],"date-time":"2018-05-14T00:00:00Z","timestamp":1526256000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"European Union\u2019s Horizon"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2018,8,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>We describe current practices of ethics-related data governance in large neuro-ICT projects, identify gaps in current practice, and put forward recommendations on how to collaborate ethically in complex regulatory and normative contexts.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We undertake a survey of published principles of data governance of large neuro-ICT projects. This grounds an approach to a normative analysis of current data governance approaches.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Several ethical issues are well covered in the data governance policies of neuro-ICT projects, notably data protection and attribution of work. Projects use a set of similar policies to ensure users behave appropriately. However, many ethical issues are not covered at all. Implementation and enforcement of policies remain vague.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The data governance policies we investigated indicate that the neuro-ICT research community is currently close-knit and that shared assumptions are reflected in infrastructural aspects. This explains why many ethical issues are not explicitly included in data governance policies at present. With neuro-ICT research growing in scale, scope, and international involvement, these shared assumptions should be made explicit and reflected in data governance.<\/jats:p><\/jats:sec>","DOI":"10.1093\/jamia\/ocy040","type":"journal-article","created":{"date-parts":[[2018,4,3]],"date-time":"2018-04-03T03:18:57Z","timestamp":1522725537000},"page":"1099-1107","source":"Crossref","is-referenced-by-count":20,"title":["The role of ethics in data governance of large neuro-ICT projects"],"prefix":"10.1093","volume":"25","author":[{"given":"Bernd Carsten","family":"Stahl","sequence":"first","affiliation":[{"name":"Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK"}]},{"given":"Stephen","family":"Rainey","sequence":"additional","affiliation":[{"name":"Uehiro Centre for Practical Ethics, University of Oxford, Oxford, UK"}]},{"given":"Emma","family":"Harris","sequence":"additional","affiliation":[{"name":"Communications Department, Max Delbr\u00fcck Centre for 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