{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,5]],"date-time":"2026-01-05T21:32:36Z","timestamp":1767648756256},"reference-count":28,"publisher":"Oxford University Press (OUP)","issue":"7","license":[{"start":{"date-parts":[[2019,4,4]],"date-time":"2019-04-04T00:00:00Z","timestamp":1554336000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>The collection and use of a family health history are important for assessing the patient\u2019s risk of disease, but history taking is often impeded by practical barriers in the office. Provision for patient-computer dialogue, linked with the electronic health record, may enable patients to contribute their history while bypassing these barriers. We sought to assess the patient experience using such a tool.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Materials and Methods<\/jats:title>\n                  <jats:p>We linked the family history module of a computer-based medical history to the patient portal of a large academic health system. The interview consisted of 39 primary questions with a predetermined high test-retest reliability. Patients\u2019 results were structured and summarized, and available within their electronic health record. Patients optionally completed a survey about their experience. We inductively analyzed free-text responses collected between 2014 and 2016.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Among 97 781 patient portal users, 9562 patients accessed and 4223 patients completed the family medical history interview. Of these patients, 1451 completed our survey. Main themes that were identified included (1) patient empowerment, (2) anticipated value, (3) validity concerns, (4) privacy concerns, and (5) reflections on patient-computer dialogue. Patients also provided suggestions for the improvement of future family history tools.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>Patients providing their family health information is an example of collaborative electronic work with clinicians and was seen as valuable by those who participated. Concerns related to contextual information and uncertainty need to be addressed.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>Patient-computer dialogue to collect family medical history empowered patients and added perceived value and efficiency to the patient experience of care.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jamia\/ocz008","type":"journal-article","created":{"date-parts":[[2019,1,9]],"date-time":"2019-01-09T04:37:15Z","timestamp":1547008635000},"page":"603-609","source":"Crossref","is-referenced-by-count":22,"title":["Patient experience with family history tool: analysis of patients\u2019 experience sharing their family health history through patient-computer dialogue in a patient portal"],"prefix":"10.1093","volume":"26","author":[{"given":"Adarsha S","family":"Bajracharya","sequence":"first","affiliation":[{"name":"Department of Medicine, University of Massachusetts Medical School, Worchester, Massachusetts, USA"}]},{"given":"Bradley H","family":"Crotty","sequence":"additional","affiliation":[{"name":"Collaborative for Healthcare Delivery Science, Center for Advancing Population Science, Medical College of Wisconsin, Milwaukee, Wisconsin, USA"}]},{"given":"Hollis B","family":"Kowoloff","sequence":"additional","affiliation":[{"name":"Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA"}]},{"given":"Charles","family":"Safran","sequence":"additional","affiliation":[{"name":"Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA"}]},{"given":"Warner V","family":"Slack","sequence":"additional","affiliation":[{"name":"Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA"}]}],"member":"286","published-online":{"date-parts":[[2019,4,4]]},"reference":[{"issue":"12","key":"2020110613062410700_ocz008-B1","doi-asserted-by":"crossref","first-page":"872","DOI":"10.7326\/0000605-200912150-00165","article-title":"National institutes of health state-of-the-science conference statement: family history and improving health","volume":"151","author":"Berg","year":"2009","journal-title":"Ann Intern Med"},{"issue":"159","key":"2020110613062410700_ocz008-B2","first-page":"1","article-title":"Collection and use of cancer family history in primary care","author":"Qureshi","year":"2007","journal-title":"Evid Rep Technol Assess"},{"issue":"3","key":"2020110613062410700_ocz008-B3","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1111\/j.1525-1497.2004.30401.x","article-title":"Reconsidering the family history in primary care","volume":"19","author":"Rich","year":"2004","journal-title":"J Gen Intern Med"},{"key":"2020110613062410700_ocz008-B4","doi-asserted-by":"crossref","first-page":"45.","DOI":"10.1186\/1471-2296-11-45","article-title":"Primary care physicians' use of family history for cancer risk assessment","volume":"11","author":"Flynn","year":"2010","journal-title":"BMC Fam Pract"},{"key":"2020110613062410700_ocz008-B5","doi-asserted-by":"crossref","first-page":"60.","DOI":"10.1186\/s13584-015-0055-2","article-title":"Family history intake: a challenge to personalized approaches in health promotion and disease prevention","volume":"4","author":"Endevelt","year":"2015","journal-title":"Isr J Health Policy Res"},{"issue":"17","key":"2020110613062410700_ocz008-B6","doi-asserted-by":"crossref","first-page":"1711","DOI":"10.1001\/jama.2015.2417","article-title":"Family health history: the case for better tools","volume":"313","author":"Welch","year":"2015","journal-title":"JAMA"},{"issue":"4","key":"2020110613062410700_ocz008-B7","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1056\/NEJM196601272740406","article-title":"A computer-based medical-history system","volume":"274","author":"Slack","year":"1966","journal-title":"N Engl J Med"},{"issue":"1","key":"2020110613062410700_ocz008-B8","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1136\/jamia.2010.005983","article-title":"Test-retest reliability in a computer-based medical history","volume":"18","author":"Slack","year":"2011","journal-title":"J Am Med Inform Assoc"},{"issue":"4","key":"2020110613062410700_ocz008-B9","doi-asserted-by":"crossref","first-page":"545","DOI":"10.1136\/amiajnl-2011-000580","article-title":"Evaluation of computer-based medical histories taken by patients at home","volume":"19","author":"Slack","year":"2012","journal-title":"J Am Med Inform Assoc"},{"issue":"2","key":"2020110613062410700_ocz008-B10","doi-asserted-by":"crossref","first-page":"125","DOI":"10.3109\/13814788.2013.840825","article-title":"Family history tools for primary care are not ready yet to be implemented. 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