{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T14:27:10Z","timestamp":1791296830864,"version":"4.1.0"},"reference-count":30,"publisher":"Oxford University Press (OUP)","issue":"1","license":[{"start":{"date-parts":[[2021,12,9]],"date-time":"2021-12-09T00:00:00Z","timestamp":1639008000000},"content-version":"vor","delay-in-days":26,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100017506","name":"Alzheimer\u2019s Society","doi-asserted-by":"publisher","award":["AS-JF-17-012"],"award-info":[{"award-number":["AS-JF-17-012"]}],"id":[{"id":"10.13039\/501100017506","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,1,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>most people living with dementia (PLWD) will develop incontinence problems with associated harmful consequences. Well-contained incontinence is often the main treatment goal. It would therefore be expected that poorly contained incontinence would have a negative impact.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Aim<\/jats:title>\n                  <jats:p>to investigate differences in how well-contained or poorly contained incontinence impacts on the experience of living with incontinence for PLWD at home and their carers.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Design<\/jats:title>\n                  <jats:p>secondary analysis of a qualitative study.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>semi-structured interviews were undertaken with PLWD, carers and healthcare professionals (continence or dementia nurses). PLWD and carers were recruited via www.joindementiaresearch.nihr.ac.uk and via dementia\/carer groups. Nurses were recruited via their employers. Interviews were recorded and transcribed verbatim. Framework analysis was used.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>forty-five people (twenty-six carers, two PLWD, nine continence nurses and eight dementia nurses) participated. Despite poorly contained incontinence, some PLWD\/carer dyads appeared relatively unaffected by incontinence. Conversely, one or both members of some dyads who achieved good containment found incontinence care highly challenging. Four themes were identified, together forming a preliminary model of incontinence containment and impact, as follows:<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>reliable containment is an important goal for PLWD living at home and their carers, but it is not the only goal. Other factors, such as behaviours that challenge or carer coping strategies, can mean that even well-contained incontinence can have a negative impact. This paper proposes a preliminary model for evaluation.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/ageing\/afab221","type":"journal-article","created":{"date-parts":[[2021,10,21]],"date-time":"2021-10-21T19:10:15Z","timestamp":1634843415000},"source":"Crossref","is-referenced-by-count":6,"title":["A qualitative study and preliminary model of living with dementia and incontinence at home: beyond containment"],"prefix":"10.1093","volume":"51","author":[{"given":"Catherine","family":"Murphy","sequence":"first","affiliation":[{"name":"School of Health Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine","family":"de Laine","sequence":"additional","affiliation":[{"name":"School of Health Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret","family":"Macaulay","sequence":"additional","affiliation":[{"name":"School of Health Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miriam","family":"Avery","sequence":"additional","affiliation":[{"name":"School of Health Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mandy","family":"Fader","sequence":"additional","affiliation":[{"name":"School of Health Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2021,11,13]]},"reference":[{"key":"2022011308512165600_ref1","volume-title":"Dementia UK: Update","author":"Prince"},{"key":"2022011308512165600_ref2","first-page":"e1001505","article-title":"First diagnosis and Management of Incontinence in older people with and without dementia in primary care: a cohort study using the health improvement network primary care database","volume":"10","author":"Grant","year":"2013","journal-title":"PLoS One"},{"key":"2022011308512165600_ref3","doi-asserted-by":"crossref","first-page":"1588","DOI":"10.1002\/nau.23160","article-title":"Urinary incontinence, but not fecal incontinence, is a risk factor for admission to aged residential care of older persons in New Zealand","volume":"36","author":"Schluter","year":"2016","journal-title":"Neurourol Urodyn"},{"key":"2022011308512165600_ref4","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1186\/1471-2318-12-77","article-title":"Conservative interventions for incontinence in people with dementia or cognitive impairment, living at home: a systematic review","volume":"12","author":"Drennan","year":"2012","journal-title":"BMC Geriatr"},{"key":"2022011308512165600_ref5","doi-asserted-by":"crossref","first-page":"356","DOI":"10.1111\/jocn.13582","article-title":"Continence care for people with dementia living at home in Europe: a review of literature with a focus on problems and challenges","volume":"26","author":"Gove","year":"2017","journal-title":"J Clin Nurs"},{"key":"2022011308512165600_ref6","first-page":"afaa262","article-title":"Problems faced by people living at home with dementia and incontinence: causes, consequences and potential solutions","volume":"16","author":"Murphy","year":"2020","journal-title":"Age Ageing"},{"key":"2022011308512165600_ref7","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1017\/S1041610218000753","article-title":"DREAMS-START (dementia RElAted manual for sleep; 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