{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,4,25]],"date-time":"2025-04-25T04:20:43Z","timestamp":1745554843201,"version":"3.40.4"},"reference-count":12,"publisher":"Oxford University Press (OUP)","issue":"5","license":[{"start":{"date-parts":[[2024,12,9]],"date-time":"2024-12-09T00:00:00Z","timestamp":1733702400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,4,24]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>Central centrifugal cicatricial alopecia (CCCA) is a primary lymphocytic scarring alopecia, which predominantly occurs in middle-aged Black women. The benefits and use of shared decision-making (SDM) models in patients with CCCA have yet to be studied. We conducted a cross-sectional survey to investigate the role of SDM in the management of CCCA. SDM processes were evaluated using the nine-item Shared Decision-Making Questionnaire (SDM-Q-9), the Decisional Regret Scale (DRS) and the Control Preferences Scale (CPS). Between June and August 2023, members of the Scarring Alopecia Foundation were emailed and invited to participate; n = 87\/1192 members responded. The CPS responses suggested that most patients (48%, n = 41\/87) preferred to share responsibility with their doctor for treatment decisions. The SDM-Q-9 (scored 0\u201345) and DRS (scored 0\u2013100) demonstrated mean (SD) scores of 27.5 (11.5) and 38.4 (19.4), with higher and lower scores, respectively, demonstrating greater patient satisfaction with SDM. SDM is useful for patients involved in complex decision-making when several medically reasonable treatment alternatives are available. Patients with CCCA may benefit from this model, and investment in resources such as patient decision aids and SDM training for dermatologists will aid integration into clinical practice. Together, the CPS, DRS and SDM-Q-9 results suggested that patients with CCCA preferred to be involved in their treatment management decisions, regardless of their sociodemographic characteristics.<\/jats:p>","DOI":"10.1093\/ced\/llae535","type":"journal-article","created":{"date-parts":[[2024,12,10]],"date-time":"2024-12-10T23:33:17Z","timestamp":1733873597000},"page":"998-1001","source":"Crossref","is-referenced-by-count":0,"title":["Shared decision-making in central centrifugal cicatricial alopecia"],"prefix":"10.1093","volume":"50","author":[{"given":"Elizabeth","family":"Swain","sequence":"first","affiliation":[{"name":"Wake Forest University School of Medicine , Winston-Salem, NC ,","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6499-5359","authenticated-orcid":false,"given":"Renee","family":"Haughton","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Wake Forest University School of Medicine , Winston-Salem, NC ,","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Victoria","family":"Palmer","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Wake Forest University School of Medicine , Winston-Salem, NC ,","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ivie","family":"Obeime","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Wake Forest University School of Medicine , Winston-Salem, NC ,","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"McMichael","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Wake Forest University School of Medicine , Winston-Salem, NC ,","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2024,12,9]]},"reference":[{"key":"2025042411074283800_llae535-B1","doi-asserted-by":"crossref","first-page":"904","DOI":"10.1016\/j.jaad.2018.05.1257","article-title":"Fibroproliferative genes are preferentially expressed in central centrifugal cicatricial alopecia","volume":"79","author":"Aguh","year":"2018","journal-title":"J Am Acad Dermatol"},{"key":"2025042411074283800_llae535-B2","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1007\/s40257-022-00740-w","article-title":"Beyond the hot comb: updates in epidemiology, pathogenesis, and treatment of central centrifugal cicatricial alopecia from 2011 to 2021","volume":"24","author":"George","year":"2023","journal-title":"Am J Clin Dermatol"},{"key":"2025042411074283800_llae535-B3","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1136\/bmjebm-2022-112068","article-title":"Shared decision-\u00admaking as a method of care","volume":"28","author":"Montori","year":"2023","journal-title":"BMJ Evid Based Med"},{"key":"2025042411074283800_llae535-B4","doi-asserted-by":"crossref","first-page":"330","DOI":"10.1001\/jamadermatol.2020.5362","article-title":"Shared decision-making in dermatology: a scoping review","volume":"157","author":"Morrison","year":"2021","journal-title":"JAMA Dermatol"},{"author":"Brunk","key":"2025042411074283800_llae535-B5","article-title":"Consider a four-step approach to shared decision-making in pediatric dermatology"},{"key":"2025042411074283800_llae535-B6","doi-asserted-by":"crossref","first-page":"e26721","DOI":"10.2196\/26721","article-title":"The association between patients\u2019 eHealth literacy and satisfaction with shared decision-making and well-being: multicenter cross-sectional study","volume":"23","author":"Xu","year":"2021","journal-title":"J Med Internet Res"},{"key":"2025042411074283800_llae535-B7","doi-asserted-by":"crossref","first-page":"609","DOI":"10.1001\/jamacardio.2019.1763","article-title":"Heart failure, shared decision-making, and social determinants of health: an upstream perspective","volume":"4","author":"Enard","year":"2019","journal-title":"JAMA Cardiol"},{"author":"Gabros","key":"2025042411074283800_llae535-B8","article-title":"Central centrifugal cicatricial alopecia"},{"key":"2025042411074283800_llae535-B9","doi-asserted-by":"crossref","first-page":"1036","DOI":"10.1001\/jamadermatol.2020.1859","article-title":"Central centrifugal cicatricial alopecia","volume":"156","author":"Aguh","year":"2020","journal-title":"JAMA Dermatol"},{"key":"2025042411074283800_llae535-B10","doi-asserted-by":"crossref","first-page":"1","DOI":"10.2340\/00015555-3614","article-title":"Towards more shared decision making in dermatology: development of evidence-based decision cards for psoriasis and atopic eczema treatments","volume":"100","author":"Vermeulen","year":"2020","journal-title":"Acta Derm Venereol"},{"key":"2025042411074283800_llae535-B11","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.socscimed.2010.03.014","article-title":"Race and shared decision-making: perspectives of African-Americans with diabetes","volume":"71","author":"Peek","year":"2010","journal-title":"Soc Sci Med"},{"key":"2025042411074283800_llae535-B12","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1177\/0272989X10378699","article-title":"Race, ethnicity, and shared decision making for hyperlipidemia and hypertension treatment: the DECISIONS survey","volume":"30","author":"Ratanawongsa","year":"2010","journal-title":"Med Decis Making"}],"container-title":["Clinical and Experimental 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