{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T12:30:21Z","timestamp":1777725021530,"version":"3.51.4"},"reference-count":53,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T00:00:00Z","timestamp":1753833600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"French Biomedicine Agency"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,9,1]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>Patients receiving haemodialysis (HD) experience symptoms that impact quality of life. This study assessed the concordance of symptoms and symptom severity of HD patients and their perception by nurses and nephrologists.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>A cross-sectional, observational study using the 30-item Dialysis Symptom Index (DSI) questionnaire was conducted in six dialysis centres in France from 1 March 2022 to 30 June 2023. Patients were interviewed during dialysis sessions. Nurses and nephrologists were asked to complete the DSI questionnaire thereafter, to report patient symptoms they considered present. Responses were compared using sensitivity and the Cohen's \u03ba estimate for an interrater agreement involving presence (yes\/no) and intensity (5-point Likert scale).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>A total of 256 patients, 123 nurses and 27 nephrologists participated. Patients reported four symptoms as most severe (score &amp;gt;3): restless legs or difficulty keeping still, feeling tired or lack of energy, bone or joint pain and trouble falling asleep. Comparisons showed a sensitivity \u226550% for 1\/30 symptoms by nurses and 3\/30 by nephrologists. Concordance for the presence of symptoms between nurses\u2013patients and nephrologists\u2013patients was low (\u03ba &amp;gt;0.21\u2013&amp;lt;0.40). Patient\u2013nurse agreement was very low for 14 symptoms (46.6%), low for 15 (50.0%) and moderate for 1 (3.4%). Patient\u2013nephrologist agreement was very low for 21 symptoms (70.0%) and low for 9 (30.0%). Nurse\u2013nephrologist disagreement occurred for three symptoms (10.0%), very low agreement for 25 symptoms (83.3%) and low for 2 symptoms (6.7%).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>Nurses and nephrologists underestimate the presence and severity of symptoms perceived by patients. Future systematic assessment of symptoms by patient-reported outcome measures should be considered.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/ckj\/sfaf239","type":"journal-article","created":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T14:54:37Z","timestamp":1753887277000},"source":"Crossref","is-referenced-by-count":4,"title":["Concordance of symptoms perceived by patients receiving haemodialysis and those reported by nurses and nephrologists: a cross-sectional, multicentre, observational study using the REIN registry"],"prefix":"10.1093","volume":"18","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3605-0021","authenticated-orcid":false,"given":"Abdallah","family":"Guerraoui","sequence":"first","affiliation":[{"name":"Calydial, Centre Hospitalier de Vienne Lucien Hussel , Vienne ,","place":["France"]},{"name":"Universit\u00e9 Claude Bernard Lyon 1 Research on Healthcare Performance RESHAPE, INSERM U1290, , Villeurbanne ,","place":["France"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Haesebaert","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Claude Bernard Lyon 1 Research on Healthcare Performance RESHAPE, INSERM U1290, , Villeurbanne ,","place":["France"]},{"name":"P\u00f4le Sant\u00e9 Publique , Clinical Research and Epidemiology Department, Hospices Civils de Lyon, Lyon ,","place":["France"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fabien","family":"Subtil","sequence":"additional","affiliation":[{"name":"Service of Biostatistics, Hospices Civils de Lyon , Lyon ,","place":["France"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William","family":"Hanf","sequence":"additional","affiliation":[{"name":"Service of Nephrology, CH Alpes L\u00e9man , Contamine sur Arve 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