{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T16:25:16Z","timestamp":1774542316747,"version":"3.50.1"},"reference-count":18,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2023,1,27]],"date-time":"2023-01-27T00:00:00Z","timestamp":1674777600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100001316","name":"Abbott","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100001316","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100005247","name":"University of British Columbia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005247","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,12,14]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Aims<\/jats:title>\n                  <jats:p>Hypertrophic cardiomyopathy (HCM) is the most common inherited heart disease. Insertable cardiac monitors (ICMs) are increasingly used in this population to provide closer monitoring, with the potential for notification systems. However, little is known regarding the psychological impact this information may have on patients. The Abbott Confirm Rx\u2122 ICM has the capability of connecting to the patient\u2019s smartphone to enable active participation in their care, as well as two-way communication between the patient and their care providers. This study aimed to explore individuals\u2019 experiences of having a smartphone-enabled ICM to monitor for arrhythmias in HCM.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods and results<\/jats:title>\n                  <jats:p>Semi-structured interviews were conducted with 10 participants. Utilizing a grounded theory approach, the interview guide was modified based on emerging themes throughout the study. Reflexive thematic analysis was applied to categorize interview data into codes and overacting themes, with each interview independently coded by two study members. Analysis revealed three key themes: (i) psychological impact, (ii) educational needs, and (iii) technology expectations. Participants reported that receiving feedback from ICM transmissions resulted in improved symptom clarity, providing reassurance, and aiding implantable cardioverter defibrillator decision-making. Some participants reported uncertainty regarding when to send manual transmissions. Lastly, participants reported the app interface did not meet expectations with regard to the amount of data available for patients.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>Overall, utilizing a smartphone app to facilitate two-way communication of ICM transmissions was well accepted. Future directions include addressing gaps in educational needs and improvements in the patient interface with increased access to data.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/eurjcn\/zvad017","type":"journal-article","created":{"date-parts":[[2023,1,27]],"date-time":"2023-01-27T15:20:43Z","timestamp":1674832843000},"page":"780-785","source":"Crossref","is-referenced-by-count":2,"title":["Patient experiences of implantable cardiac monitoring in hypertrophic cardiomyopathy: an exploratory study"],"prefix":"10.1093","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9469-7109","authenticated-orcid":false,"given":"Brianna","family":"Davies","sequence":"first","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9376-790X","authenticated-orcid":false,"given":"Jacqueline","family":"Forman","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4745-2154","authenticated-orcid":false,"given":"Cheryl","family":"McIlroy","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heather","family":"Joe","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0008-6011","authenticated-orcid":false,"given":"Sina","family":"Safabakhsh","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3274-5918","authenticated-orcid":false,"given":"Janet","family":"Liew","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8319-5891","authenticated-orcid":false,"given":"Jeremy","family":"Parker","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1012-9081","authenticated-orcid":false,"given":"Darson","family":"Du","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8493-5123","authenticated-orcid":false,"given":"Jason G","family":"Andrade","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1233-3350","authenticated-orcid":false,"given":"Matthew T","family":"Bennett","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1286-2014","authenticated-orcid":false,"given":"Nathaniel M","family":"Hawkins","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0868-0982","authenticated-orcid":false,"given":"Santabhanu","family":"Chakrabarti","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1259-2192","authenticated-orcid":false,"given":"John","family":"Yeung","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8434-7076","authenticated-orcid":false,"given":"Marc W","family":"Deyell","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7982-1586","authenticated-orcid":false,"given":"Andrew D","family":"Krahn","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6639-3076","authenticated-orcid":false,"given":"Robert","family":"Moss","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0893-0993","authenticated-orcid":false,"given":"Kevin","family":"Ong","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7790-541X","authenticated-orcid":false,"given":"Zachary","family":"Laksman","sequence":"additional","affiliation":[{"name":"Center for Cardiovascular Innovation, Division of Cardiology, Department of Medicine, University of British Columbia , Room 220, 1033 Davie St. Vancouver BC, V6E 1M7 , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2023,1,27]]},"reference":[{"key":"2023121405274969500_zvad017-B1","doi-asserted-by":"crossref","first-page":"22","DOI":"10.1038\/s41569-020-0428-2","article-title":"Epidemiology of the inherited cardiomyopathies","volume":"18","author":"McKenna","year":"2021","journal-title":"Nat Rev Cardiol"},{"key":"2023121405274969500_zvad017-B2","doi-asserted-by":"crossref","first-page":"655","DOI":"10.1056\/NEJMra1710575","article-title":"Clinical course and management of hypertrophic cardiomyopathy","volume":"379","author":"Maron","year":"2018","journal-title":"N Engl J Med"},{"key":"2023121405274969500_zvad017-B3","doi-asserted-by":"crossref","first-page":"3022","DOI":"10.1016\/j.jacc.2020.08.044","article-title":"2020 AHA\/ACC guideline for the diagnosis and treatment of patients with hypertrophic cardiomyopathy: executive summary: a report of the American College of Cardiology\/American Heart Association Joint Committee on Clinical Practice Guidelines","volume":"76","author":"Ommen","year":"2020","journal-title":"J Am Coll Cardiol"},{"key":"2023121405274969500_zvad017-B4","doi-asserted-by":"crossref","first-page":"2733","DOI":"10.1093\/eurheartj\/ehu284","article-title":"2014 ESC guidelines on diagnosis and management of hypertrophic cardiomyopathy: the task force for the diagnosis and management of hypertrophic cardiomyopathy of the European Society of Cardiology (ESC)","volume":"35","author":"Authors\/Task Force Members","year":"2014","journal-title":"Eur Heart J"},{"key":"2023121405274969500_zvad017-B5","doi-asserted-by":"crossref","DOI":"10.1161\/CIRCEP.116.004604","article-title":"Prognostic implications of nonsustained ventricular tachycardia in high-risk patients with hypertrophic cardiomyopathy","volume":"10","author":"Wang","year":"2017","journal-title":"Circ Arrhythm Electrophysiol"},{"key":"2023121405274969500_zvad017-B6","doi-asserted-by":"crossref","first-page":"406","DOI":"10.1016\/j.cjco.2022.01.001","article-title":"Arrhythmia monitoring for risk stratification in hypertrophic cardiomyopathy","volume":"4","author":"Du","year":"2022","journal-title":"CJC Open"},{"key":"2023121405274969500_zvad017-B7","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1136\/hrt.78.2.182","article-title":"Health related quality of life and psychological wellbeing in patients with hypertrophic cardiomyopathy","volume":"78","author":"Cox","year":"1997","journal-title":"Heart"},{"key":"2023121405274969500_zvad017-B8","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1186\/1477-7525-9-100","article-title":"General anxiety, depression, and physical health in relation to symptoms of heart-focused anxiety-a cross sectional study among patients living with the risk of serious arrhythmias and sudden cardiac death","volume":"9","author":"Hamang","year":"2011","journal-title":"Health Qual Life Outcomes"},{"key":"2023121405274969500_zvad017-B9","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1186\/s41687-020-00269-8","article-title":"Patient experiences with hypertrophic cardiomyopathy: a conceptual model of symptoms and impacts on quality of life","volume":"4","author":"Zaiser","year":"2020","journal-title":"J Patient Rep Outcomes"},{"key":"2023121405274969500_zvad017-B10","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1007\/s10897-011-9393-6","article-title":"Predictors of heart-focused anxiety in patients undergoing genetic investigation and counseling of long QT syndrome or hypertrophic cardiomyopathy: a one year follow-up","volume":"21","author":"Hamang","year":"2012","journal-title":"J Genet Couns"},{"key":"2023121405274969500_zvad017-B11","doi-asserted-by":"crossref","first-page":"496","DOI":"10.1016\/j.hlc.2020.08.009","article-title":"Illness perceptions in hypertrophic cardiomyopathy (HCM) patients and their association with heart-focussed anxiety","volume":"30","author":"Zuchowski","year":"2021","journal-title":"Heart Lung Circ"},{"key":"2023121405274969500_zvad017-B12","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1016\/j.cjco.2021.10.010","article-title":"Bluetooth-enabled implantable cardiac monitors and two-way smartphone communication for patients with hypertrophic cardiomyopathy","volume":"4","author":"Safabakhsh","year":"2021","journal-title":"CJC Open"},{"key":"2023121405274969500_zvad017-B13","doi-asserted-by":"crossref","first-page":"201","DOI":"10.4997\/jrcpe.2015.305","article-title":"Qualitative research in healthcare: an introduction to grounded theory using thematic analysis","volume":"45","author":"Chapman","year":"2015","journal-title":"J R Coll Physicians Edinb"},{"key":"2023121405274969500_zvad017-B14","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1111\/j.1369-7625.2011.00703.x","article-title":"Patients\u2019 decision making to accept or decline an implantable cardioverter defibrillator for primary prevention of sudden cardiac death","volume":"16","author":"Carroll","year":"2013","journal-title":"Health Expect"},{"key":"2023121405274969500_zvad017-B15","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1111\/cge.12520","article-title":"Patient reported outcomes and patient empowerment in clinical genetics services","volume":"88","author":"McAllister","year":"2015","journal-title":"Clin Genet"},{"key":"2023121405274969500_zvad017-B16","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1002\/jgc4.1050","article-title":"The impact of cardiovascular genetic counseling on patient empowerment","volume":"28","author":"Ison","year":"2019","journal-title":"J Genet Couns"},{"key":"2023121405274969500_zvad017-B17","doi-asserted-by":"crossref","DOI":"10.2196\/27720","article-title":"Clinic time required for remote and in-person management of patients with cardiac devices: time and motion workflow evaluation","volume":"5","author":"Seiler","year":"2021","journal-title":"JMIR Cardio"},{"key":"2023121405274969500_zvad017-B18","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1177\/0193945920942254","article-title":"Living with an insertable cardiac monitor: influences on self-care management","volume":"43","author":"Ventura","year":"2021","journal-title":"West J Nurs Res"}],"container-title":["European Journal of Cardiovascular Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/eurjcn\/advance-article-pdf\/doi\/10.1093\/eurjcn\/zvad017\/49174244\/zvad017.pdf","content-type":"application\/pdf","content-version":"am","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/eurjcn\/article-pdf\/22\/8\/780\/54257256\/zvad017.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/eurjcn\/article-pdf\/22\/8\/780\/54257256\/zvad017.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,12,14]],"date-time":"2023-12-14T05:28:22Z","timestamp":1702531702000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/eurjcn\/article\/22\/8\/780\/7008306"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,1,27]]},"references-count":18,"journal-issue":{"issue":"8","published-online":{"date-parts":[[2023,1,27]]},"published-print":{"date-parts":[[2023,12,14]]}},"URL":"https:\/\/doi.org\/10.1093\/eurjcn\/zvad017","relation":{},"ISSN":["1474-5151","1873-1953"],"issn-type":[{"value":"1474-5151","type":"print"},{"value":"1873-1953","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2023,11]]},"published":{"date-parts":[[2023,1,27]]}}}