{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,27]],"date-time":"2026-10-27T04:09:43Z","timestamp":1793074183401,"version":"4.5.0"},"reference-count":49,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2021,9,20]],"date-time":"2021-09-20T00:00:00Z","timestamp":1632096000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["NIAR03AG054142"],"award-info":[{"award-number":["NIAR03AG054142"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,6,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objectives<\/jats:title>\n                  <jats:p>Current theoretical constructs on the utilization of formal support for Latino caregivers focus on familism and exclude the cultural values represented in the service system. The purpose of this paper is to highlight the experience of care for Latino family caregivers to persons with Alzheimer\u2019s disease and related dementias (ADRD). We also examine the cultural congruence between provider perspectives with the expectations of Latino ADRD caregivers.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Method<\/jats:title>\n                  <jats:p>We conducted extended interviews with 24 Latino ADRD caregivers and 10 service providers. Interview transcripts were coded and analyzed using a grounded theory approach.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Our study provides a deeper understanding of Latino caregiving experiences and highlights some of the structural and systematic issues in current systems of caregiver support. While Latino families have very specific notions of care, by upholding notions of familism, there is a tendency to not look deeper into how they may be better supported in caregiving and fall into the \u201cculture trap.\u201d The assumption that family should be the natural support network for older adults may lead to health and social systems of care to ignore the specific needs of the Latino population.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>Services are being provided under a model that was established four decades ago and may not reflect current realities. The concept of \u201can ethics of care\u201d allows us to move beyond familism and explain that underutilization of services may also be due in part to the cultural incongruence between what service providers offer and the perceived needs of Latino caregivers.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/geronb\/gbab170","type":"journal-article","created":{"date-parts":[[2021,9,18]],"date-time":"2021-09-18T11:08:32Z","timestamp":1631963312000},"page":"1083-1093","source":"Crossref","is-referenced-by-count":53,"title":["The Experience of Alzheimer\u2019s Disease Family Caregivers in a Latino Community: Expectations and Incongruences in Support Services"],"prefix":"10.1093","volume":"77","author":[{"given":"Iveris L","family":"Martinez","sequence":"first","affiliation":[{"name":"Center for Successful Aging, California State University Long Beach , Long Beach, California , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elaine","family":"Acosta Gonzalez","sequence":"additional","affiliation":[{"name":"Cuban Research Institute, Florida International University , Miami, Miami, Florida , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caroline","family":"Quintero","sequence":"additional","affiliation":[{"name":"California State University , Long Beach, California , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marsha Jenakovich","family":"Vania","sequence":"additional","affiliation":[{"name":"Independent Scholar , Titusville, Florida , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2021,9,20]]},"reference":[{"key":"2022060113361702400_CIT0001","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1002\/nur.1036","article-title":"Interventions to reduce the burden of caregiving for an adult with dementia: A meta-analysis","volume":"24","author":"Acton","year":"2001","journal-title":"Research in Nursing & Health"},{"key":"2022060113361702400_CIT0002","volume-title":"2017\u20132019 Area Plan Program Module","author":"Alliance for Aging","year":"2016"},{"key":"2022060113361702400_CIT0004","volume-title":"Healthy Brain Initiative, state and local public health partnerships to address dementia: The 2018\u20132023 Road Map","author":"Alzheimer\u2019s Association and Centers for Disease Control and Prevention","year":"2018"},{"key":"2022060113361702400_CIT0005","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1080\/713650010","article-title":"Racial and ethnic factors in dementia care-giving research in the US","volume":"5","author":"Aranda","year":"2001","journal-title":"Aging & Mental Health"},{"issue":"6","key":"2022060113361702400_CIT0006","doi-asserted-by":"crossref","first-page":"661","DOI":"10.1108\/JMP-11-2012-0357","article-title":"Latino Alzheimer\u2019s caregivers: What is important to them?","volume":"29","author":"Ar\u00e9valo-Flechas","year":"2014","journal-title":"Journal of Managerial Psychology"},{"key":"2022060113361702400_CIT0007","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1300\/J018v24n03_08","article-title":"Latino caregivers of relatives with Alzheimer\u2019s disease","volume":"24","author":"Ayalon","year":"2002","journal-title":"Clinical Gerontologist"},{"issue":"1","key":"2022060113361702400_CIT0008","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/0895-4356(92)90189-T","article-title":"The psychological and physical health of family members caring for an elderly person with dementia","volume":"45","author":"Baumgarten","year":"1992","journal-title":"Journal of Clinical Epidemiology"},{"key":"2022060113361702400_CIT0009","volume-title":"Research methods in anthropology: Qualitative and quantitative approaches","author":"Bernard","year":"2002","edition":"3"},{"issue":"3","key":"2022060113361702400_CIT0010","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1177\/0898264310387132","article-title":"Unmet needs for home and community-based services among frail older Americans and their caregivers","volume":"23","author":"Casado","year":"2011","journal-title":"Journal of Aging and Health"},{"key":"2022060113361702400_CIT0011","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1007\/978-1-0716-0132-7_2","article-title":"Contextual, cultural, and sociopolitical issues in caring for Latinxs with dementia: When the mind forgets and the heart remembers","volume-title":"Caring for Latinxs with dementia in a globalized world","author":"Chavez-Due\u00f1as","year":"2020"},{"issue":"2","key":"2022060113361702400_CIT0012","doi-asserted-by":"crossref","first-page":"92","DOI":"10.1093\/hsw\/18.2.92","article-title":"Hispanic culture and family care of Alzheimer\u2019s patients","volume":"18","author":"Cox","year":"1993","journal-title":"Health & Social Work"},{"issue":"2","key":"2022060113361702400_CIT0013","doi-asserted-by":"crossref","first-page":"237","DOI":"10.1093\/geront\/42.2.237","article-title":"Issues of race, ethnicity, and culture in caregiving research: A 20-year review (1980\u20132000)","volume":"42","author":"Dilworth-Anderson","year":"2002","journal-title":"The Gerontologist"},{"issue":"12","key":"2022060113361702400_CIT0014","doi-asserted-by":"crossref","first-page":"1055","DOI":"10.1080\/07399330903141252","article-title":"Beyond familism: A case study of the ethics of care of a Latina caregiver of an elderly parent with dementia","volume":"30","author":"Flores","year":"2009","journal-title":"Health Care for Women International"},{"issue":"1","key":"2022060113361702400_CIT0017","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1177\/0164027512469213","article-title":"Familismo and its impact on the family caregiving of Latinos with Alzheimer\u2019s disease: A complex narrative","volume":"36","author":"Gelman","year":"2014","journal-title":"Research on Aging"},{"key":"2022060113361702400_CIT0051","volume-title":"The discovery of grounded theory: Strategies for qualitative research","author":"Glaser","year":"1967"},{"issue":"8","key":"2022060113361702400_CIT0018","doi-asserted-by":"crossref","first-page":"861","DOI":"10.1016\/0895-4356(92)90069-Y","article-title":"Health and social consequences for relatives of demented and non-demented elderly. A population-based study","volume":"45","author":"Grafstr\u00f6m","year":"1992","journal-title":"Journal of Clinical Epidemiology"},{"key":"2022060113361702400_CIT0052","first-page":"390","article-title":"Older Mexican Americans: Pathways to mental health service use, social work in mental health","author":"Gonzalez","year":"2015"},{"issue":"6","key":"2022060113361702400_CIT0019","doi-asserted-by":"crossref","first-page":"481","DOI":"10.1002\/(SICI)1099-1166(199906)14:6<481::AID-GPS959>3.0.CO;2-5","article-title":"Rates of dementia in three ethnoracial groups","volume":"14","author":"Gurland","year":"1999","journal-title":"International Journal of Geriatric Psychiatry"},{"key":"2022060113361702400_CIT0020","first-page":"425","article-title":"Dementia in cultural context: Development and decline of a caregiver support group in a Latin population","author":"Henderson","year":"1997","journal-title":"The cultural context of aging: Worldwide perspectives"},{"issue":"4","key":"2022060113361702400_CIT0021","doi-asserted-by":"crossref","first-page":"450","DOI":"10.1046\/j.1532-5415.2001.49090.x","article-title":"Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes","volume":"49","author":"Hepburn","year":"2001","journal-title":"Journal of the American Geriatrics Society"},{"issue":"1","key":"2022060113361702400_CIT0022","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1080\/01621424.2012.755143","article-title":"Variation in Older Americans Act caregiver service use, unmet hours of care, and independence among Hispanics, African Americans, and Whites","volume":"32","author":"Herrera","year":"2013","journal-title":"Home Health Care Services Quarterly"},{"key":"2022060113361702400_CIT0023","volume-title":"Culture: A critical review of concepts and definitions. Papers","author":"Kroeber","year":"1952"},{"key":"2022060113361702400_CIT0053","volume-title":"Analysis and interpretation of ethnographic data: A mixed methods approach (Vol. 5)","author":"LeCompte","year":"2013"},{"key":"2022060113361702400_CIT0025","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1016\/j.ijnurstu.2019.02.007","article-title":"Transitioning into the caregiver role following a diagnosis of Alzheimer\u2019s disease or related dementia: A scoping review","volume":"96","author":"Lee","year":"2019","journal-title":"International Journal of Nursing Studies"},{"key":"2022060113361702400_CIT0026","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1007\/978-3-030-24043-1_7","article-title":"Aging and health in the Latinx population in the USA: Changing demographics, social vulnerabilities, and the aim of quality of life","volume-title":"New and emerging issues in Latinx health","author":"Martinez","year":"2020"},{"issue":"5","key":"2022060113361702400_CIT0027","doi-asserted-by":"crossref","first-page":"539","DOI":"10.1037\/0278-6133.26.5.539","article-title":"Depression and distress predict time to cardiovascular disease in dementia caregivers","volume":"26","author":"Mausbach","year":"2007","journal-title":"Health Psychology"},{"issue":"5","key":"2022060113361702400_CIT0028","doi-asserted-by":"crossref","first-page":"926","DOI":"10.1093\/geronb\/gbv083","article-title":"Marianismo and caregiving role beliefs among US-born and immigrant Mexican women","volume":"71","author":"Mendez-Luck","year":"2016","journal-title":"Journals of Gerontology, Series B: Psychological Sciences and Social Sciences"},{"issue":"8","key":"2022060113361702400_CIT0029","doi-asserted-by":"crossref","first-page":"1719","DOI":"10.1093\/geronb\/gbz102","article-title":"Burden and bad days among Mexican-origin women caregivers","volume":"75","author":"Mendez-Luck","year":"2020","journal-title":"The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences"},{"issue":"6","key":"2022060113361702400_CIT0030","doi-asserted-by":"crossref","first-page":"e99","DOI":"10.1093\/geront\/gnw087","article-title":"Orientation to the caregiver role among Latinas of Mexican origin","volume":"56","author":"Mendez-Luck","year":"2016","journal-title":"The Gerontologist"},{"key":"2022060113361702400_CIT0050","volume-title":"Qualitative data analysis: An expanded sourcebook","author":"Miles","year":"1994","edition":"2"},{"issue":"10","key":"2022060113361702400_CIT0031","doi-asserted-by":"crossref","first-page":"917","DOI":"10.1097\/JGP.0b013e3181d5745d","article-title":"Caregiver burden in Alzheimer disease: Cross-sectional and longitudinal patient correlates","volume":"18","author":"Mohamed","year":"2010","journal-title":"The American Journal of Geriatric Psychiatry"},{"issue":"5","key":"2022060113361702400_CIT0032","doi-asserted-by":"crossref","first-page":"640","DOI":"10.1093\/geronb\/gbr088","article-title":"Effects of the TCARE\u00ae intervention on caregiver burden and depressive symptoms: Preliminary findings from a randomized controlled study","volume":"66","author":"Montgomery","year":"2011","journal-title":"The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences"},{"key":"2022060113361702400_CIT0033","first-page":"241","article-title":"Barriers to the use of formal services among Alzheimer\u2019s caregivers","author":"Mullan","year":"1993","journal-title":"Caregiving systems: Formal and informal helpers"},{"key":"2022060113361702400_CIT0034","volume-title":"Status of Hispanic older adults: Insights from the field\u2014Reframing aging","author":"National Hispanic Council on Aging (NHCOA)","year":"2018"},{"key":"2022060113361702400_CIT0035","author":"National Institute on Aging","year":"2016"},{"issue":"1","key":"2022060113361702400_CIT0036","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1093\/geront\/23.1.26","article-title":"Family ties of the aged in cross-cultural perspective","volume":"23","author":"Nydegger","year":"1983","journal-title":"The Gerontologist"},{"issue":"3","key":"2022060113361702400_CIT0037","doi-asserted-by":"crossref","first-page":"299","DOI":"10.1093\/geront\/39.3.299","article-title":"Reducing caregiver burden: A randomized psychoeducational intervention for caregivers of persons with dementia","volume":"39","author":"Ostwald","year":"1999","journal-title":"The Gerontologist"},{"issue":"3","key":"2022060113361702400_CIT0038","doi-asserted-by":"crossref","first-page":"281","DOI":"10.5664\/jcsm.27827","article-title":"Caregiver reports of sleep problems in non-Hispanic white, Hispanic, and African American patients with Alzheimer dementia","volume":"6","author":"Ownby","year":"2010","journal-title":"Journal of Clinical Sleep Medicine"},{"issue":"1","key":"2022060113361702400_CIT0039","doi-asserted-by":"crossref","first-page":"90","DOI":"10.1093\/geront\/45.1.90","article-title":"Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis","volume":"45","author":"Pinquart","year":"2005","journal-title":"The Gerontologist"},{"issue":"6","key":"2022060113361702400_CIT0041","first-page":"1088","article-title":"Racial\/ethnic differences in caregiving frequency: Does immigrant status matter?","volume":"73","author":"Rote","year":"2018","journal-title":"The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences"},{"issue":"2","key":"2022060113361702400_CIT0042","first-page":"50","article-title":"Latino elders reframing familismo: Implications for health and caregiving support","volume":"19","author":"Ruiz","year":"2012","journal-title":"Journal of Cultural Diversity"},{"issue":"4","key":"2022060113361702400_CIT0043","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1177\/07399863870094003","article-title":"Hispanic familism and acculturation: What changes and what doesn\u2019t?","volume":"9","author":"Sabogal","year":"1987","journal-title":"Hispanic Journal of Behavioral Sciences"},{"key":"2022060113361702400_CIT0044","volume-title":"The coding manual for qualitative researchers.","author":"Salda\u00f1a","year":"2015"},{"issue":"1","key":"2022060113361702400_CIT0054","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1093\/geronb\/gbq061","article-title":"The effects of familism and cultural justification on the mental and physical health of family caregivers","volume":"66","author":"Sayegh","year":"2011","journal-title":"Journals of Gerontology Series B: Psychological Sciences and Social Sciences"},{"issue":"3\u20134","key":"2022060113361702400_CIT0045","doi-asserted-by":"crossref","first-page":"256","DOI":"10.1080\/15524256.2010.529023","article-title":"A three-dimensional model of cultural congruence: Framework for intervention","volume":"6","author":"Schim","year":"2010","journal-title":"Journal of Social Work in End-of-Life & Palliative Care"},{"issue":"23","key":"2022060113361702400_CIT0046","doi-asserted-by":"crossref","first-page":"2215","DOI":"10.1001\/jama.282.23.2215","article-title":"Caregiving as a risk factor for mortality: The Caregiver Health Effects Study","volume":"282","author":"Schulz","year":"1999","journal-title":"Journal of the American Medical Association"},{"issue":"3","key":"2022060113361702400_CIT0047","doi-asserted-by":"crossref","first-page":"215","DOI":"10.1016\/S0022-3999(98)00084-1","article-title":"Accelerated risk of hypertensive blood pressure recordings among Alzheimer caregivers","volume":"46","author":"Shaw","year":"1999","journal-title":"Journal of Psychosomatic Research"},{"key":"2022060113361702400_CIT0048","volume-title":"Basics of qualitative research: Techniques and procedures for developing grounded theory","author":"Strauss","year":"2014"},{"key":"2022060113361702400_CIT0049","volume-title":"Latinos and Alzheimer\u2019s disease: New numbers behind the crisis","author":"Wu","year":"2016"}],"container-title":["The Journals of Gerontology: Series B"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/psychsocgerontology\/advance-article-pdf\/doi\/10.1093\/geronb\/gbab170\/42149783\/gbab170.pdf","content-type":"application\/pdf","content-version":"am","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/psychsocgerontology\/article-pdf\/77\/6\/1083\/43917334\/gbab170.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/psychsocgerontology\/article-pdf\/77\/6\/1083\/43917334\/gbab170.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,6,1]],"date-time":"2022-06-01T13:37:05Z","timestamp":1654090625000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/psychsocgerontology\/article\/77\/6\/1083\/6372883"}},"subtitle":[],"editor":[{"given":"Jessica","family":"Kelley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2021,9,20]]},"references-count":49,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2021,9,20]]},"published-print":{"date-parts":[[2022,6,1]]}},"URL":"https:\/\/doi.org\/10.1093\/geronb\/gbab170","relation":{},"ISSN":["1079-5014","1758-5368"],"issn-type":[{"value":"1079-5014","type":"print"},{"value":"1758-5368","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2022,6,1]]},"published":{"date-parts":[[2021,9,20]]}}}