{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T23:42:35Z","timestamp":1784677355943,"version":"3.55.0"},"reference-count":34,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2025,6,10]],"date-time":"2025-06-10T00:00:00Z","timestamp":1749513600000},"content-version":"vor","delay-in-days":160,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["R21AG069767"],"award-info":[{"award-number":["R21AG069767"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Definition and Caregiver Appraisal of Paradoxical Lucidity in Dementia"},{"name":"New Faculty Startup Fund"},{"DOI":"10.13039\/501100002551","name":"Seoul National University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100002551","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["1K01AG081566-01"],"award-info":[{"award-number":["1K01AG081566-01"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,6,10]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background and Objectives<\/jats:title>\n                  <jats:p>Lucid episodes (LEs) in people living with late-stage dementia have been reported anecdotally. However, how this seemingly unexpected phenomenon is experienced by family caregivers is less known. Focusing on the two most common groups of informal caregivers, spouses and adult children, this study examined variability in family caregivers\u2019 experiences with LEs\u2014whether they exhibit differential appraisals of and responses to LEs.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Research Design and Methods<\/jats:title>\n                  <jats:p>Using a sample of former\/bereaved and current family caregivers from UsAgainstAlzheimer\u2019s A-LIST, we conducted an online survey of spouse and child caregivers (N\u2005=\u2005387). We conducted semistructured interviews among a subset of caregivers who witnessed a LE (n\u2005=\u200522).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Overall, child caregivers were more likely to witness a LE than spouse caregivers. Among former\/bereaved caregivers who witnessed a LE (n\u2005=\u2005139), spouses were likely to report nonverbal communication during LEs, appraise LEs more negatively, and make changes in care decisions, such as end-of-life planning and financial decisions, compared to adult children. Among current caregivers who witnessed a LE (n\u2005=\u200580), spouses often reported no special circumstances preceding LEs, whereas children linked LEs to friend\/family visits. No significant differences were found in positive and negative appraisals of LEs between current spouse and child caregivers. Content analysis of qualitative interviews revealed the contexts underlying these differences.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion and Implications<\/jats:title>\n                  <jats:p>Differences between spouses and adult children in their experiences with LEs are related to their different caregiving contexts, including relationship history, living arrangements, expectations, motivations, and caregiving resources.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/geroni\/igaf036","type":"journal-article","created":{"date-parts":[[2025,6,10]],"date-time":"2025-06-10T06:56:53Z","timestamp":1749538613000},"source":"Crossref","is-referenced-by-count":3,"title":["Spouse and Child Caregivers\u2019 Experiences of Lucid Episodes in Dementia: A Mixed Methods Approach"],"prefix":"10.1093","volume":"9","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0135-4367","authenticated-orcid":false,"given":"Kyungmin","family":"Kim","sequence":"first","affiliation":[{"name":"Department of Child Development and Family Studies, College of Human Ecology, Seoul National University , Seoul ,","place":["Korea"]},{"name":"Integrated Major in Regional Studies and Spatial Analytics, Seoul National University , Seoul ,","place":["Korea"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8452-2495","authenticated-orcid":false,"given":"Lauren R","family":"Bangerter","sequence":"additional","affiliation":[{"name":"Health Economics and Aging Research Institute, MedStar Health Research Institute , Hyattsville , Maryland,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yin","family":"Liu","sequence":"additional","affiliation":[{"name":"Department of Human Development and Family Studies, Utah State University , Logan , Utah,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dawn M","family":"Finnie","sequence":"additional","affiliation":[{"name":"Kern Center for the Science of Healthcare Delivery, Mayo Clinic , Rochester, Minnesota ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria I","family":"Lapid","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychology, Mayo Clinic , Rochester, Minnesota ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4797-485X","authenticated-orcid":false,"given":"Joseph E","family":"Gaugler","sequence":"additional","affiliation":[{"name":"School of Public Health, University of Minnesota , Minneapolis, Minnesota ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8120-3229","authenticated-orcid":false,"given":"Joan 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