{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T10:17:26Z","timestamp":1792664246671,"version":"4.5.0"},"reference-count":53,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2024,6,5]],"date-time":"2024-06-05T00:00:00Z","timestamp":1717545600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,8,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background and Objectives<\/jats:title><jats:p>This study explores the narrated experiences of individuals with advanced stages of late-onset dementia, focusing on their diagnosis awareness. Such framing is motivated by 2 reasons. Firstly, there is a lack of consensus regarding the prevalence of anosognosia among people with dementia. Secondly, research on anosognosia often neglects to address the important issues of shame and stigma associated with receiving a dementia diagnosis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Research Design and Methods<\/jats:title><jats:p>For this qualitative study, a total of 27 participants ranging in age from 66 to 94 were involved. The data collected were analyzed using textual-oriented discourse analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Our findings indicated that individuals with dementia struggled to comprehend the medical terminology used to describe their experiences within biomedical standards. The interviewees utilized 5 negative discourses on dementia, which shaped their attitudes toward the condition and people diagnosed with it. These discourses depicted dementia as an illness, negative aging, a devaluation, a burden, and a life tragedy. Moreover, study participants did not outright reject the diagnosis but rather negotiated its acceptance within the context of shame associated with dementia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion and Implications<\/jats:title><jats:p>The concept of anosognosia can serve as a mechanism of social control and stigmatization of people with dementia within the dominant biomedical discourse.<\/jats:p><\/jats:sec>","DOI":"10.1093\/geront\/gnae067","type":"journal-article","created":{"date-parts":[[2024,6,5]],"date-time":"2024-06-05T06:23:48Z","timestamp":1717568628000},"source":"Crossref","is-referenced-by-count":6,"title":["Do I Have Symptoms of Dementia: A Discursive Study of Awareness and Shame Among People With Advanced Dementia"],"prefix":"10.1093","volume":"64","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7988-2795","authenticated-orcid":false,"given":"Urszula","family":"K\u0142osi\u0144ska","sequence":"first","affiliation":[{"name":"Faculty of Psychology, SWPS University , Wroc\u0142aw , Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9985-0325","authenticated-orcid":false,"given":"Magdalena","family":"Leszko","sequence":"additional","affiliation":[{"name":"Department of Psychology, Moravian University , Bethlehem, Pennsylvania , USA"},{"name":"Department of Psychology, University of Szczecin , Szczecin , Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2024,6,5]]},"reference":[{"issue":"5","key":"2024070813012228300_CIT0001","first-page":"1896","article-title":"Experiences of shame for people with dementia: An interpretative phenomenological analysis","volume":"18","author":"Aldridge","year":"2019","journal-title":"Dementia (London, England)"},{"issue":"4","key":"2024070813012228300_CIT0002","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1002\/gps.5702","article-title":"Changes in awareness of condition in people with mild-to-moderate dementia: Longitudinal findings from the IDEAL cohort","volume":"37","author":"Alexander","year":"2022","journal-title":"International Journal of Geriatric Psychiatry"},{"issue":"5","key":"2024070813012228300_CIT0003","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1177\/0891988720924717","article-title":"Measuring awareness in people with dementia: Results of a systematic scoping review","volume":"34","author":"Alexander","year":"2021","journal-title":"Journal of Geriatric Psychiatry and Neurology"},{"issue":"2","key":"2024070813012228300_CIT0004","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1111\/jpm.12559","article-title":"\u2018It\u2019s nice to think somebody\u2019s listening to me instead of saying \u201coh shut up\u201d\u2019. 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