{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T11:12:02Z","timestamp":1788606722092,"version":"build-2803163510"},"reference-count":50,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T00:00:00Z","timestamp":1785888000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100000867","name":"Robert Wood Johnson Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000867","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100013371","name":"Boston University College of Arts & Sciences","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100013371","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,8,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Objectives<\/jats:title>\n                    <jats:p>Understanding the quality of older adults\u2019 end-of-life care is essential for informed decision-making and practitioner accountability. However, retrospective appraisals provided by proxies may be shaped by their relationship to the decedent. Failure to adjust for proxy relationship status may generate misleading characterizations of the quality and social patterning of end-of-life care. We examine how proxy reporters (spouse, daughter, son, other relative, other non-relative, and paid caregiver) differ in their appraisals of the decedent\u2019s care in the last month of life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Research Design and Methods<\/jats:title>\n                    <jats:p>Data are from 12 waves (2011\u20132022) of the National Health and Aging Trends Study (n\u2009=\u20093,229). We use binomial and multinomial logistic regression to evaluate proxy status differences regarding ten dimensions of care in the last month of life, reported by NHATS decedents\u2019 proxies: overall quality; adequately treated breathing problems, pain, and sadness\/anxiety; care coordination; decisions made with patient input; care concordant with patient wishes; informed about care; personal care needs met; and respectful treatment. Models were adjusted for death context and decedent characteristics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Paid caregivers are more likely than family members to offer positive appraisals on all ten outcomes. Paid caregivers differ from other non-family proxies with respect to care delivery, but not symptom management. Family members differ slightly from one another, with spouses offering more critical assessments of patient\/family input and receipt of care concordant with wishes. Daughters and other relatives offered superior overall appraisals, relative to sons.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion and Implications<\/jats:title>\n                    <jats:p>Researchers, practitioners, and policymakers should recognize that the proxy\u2019s relationship to decedent may influence their appraisals of end-of-life care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/geront\/gnag190","type":"journal-article","created":{"date-parts":[[2026,8,14]],"date-time":"2026-08-14T11:17:08Z","timestamp":1786706228000},"source":"Crossref","is-referenced-by-count":0,"title":["Older adults\u2019 end-of-life care: are retrospective assessments patterned by proxy relationship to decedent?"],"prefix":"10.1093","volume":"66","author":[{"given":"Kafayat","family":"Mahmoud","sequence":"first","affiliation":[{"name":"Edson College of Nursing, Arizona State University (ASU) , Phoenix, Arizona,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8175-5303","authenticated-orcid":false,"given":"Deborah","family":"Carr","sequence":"additional","affiliation":[{"name":"Department of Sociology and Center for Innovation in Social Science, Boston University , Boston, Massachusetts,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2026,8,14]]},"reference":[{"key":"2026090506315184300_gnag190-B1","doi-asserted-by":"publisher","first-page":"957","DOI":"10.1001\/jama.2024.15563","article-title":"Leading causes of death in the US, 2019-2023","volume":"332","author":"Ahmad","year":"2024","journal-title":"JAMA"},{"key":"2026090506315184300_gnag190-B2","doi-asserted-by":"publisher","first-page":"S76","DOI":"10.1093\/geronb\/gbaa225","article-title":"Family caregiving and place of death: Insights from cross-national analysis of the harmonized end-of-life data","volume":"76","author":"Ailshire","year":"2021","journal-title":"The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences"},{"key":"2026090506315184300_gnag190-B3","doi-asserted-by":"publisher","first-page":"1158","DOI":"10.1111\/j.1365-2702.2006.01473.x","article-title":"Relatives in end-of-life care\u2013part 1: A systematic review of the literature the five last years, January 1999\u2013February 2004","volume":"15","author":"Andershed","year":"2006","journal-title":"Journal of Clinical Nursing"},{"key":"2026090506315184300_gnag190-B4","doi-asserted-by":"publisher","first-page":"214","DOI":"10.1016\/j.jpainsymman.2014.05.023","article-title":"Grief after patient death: Direct care staff in nursing homes and homecare","volume":"49","author":"Boerner","year":"2015","journal-title":"Journal of Pain and Symptom Management"},{"key":"2026090506315184300_gnag190-B5","doi-asserted-by":"publisher","first-page":"215","DOI":"10.2307\/1519809","article-title":"A \u201cgood death\u201d for whom? 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