{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T14:32:17Z","timestamp":1788877937237,"version":"build-2803163510"},"reference-count":32,"publisher":"Oxford University Press (OUP)","issue":"5","license":[{"start":{"date-parts":[[2019,4,6]],"date-time":"2019-04-06T00:00:00Z","timestamp":1554508800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"Nottinghamshire Clinical Commissioning Group"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,9,17]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Objectives<\/jats:title>\n                    <jats:p>Family carers often experience difficulties managing their own needs, which can lead to ill health. This study aimed to explore the views of carers and other stakeholders about the factors related to health-promoting self-care behavior in family carers of people with dementia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Research Design and Methods<\/jats:title>\n                    <jats:p>This multimethod qualitative study involved three consultation events with multiple stakeholders (n = 46) and four focus groups with carers (n = 27). Anonymous notes were collected from the consultation events. Focus group discussions were tape recorded and transcribed verbatim. Inductive thematic analysis was used to analyze the data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Two overarching themes were identified and labeled \u201cServices\u201d and \u201cIndividual factors.\u201d Poor service organization and coordination, lack of respite breaks, lack of continuity of care, poor staff attitudes, as well as difficulty to prioritize own needs, health impact, financial impact, and relationships and feelings were related poorer carer health-promoting self-care behavior. Limited health-promoting self-care often led to situations of crisis, which were related to carers\u2019 health issues, need for emergency services, and unanticipated care home placement. Carers require high-quality respite to have more time to themselves, support from better coordinated and compassionate services, and more education and awareness about their own needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion and Implications<\/jats:title>\n                    <jats:p>There are several factors that may limit carers\u2019 involvement with health-promoting self-care activities, which may affect their own health, on the care provided to their relatives and on service use. Future research and policy need to consider how to better support cares to manage their own health issues.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/geront\/gnz029","type":"journal-article","created":{"date-parts":[[2019,2,28]],"date-time":"2019-02-28T15:25:17Z","timestamp":1551367517000},"page":"e501-e511","source":"Crossref","is-referenced-by-count":35,"title":["Health-Promoting Self-Care in Family Caregivers of People With Dementia: The Views of Multiple Stakeholders"],"prefix":"10.1093","volume":"59","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6616-533X","authenticated-orcid":false,"given":"Deborah","family":"Oliveira","sequence":"first","affiliation":[{"name":"Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham ,","place":["UK"]},{"name":"Department of Psychiatry, Federal University of S\u00e3o Paulo (UNIFESP) , S\u00e3o Paulo,","place":["Brazil"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steven H","family":"Zarit","sequence":"additional","affiliation":[{"name":"Department of Human Development and Family Studies, Pennsylvania State University , University Park"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Orrell","sequence":"additional","affiliation":[{"name":"Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham ,","place":["UK"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2019,4,6]]},"reference":[{"key":"2026010622221926900_CIT0001","doi-asserted-by":"publisher","first-page":"73","DOI":"10.1177\/01939450222045716","article-title":"Health-promoting self-care in family caregivers","volume":"24","author":"Acton","year":"2002","journal-title":"Western Journal of Nursing Research"},{"key":"2026010622221926900_CIT0002","doi-asserted-by":"publisher","first-page":"1371","DOI":"10.1001\/jamainternmed.2016.3553","article-title":"Continuity of care and health care utilization in older adults with dementia in fee-for-service Medicare","volume":"176","author":"Amjad","year":"2016","journal-title":"JAMA Intern Medicine"},{"key":"2026010622221926900_CIT0003","doi-asserted-by":"publisher","first-page":"534","DOI":"10.1002\/2327-6924.12355","article-title":"Caregiver burden and perceived health competence when caring for family members diagnosed with Alzheimer\u2019s disease and related dementia","volume":"28","author":"Bailes","year":"2016","journal-title":"Journal of the American Association of Nurse Practitioners"},{"key":"2026010622221926900_CIT0004","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"key":"2026010622221926900_CIT0005","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1097\/00012272-198404000-00011","article-title":"Instrument development for health belief model constructs","volume":"6","author":"Champion","year":"1984","journal-title":"Advances in Nursing Science"},{"key":"2026010622221926900_CIT0006","doi-asserted-by":"publisher","first-page":"P599","DOI":"10.1016\/j.jalz.2015.06.823","article-title":"A comparative study of caregiving burden and the effects of the care receiver's helpfulness to the caregiver and caregiver's self-care on caregiving burden between dementia and non-dementia caregivers","volume":"11","author":"Choi","year":"2015","journal-title":"Alzheimer\u2019s & Dementia"},{"key":"2026010622221926900_CIT0007","doi-asserted-by":"publisher","first-page":"117","DOI":"10.1016\/j.maturitas.2015.12.008","article-title":"A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise?","volume":"85","author":"Dam","year":"2016","journal-title":"Maturitas"},{"key":"2026010622221926900_CIT0008","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1017\/S1041610216001447","article-title":"Psychosocial intervention for carers of people with dementia: What components are most effective and when? 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