{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T05:04:11Z","timestamp":1791522251008,"version":"4.3.4"},"reference-count":88,"publisher":"Oxford University Press (OUP)","license":[{"start":{"date-parts":[[2020,1,16]],"date-time":"2020-01-16T00:00:00Z","timestamp":1579132800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["144042"],"award-info":[{"award-number":["144042"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background and Objectives<\/jats:title>\n                  <jats:p>Our aim was to create a \u201cstoryline\u201d that provides empirical explanation of stakeholders\u2019 perspectives underlying the use of patient- and family-reported outcome and experience measures to inform continuity across transitions in care for frail older adults and their family caregivers living at home.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Research Design and Methods<\/jats:title>\n                  <jats:p>We conducted a meta-narrative synthesis to explore stakeholder perspectives pertaining to use of patient-reported outcome and experience measures (PROMs and PREMs) across micro (patients, family caregivers, and healthcare providers), meso (organizational managers\/executives\/programs), and macro (decision-\/policy-makers) levels in healthcare. Systematic searches identified 9,942 citations of which 40 were included based on full-text screening.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>PROMs and PREMS (54 PROMs; 4 PREMs; 1 with PROM and PREM elements; 6 unspecified PROMs) were rarely used to inform continuity across transitions of care and were typically used independently, rarely together (n = 3). Two overarching traditions motivated stakeholders\u2019 use. The first significant motivation by diverse stakeholders to use PROMs and PREMs was the desire to restore\/support independence and care at home, predominantly at a micro-level. The second motivation to using PROMs and PREMs was to evaluate health services, including cost-effectiveness of programs and hospital discharge (planning); this focus was rarely at a macro-level and more often split between micro- and meso-levels of healthcare.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion and Implications<\/jats:title>\n                  <jats:p>The motivations underlying stakeholders\u2019 use of these tools were distinct, yet synergistic between the goals of person\/family-centered care and healthcare system-level goals aimed at efficient use of health services. There is a missed opportunity here for PROMs and PREMs to be used together to inform continuity across transitions of care.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/geront\/gnz162","type":"journal-article","created":{"date-parts":[[2019,11,1]],"date-time":"2019-11-01T00:30:03Z","timestamp":1572568203000},"source":"Crossref","is-referenced-by-count":15,"title":["Using Patient- and Family-Reported Outcome and Experience Measures Across Transitions of Care for Frail Older Adults Living at Home: A Meta-Narrative Synthesis"],"prefix":"10.1093","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6200-3416","authenticated-orcid":false,"given":"Kara","family":"Schick-Makaroff","sequence":"first","affiliation":[{"name":"Faculty of Nursing, University of Alberta, Vancouver"},{"name":"Faculty of Nursing, University of Alberta, Vancouver"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mehri","family":"Karimi-Dehkordi","sequence":"additional","affiliation":[{"name":"Department of Medicine and Community Health Sciences, University of Calgary, Vancouver"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lena","family":"Cuthbertson","sequence":"additional","affiliation":[{"name":"Office of Patient-Centered Measurement, British Columbia, Ministry of Health, Vancouver"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Duncan","family":"Dixon","sequence":"additional","affiliation":[{"name":"Norma Marion Alloway Library, Trinity Western University, Langley"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S Robin","family":"Cohen","sequence":"additional","affiliation":[{"name":"Department of Oncology and Medicine, McGill University, Montr\u00e9al"},{"name":"Lady Davis Institute, Palliative Care Research, Montr\u00e9al"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neil","family":"Hilliard","sequence":"additional","affiliation":[{"name":"Fraser Health, Abbotsford"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Sawatzky","sequence":"additional","affiliation":[{"name":"School of Nursing, Trinity Western University, Langley"},{"name":"Centre for Health Evaluation and Outcome Sciences, St. Paul\u2019s Hospital, Vancouver, Canada"},{"name":"Sahlgrenska Academy, University of Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2020,1,16]]},"reference":[{"key":"2020011607091454800_CIT0001","author":"Accreditation Canada.","year":"2016"},{"key":"2020011607091454800_CIT0002","author":"Accreditation Canada","year":"2017"},{"key":"2020011607091454800_CIT0003","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1186\/1472-6963-14-346","article-title":"Quality care outcomes following transitional care interventions for older people from hospital to home: A systematic review","volume":"14","author":"Allen","year":"2014","journal-title":"BMC Health Services Research"},{"key":"2020011607091454800_CIT0004","doi-asserted-by":"crossref","first-page":"1024","DOI":"10.1161\/01.STR.31.5.1024","article-title":"Home or hospital for stroke rehabilitation? 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