{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T14:43:32Z","timestamp":1791816212354,"version":"4.3.4"},"reference-count":20,"publisher":"Oxford University Press (OUP)","issue":"3","license":[{"start":{"date-parts":[[2024,2,16]],"date-time":"2024-02-16T00:00:00Z","timestamp":1708041600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["NIA U01AG009740"],"award-info":[{"award-number":["NIA U01AG009740"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,3,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Persons living with Alzheimer's and other related forms of dementia rely heavily on care from family and friends for assistance with daily activities (\u201cfamily care\u201d), but little is known about care transitions over time. We analyzed data from the Health and Retirement Study to describe caregiving patterns, from 2 years before dementia onset and up to 6 years after. Using sociodemographic data from the interview prior to dementia onset, we determined if there are significant factors that predict receipt of family care at dementia onset. We found that one-third (33%) of people living with dementia were receiving help with daily activities 2 years prior to their first positive dementia screen and this increased to 60% during the first positive screen. Nearly all of those receiving assistance received family care. We found multiple significant predictors of receiving family care at onset, including race, education, access to private health insurance, number of activities of daily living that were difficult, number of chronic conditions, and already receiving help. This demonstrates potential gaps in dementia care, and which subpopulations may benefit most from targeted interventions for household members who do not have adequate caregiving resources or programs that provide additional formal care.<\/jats:p>","DOI":"10.1093\/haschl\/qxae020","type":"journal-article","created":{"date-parts":[[2024,2,17]],"date-time":"2024-02-17T10:29:20Z","timestamp":1708165760000},"source":"Crossref","is-referenced-by-count":4,"title":["Caregiving for dementia: trends pre-post onset and predictive factors of family caregiving (2002\u20132018)"],"prefix":"10.1093","volume":"2","author":[{"ORCID":"https:\/\/orcid.org\/0009-0000-8143-7623","authenticated-orcid":false,"given":"Bailey C","family":"Ingraham","sequence":"first","affiliation":[{"name":"Department of Health Systems and Population Health, University of Washington , Seattle, WA 98195 , United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0511-5520","authenticated-orcid":false,"given":"Douglas","family":"Barthold","sequence":"additional","affiliation":[{"name":"The Comparative Health Outcomes, Policy, and Economics (CHOICE) Institute, University of Washington Department of Pharmacy , Seattle, WA 98195 , United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3419-4539","authenticated-orcid":false,"given":"Paul","family":"Fishman","sequence":"additional","affiliation":[{"name":"Department of Health Systems and Population Health, University of Washington , Seattle, WA 98195 , United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1228-0938","authenticated-orcid":false,"given":"Norma B","family":"Coe","sequence":"additional","affiliation":[{"name":"Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania , Philadelphia, PA 19104 , United States"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2024,2,16]]},"reference":[{"issue":"4","key":"2024032119332839900_qxae020-B1","doi-asserted-by":"crossref","first-page":"1598","DOI":"10.1002\/alz.13016","article-title":"2023 Alzheimer's disease facts and figures","volume":"19","author":"Alzheimer's Association","year":"2023","journal-title":"Alzheimers Dement"},{"issue":"10","key":"2024032119332839900_qxae020-B2","doi-asserted-by":"crossref","first-page":"2169","DOI":"10.1111\/jgs.15043","article-title":"Societal and family lifetime cost of dementia: implications for policy","volume":"65","author":"Jutkowitz","year":"2017","journal-title":"J Am Geriatr Soc"},{"issue":"10","key":"2024032119332839900_qxae020-B3","doi-asserted-by":"crossref","first-page":"1642","DOI":"10.1377\/hlthaff.2015.0536","article-title":"The disproportionate impact of dementia on family and unpaid caregiving to older adults","volume":"34","author":"Kasper","year":"2015","journal-title":"Health Aff (Millwood)"},{"issue":"2","key":"2024032119332839900_qxae020-B4","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1093\/geront\/gnu177","article-title":"Informal caregiving and its impact on health: a reappraisal from population-based studies","volume":"55","author":"Roth","year":"2015","journal-title":"Gerontologist"},{"key":"2024032119332839900_qxae020-B5","author":"National Poll on Healthy Aging"},{"key":"2024032119332839900_qxae020-B6","author":"National Alliance for Caregiving"},{"issue":"10","key":"2024032119332839900_qxae020-B7","doi-asserted-by":"crossref","first-page":"1637","DOI":"10.1377\/hlthaff.2015.0510","article-title":"US prevalence and predictors of informal caregiving for dementia","volume":"34","author":"Friedman","year":"2015","journal-title":"Health Aff (Millwood)"},{"issue":"1","key":"2024032119332839900_qxae020-B8","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1377\/hlthaff.2021.01239","article-title":"Informal caregivers provide considerable front-line support in residential care facilities and nursing homes","volume":"41","author":"Coe","year":"2022","journal-title":"Health Aff (Millwood)"},{"issue":"6","key":"2024032119332839900_qxae020-B9","doi-asserted-by":"crossref","first-page":"860","DOI":"10.1080\/08959420.2021.1927613","article-title":"Profiles of caregiving arrangements of community-dwelling people living with probable dementia","volume":"34","author":"Jutkowitz","year":"2022","journal-title":"J Aging Soc Policy"},{"issue":"1","key":"2024032119332839900_qxae020-B10","doi-asserted-by":"crossref","first-page":"216","DOI":"10.1186\/s12877-020-01613-9","article-title":"Family caregiving in the community up to 8-years after onset of dementia","volume":"20","author":"Jutkowitz","year":"2020","journal-title":"BMC 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