{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,4,12]],"date-time":"2025-04-12T04:02:02Z","timestamp":1744430522680,"version":"3.40.4"},"reference-count":40,"publisher":"Oxford University Press (OUP)","issue":"4","license":[{"start":{"date-parts":[[2024,6,29]],"date-time":"2024-06-29T00:00:00Z","timestamp":1719619200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"name":"Kurscheid-Stiftung"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,4,10]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>The patient perspective is essential for assessing disease severity, but it is not always adequately considered. We describe how a comprehensive clinical disease severity index (DSI) for inflammatory bowel disease (IBD) correlates with patient global self-assessment (PGSA).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>In an individually linked parallel online survey, physicians provided the DSI, and patients provided self-assessed severity using a global question and visual analog scale (0-100) (PGSA). Mean DSI values by PGSA were calculated with 95% confidence intervals. Pearson correlation (r) and the intraclass correlation coefficient were calculated for PGSA vs DSI. Positive predictive values for identifying severe disease with PGSA categories as a reference were based on a threshold &amp;gt;22 points.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>The primary analysis included 89 pairs (46 Crohn\u2019s disease [CD], 43 ulcerative colitis [UC]) with strict criteria and 147 pairs when less stringent. Common reasons for exclusion were missing values for albumin or colonoscopy. Mean DSI values showed no clear trend with increasing PGSA in CD but good discrimination between moderate, severe, and very severe PGSA in UC. For PGSA on the visual analog scale, r was 0.54 for CD and 0.59 for UC (difference in means: CD 27.7, UC 13.8; intraclass correlation coefficient: CD 0.48, UC 0.58). A high DSI predicted severe disease in 76.2% of CD and 65.2% of UC.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>The DSI showed good discrimination for patient-reported disease severity in UC but performed unsatisfactorily in CD. Correlations were moderate. Further refinement of the DSI is suggested to better reflect the patient perspective.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/ibd\/izae127","type":"journal-article","created":{"date-parts":[[2024,6,30]],"date-time":"2024-06-30T13:25:04Z","timestamp":1719753904000},"page":"983-994","source":"Crossref","is-referenced-by-count":1,"title":["Integrating the Patient Perspective to Validate a Measure of Disease Severity in Inflammatory Bowel Disease: Online Survey of Patients and Their Physicians"],"prefix":"10.1093","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9579-0516","authenticated-orcid":false,"given":"Antje","family":"Timmer","sequence":"first","affiliation":[{"name":"Division of Epidemiology and Biometry, Department of Human Medicine, Carl von Ossietzky Universit\u00e4t Oldenburg , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Johanna","family":"Neuser","sequence":"additional","affiliation":[{"name":"Division of Epidemiology and Biometry, Department of Human Medicine, Carl von Ossietzky Universit\u00e4t Oldenburg , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dominik","family":"de Sordi","sequence":"additional","affiliation":[{"name":"Division of Epidemiology and Biometry, Department of Human Medicine, Carl von Ossietzky Universit\u00e4t Oldenburg , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martin","family":"Schmidt-Lauber","sequence":"additional","affiliation":[{"name":"Gastroenterologische Gemeinschaftspraxis , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hubert","family":"Allgayer","sequence":"additional","affiliation":[{"name":"Rehazentrum Bad Br\u00fcckenau, Klinik Hartwald , Bad Br\u00fcckenau ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christoph","family":"Reichel","sequence":"additional","affiliation":[{"name":"Rehazentrum Bad Br\u00fcckenau, Klinik Hartwald , Bad Br\u00fcckenau ,","place":["Germany"]},{"name":"Institute for Hygiene and Public Health, Rheinische-Friedrich-Wilhelms-Universit\u00e4t , Bonn ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Frank","family":"Klebl","sequence":"additional","affiliation":[{"name":"Praxiszentrum Alte M\u00e4lzerei , Regensburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Florian","family":"Obermeier","sequence":"additional","affiliation":[{"name":"Praxiszentrum Alte M\u00e4lzerei , Regensburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elisabeth","family":"Schnoy","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinikum Augsburg , Augsburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Petra","family":"Jessen","sequence":"additional","affiliation":[{"name":"Gemeinschaftspraxis im Medicum , Altenholz ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Morgenstern","sequence":"additional","affiliation":[{"name":"Evangelisches Krankenhaus Kalk , K\u00f6ln ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ulf","family":"Helwig","sequence":"additional","affiliation":[{"name":"Internistische Praxisgemeinschaft , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian","family":"Maaser","sequence":"additional","affiliation":[{"name":"Ambulanzzentrum Gastroenterologie, Klinikum L\u00fcneburg, L\u00fcneburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ludger","family":"Leifeld","sequence":"additional","affiliation":[{"name":"Med Klinik III, Innere und Gastroenterologie , St. Bernward Krankenhaus, Hildesheim ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sebastian","family":"Schmidt","sequence":"additional","affiliation":[{"name":"Med Klinik III, Innere und Gastroenterologie , St. Bernward Krankenhaus, Hildesheim ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian","family":"Meinhardt","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinik f\u00fcr Innere Medizin , Klinikum Oldenburg , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ulrich","family":"B\u00f6cker","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Innere Medizin \u2013 Gastroenterologie, Diabetologie und Hepatologie, Vivantes Klinikum Neuk\u00f6lln , Berlin ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexander","family":"Arlt","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinik f\u00fcr Innere Medizin , Klinikum Oldenburg , Oldenburg ,","place":["Germany"]},{"name":"Medizinische Klinik, Israelitisches Krankenhaus Hamburg, Hamburg, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elke","family":"B\u00e4stlein","sequence":"additional","affiliation":[{"name":"Magen-Darm-Zentrum Wiener Platz , K\u00f6ln ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Arne","family":"Bokemeyer","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Gastroenterologie, Hepatologie und Transplantationsmedizin, Universit\u00e4tsmedizin Essen, Essen, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jan C","family":"Prei\u00df","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Innere Medizin \u2013 Gastroenterologie, Diabetologie und Hepatologie, Vivantes Klinikum Neuk\u00f6lln , Berlin ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fabian","family":"Otto-Sobotka","sequence":"additional","affiliation":[{"name":"Division of Epidemiology and Biometry, Department of Human Medicine, Carl von Ossietzky Universit\u00e4t Oldenburg , Oldenburg ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Birgit","family":"Kaltz","sequence":"additional","affiliation":[{"name":"DCCV e.V., Berlin ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cornelia","family":"Sander","sequence":"additional","affiliation":[{"name":"DCCV e.V., Berlin ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9465-0124","authenticated-orcid":false,"given":"Wolfgang","family":"Kruis","sequence":"additional","affiliation":[{"name":"Evangelisches Krankenhaus Kalk, University of Cologne , Cologne ,","place":["Germany"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2024,6,29]]},"reference":[{"issue":"10080","key":"2025041105235859900_CIT0001","doi-asserted-by":"publisher","first-page":"1741","DOI":"10.1016\/S0140-6736(16)31711-1","article-title":"Crohn\u2019s disease","volume":"389","author":"Torres","year":"2017","journal-title":"Lancet."},{"issue":"10080","key":"2025041105235859900_CIT0002","doi-asserted-by":"publisher","first-page":"1756","DOI":"10.1016\/S0140-6736(16)32126-2","article-title":"Ulcerative colitis","volume":"389","author":"Ungaro","year":"2017","journal-title":"Lancet."},{"issue":"2","key":"2025041105235859900_CIT0003","doi-asserted-by":"publisher","first-page":"228","DOI":"10.1093\/ecco-jcc\/jjaa159","article-title":"A global, prospective, observational study measuring disease burden and suffering in patients with ulcerative colitis using the pictorial representation of illness and self-measure tool","volume":"15","author":"Ghosh","year":"2020","journal-title":"J Crohns Colitis."},{"issue":"3","key":"2025041105235859900_CIT0004","doi-asserted-by":"publisher","first-page":"348","DOI":"10.1016\/j.cgh.2015.06.001","article-title":"Defining disease severity in inflammatory bowel diseases: current and future directions","volume":"14","author":"Peyrin-Biroulet","year":"2016","journal-title":"Clin Gastroenterol Hepatol."},{"issue":"9","key":"2025041105235859900_CIT0005","doi-asserted-by":"publisher","first-page":"1407","DOI":"10.1016\/j.cgh.2018.02.051","article-title":"Heterogeneity in definitions of efficacy and safety endpoints for clinical trials of Crohn\u2019s disease: a systematic review","volume":"16","author":"Ma","year":"2018","journal-title":"Clin Gastroenterol Hepatol."},{"issue":"5","key":"2025041105235859900_CIT0006","doi-asserted-by":"publisher","first-page":"637","DOI":"10.1016\/j.cgh.2017.08.025","article-title":"Heterogeneity in definitions of endpoints for clinical trials of ulcerative colitis: a systematic review for development of a core outcome set","volume":"16","author":"Ma","year":"2018","journal-title":"Clin Gastroenterol Hepatol."},{"issue":"5","key":"2025041105235859900_CIT0007","doi-asserted-by":"publisher","first-page":"648","DOI":"10.1016\/j.cgh.2017.10.019","article-title":"Patient-reported outcome measures for use in clinical trials and clinical practice in inflammatory bowel diseases: a systematic review","volume":"16","author":"de Jong","year":"2018","journal-title":"Clin Gastroenterol Hepatol."},{"issue":"5","key":"2025041105235859900_CIT0008","doi-asserted-by":"publisher","first-page":"1570","DOI":"10.1053\/j.gastro.2020.12.031","article-title":"STRIDE-II: an update on the Selecting Therapeutic Targets in Inflammatory Bowel Disease (STRIDE) Initiative of the International Organization for the Study of IBD (IOIBD): determining therapeutic goals for treat-to-target strategies in IBD","volume":"160","author":"Turner","year":"2021","journal-title":"Gastroenterology."},{"issue":"5","key":"2025041105235859900_CIT0009","doi-asserted-by":"publisher","first-page":"454","DOI":"10.1016\/S2468-1253(20)30012-1","article-title":"Health-care costs of inflammatory bowel disease in a pan-European, community-based, inception cohort during 5 years of follow-up: a population-based study","volume":"5","author":"Burisch","year":"2020","journal-title":"Lancet Gastroenterol Hepatol"},{"issue":"8","key":"2025041105235859900_CIT0010","doi-asserted-by":"publisher","first-page":"1037","DOI":"10.1093\/ecco-jcc\/jjaa023","article-title":"Quality of care standards in inflammatory bowel diseases: a European Crohn\u2019s and Colitis Organisation [ECCO] Position Paper","volume":"14","author":"Fiorino","year":"2020","journal-title":"J Crohns Colitis."},{"issue":"5","key":"2025041105235859900_CIT0011","doi-asserted-by":"publisher","first-page":"1452","DOI":"10.1053\/j.gastro.2020.10.065","article-title":"Selecting end points for disease-modification trials in inflammatory bowel disease: the SPIRIT Consensus from the IOIBD","volume":"160","author":"Le Berre","year":"2021","journal-title":"Gastroenterology."},{"issue":"2","key":"2025041105235859900_CIT0012","doi-asserted-by":"publisher","first-page":"244","DOI":"10.1136\/gutjnl-2016-312648","article-title":"Development of an index to define overall disease severity in IBD","volume":"67","author":"Siegel","year":"2018","journal-title":"Gut."},{"issue":"4","key":"2025041105235859900_CIT0013","doi-asserted-by":"publisher","first-page":"664","DOI":"10.1111\/apt.17058","article-title":"The disease severity index for inflammatory bowel disease is associated with psychological symptoms and quality of life, and predicts a more complicated disease course","volume":"56","author":"Swaminathan","year":"2022","journal-title":"Aliment Pharmacol Ther."},{"key":"2025041105235859900_CIT0014","doi-asserted-by":"publisher","first-page":"izad294","DOI":"10.1093\/ibd\/izad294","article-title":"The disease severity index for inflammatory bowel disease is a valid instrument that predicts complicated disease","author":"Swaminathan","year":"2023","journal-title":"Inflamm Bowel Dis."},{"issue":"6","key":"2025041105235859900_CIT0015","doi-asserted-by":"publisher","first-page":"749","DOI":"10.1136\/gut.2005.082909","article-title":"The Montreal classification of inflammatory bowel disease: controversies, consensus, and implications","volume":"55","author":"Satsangi","year":"2006","journal-title":"Gut."},{"issue":"4 Pt 2","key":"2025041105235859900_CIT0016","doi-asserted-by":"crossref","first-page":"843","DOI":"10.1016\/0016-5085(79)90384-6","article-title":"Rederived values of the eight coefficients of the Crohn\u2019s Disease Activity Index (CDAI)","volume":"77","author":"Best","year":"1979","journal-title":"Gastroenterology."},{"issue":"2","key":"2025041105235859900_CIT0017","doi-asserted-by":"publisher","first-page":"763","DOI":"10.1053\/j.gastro.2006.12.038","article-title":"A review of activity indices and efficacy end points for clinical trials of medical therapy in adults with ulcerative colitis","volume":"132","author":"D\u2019Haens","year":"2007","journal-title":"Gastroenterology."},{"volume-title":"HADS-D: Hospital Anxiety and Depression Scale German Version","year":"2011","author":"Herrmann-Lingen","key":"2025041105235859900_CIT0018"},{"key":"2025041105235859900_CIT0019","doi-asserted-by":"publisher","first-page":"22","DOI":"10.1186\/1471-2288-10-22","article-title":"The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content","volume":"10","author":"Mokkink","year":"2010","journal-title":"BMC Med Res Methodol."},{"issue":"7","key":"2025041105235859900_CIT0020","doi-asserted-by":"publisher","first-page":"1018","DOI":"10.1136\/gutjnl-2014-308619","article-title":"Reliability and agreement studies: a guide for clinical investigators","volume":"64","author":"Hernaez","year":"2015","journal-title":"Gut."},{"issue":"1","key":"2025041105235859900_CIT0021","doi-asserted-by":"crossref","first-page":"159","DOI":"10.2307\/2529310","article-title":"The measurement of observer agreement for categorical data","volume":"33","author":"Landis","year":"1977","journal-title":"Biometrics."},{"issue":"3","key":"2025041105235859900_CIT0022","doi-asserted-by":"publisher","first-page":"178","DOI":"10.1080\/09296174.2013.799918","article-title":"Binomial confidence intervals and contingency tests: mathematical fundamentals and the evaluation of alternative methods","volume":"20","author":"Wallis","year":"2013","journal-title":"J Quant Linguist"},{"issue":"4","key":"2025041105235859900_CIT0023","doi-asserted-by":"publisher","first-page":"766","DOI":"10.1093\/ibd\/izx063","article-title":"Independent validation of a self-report version of the IBD Disability Index (IBDDI) in a population-based cohort of IBD patients","volume":"24","author":"Shafer","year":"2018","journal-title":"Inflamm Bowel Dis."},{"issue":"4","key":"2025041105235859900_CIT0024","doi-asserted-by":"publisher","first-page":"581","DOI":"10.1002\/ibd.20793","article-title":"Impact of ulcerative colitis from patients\u2019 and physicians\u2019 perspectives: results from the UC: normal survey","volume":"15","author":"Rubin","year":"2009","journal-title":"Inflamm Bowel Dis."},{"key":"2025041105235859900_CIT0025","doi-asserted-by":"publisher","first-page":"108","DOI":"10.1186\/1471-230X-12-108","article-title":"Perception gaps between patients with ulcerative colitis and healthcare professionals: an online survey","volume":"12","author":"Schreiber","year":"2012","journal-title":"BMC Gastroenterol."},{"issue":"3","key":"2025041105235859900_CIT0026","doi-asserted-by":"publisher","first-page":"333","DOI":"10.1097\/MIB.0000000000001033","article-title":"Development of the IBD disk: a visual self-administered tool for assessing disability in inflammatory bowel diseases","volume":"23","author":"Ghosh","year":"2017","journal-title":"Inflamm Bowel Dis."},{"issue":"11","key":"2025041105235859900_CIT0027","doi-asserted-by":"publisher","first-page":"1747","DOI":"10.1093\/ibd\/izab016","article-title":"Ulcerative colitis narrative global survey findings: the impact of living with ulcerative colitis-patients\u2019 and physicians\u2019 view","volume":"27","author":"Dubinsky","year":"2021","journal-title":"Inflamm Bowel Dis."},{"issue":"1","key":"2025041105235859900_CIT0028","doi-asserted-by":"publisher","first-page":"25","DOI":"10.1136\/flgastro-2022-102104","article-title":"Disease activity, burden and suffering in patients with ulcerative colitis in the UK cohort recruited into the global ICONIC study","volume":"14","author":"Bhala","year":"2023","journal-title":"Frontline Gastroenterol"},{"issue":"12","key":"2025041105235859900_CIT0029","doi-asserted-by":"publisher","first-page":"1942","DOI":"10.1093\/ibd\/izab006","article-title":"International perspectives on management of inflammatory bowel disease: opinion differences and similarities between patients and physicians from the IBD GAPPS survey","volume":"27","author":"Rubin","year":"2021","journal-title":"Inflamm Bowel Dis."},{"issue":"6","key":"2025041105235859900_CIT0030","doi-asserted-by":"publisher","first-page":"1956","DOI":"10.1007\/s10620-021-07025-y","article-title":"Patient perspectives and expectations in inflammatory bowel disease: a systematic review","volume":"67","author":"Al Khoury","year":"2022","journal-title":"Dig Dis Sci."},{"issue":"10","key":"2025041105235859900_CIT0031","doi-asserted-by":"publisher","first-page":"2460","DOI":"10.1097\/MIB.0000000000000438","article-title":"Systematic review of the clinical disease severity indices for inflammatory bowel disease","volume":"21","author":"Alrubaiy","year":"2015","journal-title":"Inflamm Bowel Dis."},{"key":"2025041105235859900_CIT0032","doi-asserted-by":"publisher","first-page":"3108025","DOI":"10.1155\/2019\/3108025","article-title":"Unmet medical needs in the management of ulcerative colitis: results of an Italian Delphi Consensus","volume":"2019","author":"Daperno","year":"2019","journal-title":"Gastroenterol Res Pract"},{"issue":"1","key":"2025041105235859900_CIT0033","doi-asserted-by":"publisher","first-page":"456","DOI":"10.1186\/s12876-021-02028-5","article-title":"The LUCID study: living with ulcerative colitis; identifying the socioeconomic burden in Europe","volume":"21","author":"Ruiz-Casas","year":"2021","journal-title":"BMC Gastroenterol."},{"issue":"9","key":"2025041105235859900_CIT0034","doi-asserted-by":"publisher","first-page":"1299","DOI":"10.1093\/ecco-jcc\/jjaa057","article-title":"Systematic review of development and content validity of patient-reported outcome measures in inflammatory bowel disease: do we measure what we measure","volume":"14","author":"van Andel","year":"2020","journal-title":"J Crohns Colitis."},{"issue":"suppl_2","key":"2025041105235859900_CIT0035","doi-asserted-by":"publisher","first-page":"S576","DOI":"10.1093\/ecco-jcc\/jjw187","article-title":"Patient reported outcome measures (PROMs) in inflammatory bowel disease: new data","volume":"11","author":"Bojic","year":"2017","journal-title":"J Crohns Colitis."},{"author":"U.S. Food and Drug Administration","key":"2025041105235859900_CIT0036"},{"issue":"3","key":"2025041105235859900_CIT0037","doi-asserted-by":"publisher","first-page":"161","DOI":"10.1136\/flgastro-2014-100530","article-title":"Development and validation of a new disease severity index: the Inflammatory Bowel Disease Index (IBDEX)","volume":"6","author":"Alrubaiy","year":"2015","journal-title":"Frontline Gastroenterol"},{"issue":"8","key":"2025041105235859900_CIT0038","doi-asserted-by":"publisher","first-page":"1177","DOI":"10.1093\/ibd\/izaa263","article-title":"Development and validation of an inflammatory bowel disease severity index using US administrative claims data: a retrospective cohort study","volume":"27","author":"Chen","year":"2021","journal-title":"Inflamm Bowel Dis."},{"issue":"8","key":"2025041105235859900_CIT0039","doi-asserted-by":"publisher","first-page":"1799","DOI":"10.1038\/ajg.2010.105","article-title":"A novel risk score to stratify severity of Crohn\u2019s disease hospitalizations","volume":"105","author":"Ananthakrishnan","year":"2010","journal-title":"Am J Gastroenterol."},{"issue":"7","key":"2025041105235859900_CIT0040","doi-asserted-by":"publisher","first-page":"1096","DOI":"10.1093\/ibd\/izaa257","article-title":"Ulcerative colitis narrative global survey findings: communication gaps and agreements between patients and physicians","volume":"27","author":"Rubin","year":"2021","journal-title":"Inflamm Bowel Dis."}],"container-title":["Inflammatory Bowel Diseases"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/ibdjournal\/advance-article-pdf\/doi\/10.1093\/ibd\/izae127\/58370751\/izae127.pdf","content-type":"application\/pdf","content-version":"am","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/ibdjournal\/article-pdf\/31\/4\/983\/58370751\/izae127.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/ibdjournal\/article-pdf\/31\/4\/983\/58370751\/izae127.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,4,11]],"date-time":"2025-04-11T05:24:02Z","timestamp":1744349042000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/ibdjournal\/article\/31\/4\/983\/7701813"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,6,29]]},"references-count":40,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2024,6,29]]},"published-print":{"date-parts":[[2025,4,10]]}},"URL":"https:\/\/doi.org\/10.1093\/ibd\/izae127","relation":{},"ISSN":["1078-0998","1536-4844"],"issn-type":[{"type":"print","value":"1078-0998"},{"type":"electronic","value":"1536-4844"}],"subject":[],"published-other":{"date-parts":[[2025,4]]},"published":{"date-parts":[[2024,6,29]]}}}