{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T18:52:07Z","timestamp":1790016727039,"version":"4.0.1"},"reference-count":48,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2024,8,27]],"date-time":"2024-08-27T00:00:00Z","timestamp":1724716800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100007028","name":"Leona M. and Harry B. Helmsley Charitable Trust","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007028","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Chleck Family Foundation"},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100011684","name":"Crohn\u2019s and Colitis Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100011684","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,6,13]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>Patient concerns and preferences are important in the management of inflammatory bowel disease (IBD: Crohn\u2019s disease [CD], ulcerative colitis). In the absence of contemporary data, we aimed to determine patient concerns and preferences and establish if there are demographic or disease-related differences.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>We surveyed patients with IBD at Massachusetts General Hospital between July and September 2023. The Rating Form of Inflammatory Bowel Disease Patient Concerns (RFIPC) and a set of supplemental questions rated on a visual analog scale (0-100 mm) were administered to patients and compared by age, disease type, sex, and surgery status. Additionally, a survey administered to treating providers gathered insight into the difference between patient and provider perceptions of concerns.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>A total of 350 patients and 30 providers completed the survey. The mean age was 47 years; 50% were female, 49% had CD, and 80% were on advanced IBD therapy. Effects of medication (median = 54), energy level (median = 53), and having an ostomy bag (median = 52) were rated highest by patients. Older patients rated most disease complication and treatment-related concerns similar to younger adults; those aged 35-59 years had the greatest level of concern for most questions. Sex, disease activity, and prior surgical history also impacted patients\u2019 concerns. Providers perceived patients\u2019 worries as higher than those rated by patients themselves.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>A shared decision-making model targeting the achievement of disease remission and addressing concerns rated highly by patients is important to meet the goal of care for patients with IBD.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/ibd\/izae197","type":"journal-article","created":{"date-parts":[[2024,8,27]],"date-time":"2024-08-27T19:14:30Z","timestamp":1724786070000},"page":"1595-1604","source":"Crossref","is-referenced-by-count":9,"title":["A Study of Patient Concerns in the Modern Therapeutic Era of Inflammatory Bowel Disease"],"prefix":"10.1093","volume":"31","author":[{"given":"Victoria","family":"Gsenger","sequence":"first","affiliation":[{"name":"Paracelsus Medical University Salzburg , Strubergasse 21, 5020 Salzburg ,","place":["Austria"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adriana","family":"Rodriguez","sequence":"additional","affiliation":[{"name":"Division of Gastroenterology, Massachusetts General Hospital-Crohn\u2019s and Colitis Center , 165 Cambridge Street, 9th Floor, Boston, MA 02114 ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Araka","sequence":"additional","affiliation":[{"name":"Division of Gastroenterology, Massachusetts General Hospital-Crohn\u2019s and Colitis Center , 165 Cambridge Street, 9th Floor, Boston, MA 02114 ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fouzia","family":"Oza","sequence":"additional","affiliation":[{"name":"Department of Gastroenterology, Wright Center for Graduate Medical Education , 501 S. Washington Ave., Suite 1000, Scranton, PA 18505 ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hany","family":"Eskarous","sequence":"additional","affiliation":[{"name":"Department of Gastroenterology, Wright Center for Graduate Medical Education , 501 S. Washington Ave., Suite 1000, Scranton, PA 18505 ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8862-1236","authenticated-orcid":false,"given":"Bharati","family":"Kochar","sequence":"additional","affiliation":[{"name":"Division of Gastroenterology, Massachusetts General Hospital-Crohn\u2019s and Colitis Center , 165 Cambridge Street, 9th Floor, Boston, MA 02114 ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9436-1821","authenticated-orcid":false,"given":"Ashwin N","family":"Ananthakrishnan","sequence":"additional","affiliation":[{"name":"Division of Gastroenterology, Massachusetts General Hospital-Crohn\u2019s and Colitis Center , 165 Cambridge Street, 9th Floor, Boston, MA 02114 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