{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,21]],"date-time":"2025-09-21T18:00:12Z","timestamp":1758477612581,"version":"3.37.3"},"reference-count":14,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2019,10,6]],"date-time":"2019-10-06T00:00:00Z","timestamp":1570320000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"National Health and Medical Research Council Medical Research Postgraduate Scholarship","award":["1150242"],"award-info":[{"award-number":["1150242"]}]},{"name":"National Health and Medical Research Council Postgraduate Scholarship","award":["1134203"],"award-info":[{"award-number":["1134203"]}]},{"name":"National Health and Medical Research Council of Australia","award":["1082186"],"award-info":[{"award-number":["1082186"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,12,1]]},"abstract":"<jats:sec>\n                  <jats:title>OBJECTIVES<\/jats:title>\n                  <jats:p\/>\n                  <jats:p>To date, few studies have assessed the quality of life following congenital cardiac surgery. In this study, we aimed at determining the quality of life after truncus arteriosus (TA) repair using the Short Form 36 questionnaire in adult survivors.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>METHODS<\/jats:title>\n                  <jats:p>Seventy-three patients (age\u2005&gt;18 years) who underwent TA repair at the Royal Children\u2019s Hospital, Australia were identified for the study. Of these, 42 patients (58%, 42\/73) participated in the study and completed the Short Form 36 questionnaire. The results of the 8 domains and the derived health state summary score (Short Form Six Dimension, SF-6D) were compared with age-matched Australian population controls, and with patients who underwent the arterial switch operation (ASO).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>RESULTS<\/jats:title>\n                  <jats:p>Compared with the age-matched Australian population, 18- to 24-year-old TA patients (31%, 13\/42) had lower scores in 6 of 8 domains; 25- to 34-year-old TA patients (36%, 15\/42) scored lower in 5 of 8 domains; and 35- to 44-year-old TA patients (33%, 14\/42) scored lower in 4 of 8 domains. SF-6D scores were not significantly different between TA patients and the age-matched Australian population. Compared with patients who underwent ASO, 18-to 24-year-old TA patients scored lower in 3 of 8 domains; and 25- to 34-year-old TA patients scored lower in 2 of 8 domains. There was no significant difference in SF-6D scores between TA and patients who underwent the ASO.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>CONCLUSIONS<\/jats:title>\n                  <jats:p>Adult survivors of TA have similar quality of life compared with age-matched Australian controls measured by SF-6D. Despite a higher reoperation rate in TA patients, they have similar quality of life compared with ASO patients.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/icvts\/ivz198","type":"journal-article","created":{"date-parts":[[2019,7,24]],"date-time":"2019-07-24T07:22:13Z","timestamp":1563952933000},"page":"950-954","source":"Crossref","is-referenced-by-count":5,"title":["Long-term quality of life in adults following truncus arteriosus repair"],"prefix":"10.1093","volume":"29","author":[{"given":"Hilson","family":"Tay","sequence":"first","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Phillip S","family":"Naimo","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5365-7899","authenticated-orcid":false,"given":"Li","family":"Huang","sequence":"additional","affiliation":[{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Centre for Health Policy, University of Melbourne, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9924-7016","authenticated-orcid":false,"given":"Tyson A","family":"Fricke","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Johann","family":"Brink","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yves","family":"d\u2019Udekem","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"},{"name":"Melbourne Children's Centre for Cardiovascular Genomics and Regenerative Medicine, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian P","family":"Brizard","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"},{"name":"Melbourne Children's Centre for Cardiovascular Genomics and Regenerative Medicine, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Igor E","family":"Konstantinov","sequence":"additional","affiliation":[{"name":"Department of Cardiac Surgery, Royal Children\u2019s Hospital, Melbourne, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Melbourne, Australia"},{"name":"Heart Research Group, Murdoch Children\u2019s Research Institute, Melbourne, Australia"},{"name":"Melbourne Children's Centre for Cardiovascular Genomics and Regenerative Medicine, Melbourne, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2019,10,6]]},"reference":[{"key":"2019112510403937600_ivz198-B1","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1097\/00005650-199206000-00002","article-title":"The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection","volume":"30","author":"Ware","year":"1992","journal-title":"Med Care"},{"key":"2019112510403937600_ivz198-B2","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1016\/j.ahj.2004.08.025","article-title":"Biopsychosocial experiences of adults with congenital heart disease: review of the literature","volume":"150","author":"Kovacs","year":"2005","journal-title":"Am Heart J"},{"key":"2019112510403937600_ivz198-B3","doi-asserted-by":"crossref","first-page":"2002","DOI":"10.1016\/j.amjcard.2019.03.011","article-title":"Cardiac denial and expectations associated with depression in adults with congenital heart disease","volume":"123","author":"Huntley","year":"2019","journal-title":"Am J Cardiol"},{"key":"2019112510403937600_ivz198-B4","doi-asserted-by":"crossref","first-page":"500","DOI":"10.1053\/j.semtcvs.2015.08.009","article-title":"Outcomes of truncus arteriosus repair in children: 35 years of experience from a single institution","volume":"28","author":"Naimo","year":"2016","journal-title":"Semin Thorac Cardiovasc Surg"},{"key":"2019112510403937600_ivz198-B5","doi-asserted-by":"crossref","first-page":"524","DOI":"10.1093\/ejcts\/ezy080","article-title":"Impact of truncal valve surgery on the outcomes of truncus arteriosus repair","volume":"54","author":"Naimo","year":"2018","journal-title":"Eur J Cardiothorac Surg"},{"key":"2019112510403937600_ivz198-B6","doi-asserted-by":"crossref","first-page":"1001","DOI":"10.1093\/ejcts\/ezy178","article-title":"Long-term quality of life in adult survivors after the arterial switch operation","volume":"54","author":"Fricke","year":"2018","journal-title":"Eur J Cardiothorac Surg"},{"key":"2019112510403937600_ivz198-B7","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1016\/S0213-9111(05)71393-5","article-title":"Comparison between telephone and self-administration of short form health survey questionnaire (SF-36)","volume":"19","author":"Garcia","year":"2005","journal-title":"Gac Sanit"},{"volume-title":"The Househole, Income and Labour Dynamics in Australia Survey: selected Findings from Waves 1 to 14","year":"2016","author":"Wilkins","key":"2019112510403937600_ivz198-B8"},{"key":"2019112510403937600_ivz198-B9","doi-asserted-by":"crossref","first-page":"1278","DOI":"10.1016\/j.ejcts.2009.12.022","article-title":"Long-term results after correction of persistent truncus arteriosus in 83 patients","volume":"37","author":"Tlaskal","year":"2010","journal-title":"Eur J Cardiothorac Surg"},{"key":"2019112510403937600_ivz198-B10","doi-asserted-by":"crossref","first-page":"508","DOI":"10.1016\/S0022-5223(00)70130-9","article-title":"Repair of the truncal valve and associated interrupted aortic arch in neonates with truncus arteriosus","volume":"119","author":"Jahangiri","year":"2000","journal-title":"J Thorac Cardiovasc Surg"},{"key":"2019112510403937600_ivz198-B11","doi-asserted-by":"crossref","first-page":"172","DOI":"10.1016\/j.athoracsur.2007.07.039","article-title":"Fate of the truncal valve in truncus arteriosus","volume":"85","author":"Henaine","year":"2008","journal-title":"Ann Thorac Surg"},{"key":"2019112510403937600_ivz198-B12","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1016\/j.jtcvs.2009.12.052","article-title":"Long-term follow-up after primary complete repair of common arterial trunk with homograft: a 40-year experience","volume":"140","author":"Vohra","year":"2010","journal-title":"J Thorac Cardiovasc Surg"},{"key":"2019112510403937600_ivz198-B13","doi-asserted-by":"crossref","first-page":"512","DOI":"10.1016\/j.ahj.2013.05.023","article-title":"Morbidity in children and adolescents after surgical correction of truncus arteriosus communis","volume":"166","author":"O\u2019Byrne","year":"2013","journal-title":"Am Heart J"},{"key":"2019112510403937600_ivz198-B14","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/j.athoracsur.2012.03.019","article-title":"Outcomes of the arterial switch operation for transposition of the great arteries: 25 years of experience","volume":"94","author":"Fricke","year":"2012","journal-title":"Ann Thorac Surg"}],"container-title":["Interactive CardioVascular and Thoracic Surgery"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/academic.oup.com\/icvts\/article-pdf\/29\/6\/950\/31117752\/ivz198.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"http:\/\/academic.oup.com\/icvts\/article-pdf\/29\/6\/950\/31117752\/ivz198.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,11,25]],"date-time":"2019-11-25T10:43:00Z","timestamp":1574678580000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/icvts\/article\/29\/6\/950\/5581279"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,10,6]]},"references-count":14,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2019,10,6]]},"published-print":{"date-parts":[[2019,12,1]]}},"URL":"https:\/\/doi.org\/10.1093\/icvts\/ivz198","relation":{},"ISSN":["1569-9285"],"issn-type":[{"type":"electronic","value":"1569-9285"}],"subject":[],"published-other":{"date-parts":[[2019,12]]},"published":{"date-parts":[[2019,10,6]]}}}