{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,25]],"date-time":"2026-10-25T19:28:30Z","timestamp":1792956510768,"version":"4.5.0"},"reference-count":30,"publisher":"Oxford University Press (OUP)","issue":"3","license":[{"start":{"date-parts":[[2023,7,8]],"date-time":"2023-07-08T00:00:00Z","timestamp":1688774400000},"content-version":"vor","delay-in-days":7,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004252","name":"Qatar University","doi-asserted-by":"publisher","award":["IRCC-2020-005"],"award-info":[{"award-number":["IRCC-2020-005"]}],"id":[{"id":"10.13039\/501100004252","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000105","name":"York University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000105","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004252","name":"Qatar University","doi-asserted-by":"publisher","award":["IRCC-2020-005"],"award-info":[{"award-number":["IRCC-2020-005"]}],"id":[{"id":"10.13039\/501100004252","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000105","name":"York University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000105","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,9,19]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>The International Council of Cardiovascular Prevention and Rehabilitation developed an International Cardiac Rehabilitation (CR) Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability. Multimethod observational pilot involves (I) analysis of ICRR data from three centers (Iran, Pakistan, and Qatar) from inception to May 2022, (II) focus group with on-boarded site data stewards (also from Mexico and India), and (III) semistructured interviews with participating patients. Five hundred sixty-seven patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre- and follow-up assessments by source was 6.8\u201312.6\u2009min. Of 22 variables preprogram, completion was 89.5%. Among patients with any follow-up data, of four program-reported variables, completion was 99.0% in program completers and 51.5% in none; of 10 patient-reported variables, completion was 97.0% in program completers and 84.8% in none. The proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of noncompleters having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were good understanding of the registry, positive experience providing data, and value of lay summary and eagerness for annual assessment. Feasibility and data quality of ICRR were demonstrated.<\/jats:p>","DOI":"10.1093\/intqhc\/mzad050","type":"journal-article","created":{"date-parts":[[2023,7,8]],"date-time":"2023-07-08T11:26:53Z","timestamp":1688815613000},"source":"Crossref","is-referenced-by-count":5,"title":["Pilot testing of\u00a0the International Council of\u00a0Cardiovascular Prevention and\u00a0Rehabilitation Registry"],"prefix":"10.1093","volume":"35","author":[{"given":"Sherry L","family":"Grace","sequence":"first","affiliation":[{"name":"School of Kinesiology and Health Science, Faculty of Health, York University , Toronto, ON M3J 1P3, Canada"},{"name":"KITE Research Institute & Peter Munk Cardiac Centre, University Health Network, University of Toronto , Toronto, ON M5S 1A1, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sana","family":"Elashie","sequence":"additional","affiliation":[{"name":"Department of Public Health, College of Health Sciences, QU Health, Qatar University , Doha, Qatar"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4350-3591","authenticated-orcid":false,"given":"Masoumeh","family":"Sadeghi","sequence":"additional","affiliation":[{"name":"Cardiac Rehabilitation Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences , Isfahan, Iran"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Theodoros","family":"Papasavvas","sequence":"additional","affiliation":[{"name":"Department of Cardiology, Heart Hospital, Hamad Medical Corporation , Doha, Qatar"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Farzana","family":"Hashmi","sequence":"additional","affiliation":[{"name":"Department of Rheumatology, Fatima Memorial Hospital & FMH College of Medicine and Dentistry , Lahore, Pakistan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gabriela","family":"de Melo Ghisi","sequence":"additional","affiliation":[{"name":"School of Kinesiology and Health Science, Faculty of Health, York University , Toronto, ON M3J 1P3, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jorge Lara","family":"Vargas","sequence":"additional","affiliation":[{"name":"Servicio de Rehabilitaci\u00f3n Cardiaca, Departamento de Cardiocirug\u00eda, Centro M\u00e9dico Nacional 20 de Noviembre , Ciudad de M\u00e9xico 03104, M\u00e9xico"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mohammed","family":"Al-Hashemi","sequence":"additional","affiliation":[{"name":"Department of Cardiology, Heart Hospital, Hamad Medical Corporation , Doha, Qatar"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karam","family":"Turk-Adawi","sequence":"additional","affiliation":[{"name":"Department of Public Health, College of Health Sciences, QU Health, Qatar University , Doha, Qatar"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2023,7,3]]},"reference":[{"key":"2023092914593346700_R1","volume-title":"Framework for Australian Clinical Quality Registries","author":"Australian Commission on Safety Quality in Health Care","year":"2014"},{"key":"2023092914593346700_R2","doi-asserted-by":"crossref","first-page":"2982","DOI":"10.1016\/j.jacc.2020.11.010","article-title":"Global burden of\u00a0cardiovascular diseases and\u00a0risk factors, 1990\u20132019: update from the GBD 2019 study","volume":"76","author":"Roth","year":"2020","journal-title":"J Am Coll Cardiol"},{"key":"2023092914593346700_R3","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1016\/j.pcad.2016.08.004","article-title":"Cardiac rehabilitation delivery model for\u00a0low-resource settings: an international council of\u00a0cardiovascular prevention and\u00a0rehabilitation consensus statement","volume":"59","author":"Grace","year":"2016","journal-title":"Prog Cardiovasc Dis"},{"key":"2023092914593346700_R4","article-title":"Exercise-based cardiac rehabilitation for\u00a0coronary heart disease","volume":"11","author":"Dibben","year":"2021","journal-title":"Cochrane Database Syst Rev"},{"key":"2023092914593346700_R5","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1016\/j.pcad.2021.07.004","article-title":"Effects of\u00a0cardiac rehabilitation in\u00a0low-and middle-income countries: a systematic review and\u00a0meta-analysis of\u00a0randomised controlled trials","volume":"70","author":"Mamataz","year":"2022","journal-title":"Prog Cardiovasc Dis"},{"key":"2023092914593346700_R6","doi-asserted-by":"crossref","first-page":"1806","DOI":"10.1136\/heartjnl-2018-314486","article-title":"Cardiac rehabilitation delivery in\u00a0low\/middle-income countries","volume":"105","author":"Pesah","year":"2019","journal-title":"Heart"},{"key":"2023092914593346700_R7","doi-asserted-by":"crossref","first-page":"1596","DOI":"10.1177\/2047487317724576","article-title":"A systematic review of\u00a0cardiac rehabilitation registries","volume":"24","author":"Poffley","year":"2017","journal-title":"Eur J Prev Cardiol"},{"key":"2023092914593346700_R8","article-title":"China Society of\u00a0Cardio-Pulmonary Prevention & Rehabilitation CACPR"},{"key":"2023092914593346700_R9","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1016\/j.eclinm.2019.06.007","article-title":"Cardiac rehabilitation availability and\u00a0density around the globe","volume":"13","author":"Turk-Adawi","year":"2019","journal-title":"EClinicalMedicine"},{"key":"2023092914593346700_R10","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1097\/HCR.0b013e318284ec82","article-title":"International charter on\u00a0cardiovascular prevention and\u00a0rehabilitation: a call for\u00a0action","volume":"33","author":"Grace","year":"2013","journal-title":"J Cardiopulm Rehab Prev"},{"key":"2023092914593346700_R11","doi-asserted-by":"crossref","DOI":"10.5334\/gh.1091","article-title":"Development of\u00a0the international cardiac rehabilitation registry including variable selection and\u00a0definition process","volume":"17","author":"Chowdhury","year":"2022","journal-title":"Glob Heart"},{"key":"2023092914593346700_R12","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2022-064255","article-title":"Qualitative study measuring the usability of\u00a0the international cardiac rehabilitation registry","volume":"12","author":"Abukhadijah","year":"2022","journal-title":"BMJ Open"},{"key":"2023092914593346700_R13","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0183667","article-title":"Impact of\u00a0clinical registries on\u00a0quality of\u00a0patient care and\u00a0clinical outcomes: a systematic 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