{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T18:46:10Z","timestamp":1774896370478,"version":"3.50.1"},"reference-count":26,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2022,12,15]],"date-time":"2022-12-15T00:00:00Z","timestamp":1671062400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,3,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Hidradenitis suppurativa (HS) can significantly impact quality of life. Reddit allows users with common interests, like HS, to form a community and share information. This has become increasingly important with pandemic-related social isolation. We administered a survey from May 2021 to July 2021 to characterize patients with HS use of Reddit and social media more broadly before and during the COVID-19 pandemic. An analysis of a popular HS support page on Reddit from January 2019 to August 2021 was also conducted, analyzing subscribers over time. The rate of subscriber increase was higher before the pandemic. Of 42 patients contacted, 20 patients enrolled (90% female, mean age of 32.4 years) and 18 of the 20 fully completed the survey that was administered. Participants were stratified into two groups: online support group users (n = 8) and nonusers (n = 12). There were no differences in sex, age, education level, antidepressant usage, and overall social media usage between these groups. However, there was a difference in Hurley staging, with more than four times as many users reporting a Hurley III staging compared to nonusers (p = .003). Nonusers ranked the following as desired features of a social media group more frequently than current users: bandaging\/dressing boils, living with HS, medical advice from professionals, causes of HS, and diet (P = .047, P = .043, P = .043, P = .047, and P = .013, respectively). This study demonstrates that online support group use is associated with HS of higher clinical severity. Based on the needs\/expectations identified in this study, recommendations can be made to providers to help fill any lacunae in clinical care.<\/jats:p>","DOI":"10.1093\/jbcr\/irac183","type":"journal-article","created":{"date-parts":[[2022,12,15]],"date-time":"2022-12-15T23:20:51Z","timestamp":1671146451000},"page":"373-380","source":"Crossref","is-referenced-by-count":4,"title":["Hidradenitis Suppurativa Reddit Support Group: Finding New Meaning in Social Media During the COVID-19 Pandemic"],"prefix":"10.1093","volume":"44","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3651-716X","authenticated-orcid":false,"given":"Lekha V","family":"Yesantharao","sequence":"first","affiliation":[{"name":"Department of Plastic & Reconstructive Surgery, Johns Hopkins Hospital , Baltimore, MD 21205 , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachana","family":"Suresh","sequence":"additional","affiliation":[{"name":"Department of Plastic & Reconstructive Surgery, Johns Hopkins Hospital , Baltimore, MD 21205 , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sheera F","family":"Lerman","sequence":"additional","affiliation":[{"name":"Department of Plastic & Reconstructive Surgery, Johns Hopkins Hospital , Baltimore, MD 21205 , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carrie","family":"Cox","sequence":"additional","affiliation":[{"name":"Department of Plastic & Reconstructive Surgery, Johns Hopkins Hospital , Baltimore, MD 21205 , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Caffrey","sequence":"additional","affiliation":[{"name":"Department of Plastic & Reconstructive Surgery, Johns Hopkins Hospital , Baltimore, MD 21205 , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2022,12,15]]},"reference":[{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"2019","DOI":"10.1001\/jama.2017.16691","article-title":"Hidradenitis Suppurativa: advances in diagnosis and treatment","volume":"318","author":"Saunte","year":"2017","journal-title":"JAMA"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"328","DOI":"10.2340\/00015555-1082","article-title":"Psychosocial impact of hidradenitis suppurativa: a qualitative study","volume":"91","author":"Esmann","year":"2011","journal-title":"Acta Derm Venereol"},{"key":"2023030304332803700_","first-page":"1723","article-title":"Hidradenitis suppurativa: causes, features, and current treatments","volume":"11","author":"Vinkel","year":"2018","journal-title":"J Clin Aesthet Dermatol"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1016\/j.jid.2017.09.008","article-title":"Increased suicide risk in patients with hidradenitis suppurativa","volume":"138","author":"Thorlacius","year":"2018","journal-title":"J Invest Dermatol"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1590\/abd1806-4841.20197687","article-title":"Clinical manifestations and quality of life in hidradenitis suppurativa patients: survey of participants from an internet support group","volume":"94","author":"Tavora","year":"2019","journal-title":"An Bras Dermatol"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1111\/j.1468-3083.2012.04468.x","article-title":"Depression in patients with hidradenitis suppurativa","volume":"27","author":"Onderdijk","year":"2013","journal-title":"J Eur Acad Dermatol Venereol"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"421","DOI":"10.1007\/s00403-019-02027-3","article-title":"Hidradenitis suppurativa on Facebook: thematic and content analyses of patient support group","volume":"312","author":"Fisher","year":"2020","journal-title":"Arch Dermatol Res"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","first-page":"216","DOI":"10.1016\/j.jaad.2019.09.023","article-title":"Support group utilization and impact for patients with hidradenitis suppurativa","volume":"83","author":"Butt","year":"2020","journal-title":"J Am Acad Dermatol"},{"key":"2023030304332803700_","doi-asserted-by":"crossref","DOI":"10.5070\/D3272052396","article-title":"Hidradenitis suppurativa patient perspectives during the COVID-19 pandemic","volume":"27","author":"Price","year":"2021","journal-title":"Dermatol Online J"},{"key":"2023030304332803700_","volume-title":"Reddit Claims 52 Million Daily Users, Revealing a Key Figure for Social-Media Platforms - 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