{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T20:52:52Z","timestamp":1792011172487,"version":"4.4.0"},"reference-count":68,"publisher":"Oxford University Press (OUP)","issue":"4","license":[{"start":{"date-parts":[[2024,6,16]],"date-time":"2024-06-16T00:00:00Z","timestamp":1718496000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"National Science Center, Poland","award":["2023\/49\/N\/HS1\/01023"],"award-info":[{"award-number":["2023\/49\/N\/HS1\/01023"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,9,20]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>In this article, we explore ethical issues of Deaf people\u2019s engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers which resulted in 27 eligible papers. We analyzed the data using thematic synthesis and developed 5 analytical themes. The results present research as a struggle for Deaf people and emphasize the need for changes regarding recognition of Deaf research in a cross-cultural context, maintaining equal and partner relations, and provision of accessible communication. Our research contributes to understanding what the ethical inclusion of Deaf people in research implies. It may also support the development of evidence-based normative recommendations and scientific cooperation between Deaf and hearing people.<\/jats:p>","DOI":"10.1093\/jdsade\/enae024","type":"journal-article","created":{"date-parts":[[2024,5,31]],"date-time":"2024-05-31T20:45:14Z","timestamp":1717188314000},"page":"443-455","source":"Crossref","is-referenced-by-count":21,"title":["Ethics of research engagement with Deaf people. A qualitative evidence synthesis"],"prefix":"10.1093","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3093-2584","authenticated-orcid":false,"given":"Tomasz","family":"Krawczyk","sequence":"first","affiliation":[{"name":"Department of Philosophy and Bioethics , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Jagiellonian University Medical College , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Research Ethics in Medicine Study Group (REMEDY), Jagiellonian University Medical College , Krakow,","place":["Poland"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1298-736X","authenticated-orcid":false,"given":"Jan","family":"Piasecki","sequence":"additional","affiliation":[{"name":"Department of Philosophy and Bioethics , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Jagiellonian University Medical College , Faculty of Health Sciences, , Krakow,","place":["Poland"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9523-8254","authenticated-orcid":false,"given":"Mateusz","family":"Wasylewski","sequence":"additional","affiliation":[{"name":"Department of Philosophy and Bioethics , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Jagiellonian University Medical College , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Research Ethics in Medicine Study Group (REMEDY), Jagiellonian University Medical College , Krakow,","place":["Poland"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1553-1416","authenticated-orcid":false,"given":"Marcin","family":"Waligora","sequence":"additional","affiliation":[{"name":"Department of Philosophy and Bioethics , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Jagiellonian University Medical College , Faculty of Health Sciences, , Krakow,","place":["Poland"]},{"name":"Research Ethics in Medicine Study Group (REMEDY), Jagiellonian University Medical College , Krakow,","place":["Poland"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2024,6,16]]},"reference":[{"issue":"1","key":"2024103013361547900_ref1","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1186\/s12874-019-0665-4","article-title":"Purposive sampling in a qualitative evidence synthesis: A worked example from a synthesis on parental perceptions of vaccination communication","volume":"19","author":"Ames","year":"2019","journal-title":"BMC Medical Research Methodology"},{"issue":"1","key":"2024103013361547900_ref2","doi-asserted-by":"crossref","first-page":"118","DOI":"10.1093\/deafed\/enw066","article-title":"Barriers and facilitators to deaf trauma survivors\u2019 help-seeking behavior: Lessons for behavioral clinical trials 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