{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T15:21:09Z","timestamp":1790349669593,"version":"4.1.0"},"reference-count":31,"publisher":"Oxford University Press (OUP)","issue":"7","license":[{"start":{"date-parts":[[2020,12,30]],"date-time":"2020-12-30T00:00:00Z","timestamp":1609286400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"National Cancer Institute (NCI) of the National Institutes of Health","award":["R01CA204267"],"award-info":[{"award-number":["R01CA204267"]}]},{"name":"National Cancer Institute (NCI) of the National Institutes of Health","award":["P50CA244289"],"award-info":[{"award-number":["P50CA244289"]}]},{"DOI":"10.13039\/100000054","name":"NCI","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>Many cancer survivors receive primary care in community health centers (CHCs). Cancer history is an important factor to consider in the provision of primary care, yet little is known about the completeness or accuracy of cancer history data contained in CHC electronic health records (EHRs).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>We probabilistically linked EHR data from more than1.5 million adult CHC patients to state cancer registries in California, Oregon, and Washington and estimated measures of agreement (eg, kappa, sensitivity, specificity). We compared demographic and clinical characteristics of cancer patients as estimated by each data source, evaluating distributional differences with absolute standardized mean differences.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>A total 74\u2009707 cancer patients were identified between the 2 sources (EHR only, n\u2009=\u200922\u2009730; registry only, n\u2009=\u200923\u2009616; both, n\u2009=\u200928\u2009361). Nearly one-half of cancer patients identified in registries were missing cancer documentation in the EHR. Overall agreement of cancer ascertainment in the EHR vs cancer registries (gold standard) was moderate (kappa\u2009=\u20090.535). Cancer site\u2013specific agreement ranged from substantial (eg, prostate and female breast; kappa &amp;gt; 0.60) to fair (melanoma and cervix; kappa &amp;lt; 0.40). Comparing population characteristics of cancer patients as ascertained from each data source, groups were similar for sex, age, and federal poverty level, but EHR-recorded cases showed greater medical complexity than those ascertained from cancer registries.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>Agreement between EHR and cancer registry data was moderate and varied by cancer site. These findings suggest the need for strategies to improve capture of cancer history information in CHC EHRs to ensure adequate delivery of care and optimal health outcomes for cancer survivors.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jnci\/djaa210","type":"journal-article","created":{"date-parts":[[2020,12,17]],"date-time":"2020-12-17T18:02:16Z","timestamp":1608228136000},"page":"924-932","source":"Crossref","is-referenced-by-count":23,"title":["Assessing Cancer History Accuracy in Primary Care Electronic Health Records Through Cancer Registry Linkage"],"prefix":"10.1093","volume":"113","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7941-254X","authenticated-orcid":false,"given":"Megan","family":"Hoopes","sequence":"first","affiliation":[{"name":"OCHIN, Inc, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3575-5529","authenticated-orcid":false,"given":"Robert","family":"Voss","sequence":"additional","affiliation":[{"name":"OCHIN, Inc, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather","family":"Angier","sequence":"additional","affiliation":[{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0066-4478","authenticated-orcid":false,"given":"Miguel","family":"Marino","sequence":"additional","affiliation":[{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2434-8223","authenticated-orcid":false,"given":"Teresa","family":"Schmidt","sequence":"additional","affiliation":[{"name":"OCHIN, Inc, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer E","family":"DeVoe","sequence":"additional","affiliation":[{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeffrey","family":"Soule","sequence":"additional","affiliation":[{"name":"Oregon State Cancer Registry, Oregon Health Authority, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie","family":"Huguet","sequence":"additional","affiliation":[{"name":"Department of Family Medicine, Oregon Health and Science University, Portland, OR, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2020,12,30]]},"reference":[{"issue":"2","key":"2021070111240527900_djaa210-B1","doi-asserted-by":"crossref","first-page":"239","DOI":"10.1007\/s11764-014-0403-1","article-title":"The complex health profile of long-term cancer survivors: prevalence and predictors of comorbid conditions","volume":"9","author":"Leach","year":"2015","journal-title":"J Cancer Surviv"},{"key":"2021070111240527900_djaa210-B2","volume-title":"From Cancer Patient to Cancer Survivor: Lost in Transition","year":"2006"},{"issue":"22","key":"2021070111240527900_djaa210-B3","doi-asserted-by":"crossref","first-page":"5284","DOI":"10.1002\/cncr.24624","article-title":"Care of long-term cancer survivors: physicians seen by Medicare enrollees surviving longer than 5 years","volume":"115","author":"Pollack","year":"2009","journal-title":"Cancer"},{"issue":"12","key":"2021070111240527900_djaa210-B4","doi-asserted-by":"crossref","first-page":"911","DOI":"10.14740\/jocmr3617w","article-title":"Comparison of comorbid conditions between cancer survivors and age-matched patients without cancer","volume":"10","author":"Roy","year":"2018","journal-title":"J Clin Med Res"},{"issue":"5","key":"2021070111240527900_djaa210-B5","doi-asserted-by":"crossref","first-page":"764","DOI":"10.1136\/amiajnl-2013-002229","article-title":"Electronic health record functionality needed to better support primary care","volume":"21","author":"Krist","year":"2014","journal-title":"J Am Med Inform Assoc"},{"issue":"9","key":"2021070111240527900_djaa210-B6","doi-asserted-by":"crossref","first-page":"e012669","DOI":"10.1136\/bmjopen-2016-012669","article-title":"Do GPs know their patients with cancer? 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