{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T11:01:16Z","timestamp":1784804476754,"version":"3.55.0"},"reference-count":0,"publisher":"Oxford University Press (OUP)","license":[{"start":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T00:00:00Z","timestamp":1784764800000},"content-version":"am","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Research impacts are typically measured by academic indicators and standards. These indicators often do not capture translational or purposeful benefits to society, in particular patients and caregivers. In this workshop, we aimed to identify impacts of research that are important to people with chronic kidney disease, caregivers and health professionals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We held a national workshop with ten breakout groups involving patients, caregivers and health professionals from Australia and New Zealand, to discuss the importance of research impact. The transcripts were thematically analyzed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In total, 81 participants including patients, caregivers (n=27) and health professionals (n=54). We identified seven themes with research impact: preventing kidney disease and kidney failure; enhancing life participation and wellbeing (reducing symptoms and complications, prioritizing mental health, minimizing the burden of treatment); fostering societal understanding; improving access to care (reducing geographical barriers, and promoting advocacy for financial support); strengthening agency in decision making; achieving treatment breakthroughs including finding a cure, and making innovative advancements in dialysis technology; and offering hope for future generations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The impacts of research most important to patients and caregivers are those with a tangible and immediate influences on day-to-day life enabling an improved quality of life by addressing challenges, burden and hope for treatment advancements. We suggest that researchers and health professionals ensure all future research is grounded in a person-centered approach to enable impactful research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/joneph\/aajag205","type":"journal-article","created":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T12:03:19Z","timestamp":1784721799000},"source":"Crossref","is-referenced-by-count":0,"title":["Impacts of research that are meaningful to people with chronic kidney disease and their caregivers: a workshop report"],"prefix":"10.1093","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-5512-0333","authenticated-orcid":false,"given":"Anastasia","family":"Hughes","sequence":"first","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Wu","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allison","family":"Jaure","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-5789-8180","authenticated-orcid":false,"given":"Dale","family":"Coghlan","sequence":"additional","affiliation":[{"name":"Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University , Bedford Park, South Australia ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1632-6462","authenticated-orcid":false,"given":"Noa","family":"Amir","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hayley","family":"Candler","sequence":"additional","affiliation":[{"name":"Australasian Kidney Trials Network (AKTN), Faculty of Medicine, The University of Queensland , Brisbane, Queensland ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brydee","family":"Cashmore","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yeoungjee","family":"Cho","sequence":"additional","affiliation":[{"name":"Australasian Kidney Trials Network (AKTN), Faculty of Medicine, The University of Queensland , Brisbane, Queensland ,","place":["Australia"]},{"name":"Department of Kidney and Transplant Services, Princess Alexandra Hospital , Brisbane, Queensland ,","place":["Australia"]},{"name":"Faculty of Medicine, The University of Queensland , Brisbane ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan C","family":"Craig","sequence":"additional","affiliation":[{"name":"Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University , Bedford Park, South Australia ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosanna","family":"Cazzolli","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chandana","family":"Guha","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carmel M","family":"Hawley","sequence":"additional","affiliation":[{"name":"Australasian Kidney Trials Network (AKTN), Faculty of Medicine, The University of Queensland , Brisbane, Queensland ,","place":["Australia"]},{"name":"Department of Kidney and Transplant Services, Princess Alexandra Hospital , Brisbane, Queensland ,","place":["Australia"]},{"name":"Faculty of Medicine, The University of Queensland , Brisbane ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amandi","family":"Hiyare-Hewage","sequence":"additional","affiliation":[{"name":"Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University , Bedford Park, South Australia ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9740-712X","authenticated-orcid":false,"given":"Martin","family":"Howell","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW ,","place":["Australia"]},{"name":"Leeder 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Brisbane ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3214-3682","authenticated-orcid":false,"given":"Dominic","family":"Keuskamp","sequence":"additional","affiliation":[{"name":"Faculty of Health and Medical Sciences, University of Adelaide , Adelaide, South Australia ,","place":["Australia"]},{"name":"Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), South Australian Health & Medical Research Institute (SAHMRI) , Adelaide, South Australia ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0552-6074","authenticated-orcid":false,"given":"Karine","family":"Manera","sequence":"additional","affiliation":[{"name":"School of Public Health, The University of Sydney , Sydney, NSW ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children's Hospital at Westmead , Sydney, NSW 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