{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T23:31:14Z","timestamp":1782862274121,"version":"3.54.5"},"reference-count":59,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2020,4,26]],"date-time":"2020-04-26T00:00:00Z","timestamp":1587859200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000118","name":"Office of Behavioral and Social Sciences Research","doi-asserted-by":"publisher","award":["R01 NR016235"],"award-info":[{"award-number":["R01 NR016235"]}],"id":[{"id":"10.13039\/100000118","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["R01 HD048629"],"award-info":[{"award-number":["R01 HD048629"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]},{"name":"March of Dimes Birth Defects Foundation","award":["12-FY13-271"],"award-info":[{"award-number":["12-FY13-271"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Achieving condition-related autonomy is an important developmental milestone for youth with spina bifida (SB). However, the transfer of condition-related responsibility to these youth can be delayed due to parent factors. This study aimed to investigate two potential pathways by which maternal factors may be associated with condition-related responsibility among youth with SB: (a) Maternal adjustment \u2192 perception of child vulnerability (PPCV) \u2192 youth condition-related responsibility; and (b) Maternal PPCV \u2192 overprotection \u2192 youth condition-related responsibility.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participating youth with SB (N\u2009=\u2009140; Mage=11.4\u2009years, range\u2009=\u20098\u201315\u2009years) were recruited as part of a longitudinal study; data from three time points (each spaced 2 years apart) from the larger study were used. Mothers reported on personal adjustment factors, PPCV, and overprotection. An observational measure of overprotection was also included. Mothers, fathers, and youth with SB reported on youths\u2019 degree of responsibility for condition-related tasks. Analyses included age, lesion level, IQ, and the dependent variables at the prior wave as covariates.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Bootstrapped mediation analyses revealed that PPCV significantly mediated the relationship between maternal distress and youth responsibility for medical tasks such that higher levels of distress at Time 1 predicted higher levels of PPCV at Time 2 and lower youth medical responsibility at Time 3. Furthermore, self-reported maternal overprotection significantly mediated the relationship between maternal PPCV and youth responsibility for medical tasks.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Maternal personal distress, PPCV, and self-reported overprotection are interrelated and affect youth\u2019s condition-related responsibility. Interventions for mothers of youth with SB that target these factors may improve both maternal and youth outcomes.<\/jats:p><\/jats:sec>","DOI":"10.1093\/jpepsy\/jsaa020","type":"journal-article","created":{"date-parts":[[2020,3,18]],"date-time":"2020-03-18T04:39:18Z","timestamp":1584506358000},"page":"610-621","source":"Crossref","is-referenced-by-count":11,"title":["Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility"],"prefix":"10.1093","volume":"45","author":[{"given":"Colleen F Bechtel","family":"Driscoll","sequence":"first","affiliation":[{"name":"Psychology Department, Loyola University Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana M","family":"Ohanian","sequence":"first","affiliation":[{"name":"Psychology Department, Loyola University Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique M","family":"Ridosh","sequence":"first","affiliation":[{"name":"Marcella Niehoff School 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