{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T12:05:13Z","timestamp":1753877113241,"version":"3.41.2"},"reference-count":49,"publisher":"Oxford University Press (OUP)","license":[{"start":{"date-parts":[[2024,6,10]],"date-time":"2024-06-10T00:00:00Z","timestamp":1717977600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01HD074579"],"award-info":[{"award-number":["R01HD074579"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Vaughn Vennerberg II Endowment"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>The present study aimed to identify distinct trajectories of parental illness uncertainty among parents of children born with atypical genital appearance due to a difference of sex development over the first year following diagnosis. It was hypothesized that four trajectory classes would emerge, including \u201clow stable,\u201d \u201chigh stable,\u201d \u201cdecreasing,\u201d and \u201cincreasing\u201d classes, and that select demographic, familial, and medical factors would predict these classes.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>Participants included 56 mothers and 43 fathers of 57 children born with moderate to severe genital atypia. Participants were recruited from eleven specialty clinics across the U.S. Growth mixture modeling (GMM) approaches, controlling for parent dyad clustering, were conducted to examine classes of parental illness uncertainty ratings over time.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>A three-class GMM was identified as the best-fitting model. The three classes were interpreted as \u201cmoderate stable\u201d (56.8%), \u201clow stable\u201d (33.0%), and \u201cdeclining\u201d (10.3%). Findings suggest possible diagnostic differences across trajectories.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>Findings highlight the nature of parents\u2019 perceptions of ambiguity and uncertainty about their child\u2019s diagnosis and treatment the year following their child\u2019s birth\/diagnosis. Future research is needed to better understand how these trajectories might shift over the course of the child\u2019s development. Results support the development of tailored, evidence-based interventions to address coping with uncertainty among families raising a child with chronic health needs.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/jpepsy\/jsae043","type":"journal-article","created":{"date-parts":[[2024,6,10]],"date-time":"2024-06-10T19:47:13Z","timestamp":1718048833000},"source":"Crossref","is-referenced-by-count":0,"title":["Trajectories of illness uncertainty among parents of children with atypical genital appearance due to differences of sex development"],"prefix":"10.1093","author":[{"given":"Katherine A","family":"Traino","sequence":"first","affiliation":[{"name":"Department of Psychology, Center for Pediatric Psychology, Oklahoma State University , Stillwater, OK, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0340-580X","authenticated-orcid":false,"given":"Lucia M","family":"Ciciolla","sequence":"additional","affiliation":[{"name":"Department of Psychology, Center for Pediatric Psychology, Oklahoma State University , Stillwater, OK, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Megan N","family":"Perez","sequence":"additional","affiliation":[{"name":"Division of Oncology, The Children's Hospital of Philadelphia , Philadelphia, PA, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John M","family":"Chaney","sequence":"additional","affiliation":[{"name":"Department of Psychology, Center for Pediatric Psychology, Oklahoma State University , Stillwater, OK, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ginger","family":"Welch","sequence":"additional","affiliation":[{"name":"Department of Human Development and Family Sciences, Oklahoma State University , Stillwater, OK, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laurence S","family":"Baskin","sequence":"additional","affiliation":[{"name":"Department of Urology, University of California San Francisco Medical Center , San Francisco, CA, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cindy L","family":"Buchanan","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, University of Colorado Anschutz Medical Campus , Aurora, CO, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yee-Ming","family":"Chan","sequence":"additional","affiliation":[{"name":"Division of Endocrinology, and Harvard Medical School, Boston Children\u2019s Hospital , Boston, MA, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Earl Y","family":"Cheng","sequence":"additional","affiliation":[{"name":"Department of Urology, Ann & Robert H. 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