{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,2]],"date-time":"2026-01-02T07:25:08Z","timestamp":1767338708120,"version":"build-2065373602"},"reference-count":50,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2025,7,11]],"date-time":"2025-07-11T00:00:00Z","timestamp":1752192000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","award":["R01 NR016235"],"award-info":[{"award-number":["R01 NR016235"]}],"id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["R01 HD048629"],"award-info":[{"award-number":["R01 HD048629"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]},{"name":"March of Dimes Birth Defects Foundation","award":["12-FY13-271"],"award-info":[{"award-number":["12-FY13-271"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,8,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study provided descriptive, psychometric, and correlational data on activity involvement, including engagement with and adherence to medical care activities, using the daily phone diary (DPD) methodology within the context of an ongoing longitudinal study of adolescents and young adults (AYAs) with spina bifida (SB).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>As part of a longitudinal study, AYAs with SB aged 16\u201324 at Time 5 (n\u2009=\u200968) and aged 19\u201326 at Time 6 (n\u2009=\u200975) completed a DPD across 3\u2009days, along with measures of demographics, condition severity, and medically related psychosocial constructs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Findings revealed that AYAs spent roughly two-thirds of their time either sleeping or engaged in recreational activities in their homes. They were more likely to spend time at home (with 50% of this time engaged in less active activities such as TV watching) and less time engaged in school and work activities than has been found in AYAs with other chronic medical conditions. Participants were also more likely to report low rates of catheterization, suggesting adherence challenges. The DPD method showed satisfactory stability over time. DPD data on medical care activities demonstrated adequate convergent validity as well as correlations with lesion level and measures of medical responsibility and medical skill mastery.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study supports the use of the DPD method to assess engagement with and adherence to medical care activities in AYAs with SB. It also provides an assessment of engagement in other activities, such as in-home recreation and out-of-home school- and work-related activities.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/jpepsy\/jsaf043","type":"journal-article","created":{"date-parts":[[2025,5,6]],"date-time":"2025-05-06T07:45:12Z","timestamp":1746517512000},"page":"820-830","source":"Crossref","is-referenced-by-count":1,"title":["The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence"],"prefix":"10.1093","volume":"50","author":[{"given":"Grayson N","family":"Holmbeck","sequence":"first","affiliation":[{"name":"Department of Psychology, Loyola University Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7739-8967","authenticated-orcid":false,"given":"Olivia","family":"Clark","sequence":"additional","affiliation":[{"name":"Department of Psychology, Loyola University Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Taylor","family":"Hilderbrand","sequence":"additional","affiliation":[{"name":"Department of Psychology, Loyola University Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1506-4416","authenticated-orcid":false,"given":"Tessa","family":"Kritikos","sequence":"additional","affiliation":[{"name":"Department of Psychology, Loyola University Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexandra M","family":"Psihogios","sequence":"additional","affiliation":[{"name":"Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University , Chicago, IL,","place":["United States"]},{"name":"Department of Pediatrics, Feinberg School of Medicine, Northwestern University , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Monique","family":"Ridosh","sequence":"additional","affiliation":[{"name":"Marcella Niehoff School of Nursing, Loyola University of Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6759-8380","authenticated-orcid":false,"given":"Colleen","family":"Stiles-Shields","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, College of Medicine, Institute for Juvenile Research, University of Illinois Chicago , Chicago, IL,","place":["United States"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2025,7,11]]},"reference":[{"key":"2025102404214527800_jsaf043-B1","doi-asserted-by":"crossref","first-page":"106357","DOI":"10.1016\/j.ypmed.2020.106357","article-title":"Disentangling individual, school, and neighborhood effects on screen time among adolescents and young adults in the United States","volume":"142","author":"Abdel Magid","year":"2021","journal-title":"Preventive Medicine"},{"key":"2025102404214527800_jsaf043-B2","doi-asserted-by":"crossref","first-page":"477","DOI":"10.1093\/jpepsy\/15.4.477","article-title":"Assessing family sharing of diabetes responsibilities","volume":"15","author":"Anderson","year":"1990","journal-title":"Journal of Pediatric Psychology"},{"key":"2025102404214527800_jsaf043-B3","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1109\/MPRV.2020.2993993","article-title":"Leveraging mobile sensing to understand and develop intervention strategies to improve medication adherence","volume":"19","author":"Baglione","year":"2020","journal-title":"IEEE Pervasive Computing"},{"key":"2025102404214527800_jsaf043-B4","doi-asserted-by":"crossref","first-page":"e35472","DOI":"10.1016\/j.heliyon.2024.e35472","article-title":"Use of smartphone sensor data in detecting and predicting depression and anxiety in young people (12-25 years): A scoping review","volume":"10","author":"Beames","year":"2024","journal-title":"Heliyon"},{"key":"2025102404214527800_jsaf043-B5","doi-asserted-by":"crossref","first-page":"303","DOI":"10.3233\/PRM-2008-00047","article-title":"Barriers to community participation: Teens and young adults with spina bifida","volume":"1","author":"Boudos","year":"2008","journal-title":"Journal of Pediatric Rehabilitation Medicine"},{"volume-title":"American time use survey news release [2014\u20132022 Results]","year":"2024","author":"Bureau of Labor Statistics","key":"2025102404214527800_jsaf043-B6"},{"key":"2025102404214527800_jsaf043-B7","doi-asserted-by":"crossref","first-page":"15007","DOI":"10.1038\/nrdp.2015.7","article-title":"Spina bifida","volume":"1","author":"Copp","year":"2015","journal-title":"Nature reviews. 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