{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T10:35:44Z","timestamp":1789641344072,"version":"4.0.0"},"reference-count":57,"publisher":"Oxford University Press (OUP)","issue":"1","license":[{"start":{"date-parts":[[2025,9,30]],"date-time":"2025-09-30T00:00:00Z","timestamp":1759190400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100000057","name":"National Institute of General Medical Sciences","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000057","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U54-GM104941"],"award-info":[{"award-number":["U54-GM104941"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,1,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To gather parents\u2019 perspectives on the experiences of siblings of young children with congenital heart disease (CHD), the impact of CHD on siblings, and the types of resources and supports they need to adjust to CHD within their family.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A community advisory council guided the study. Parents of children with CHD, currently 1\u20137\u2009years old, who had surgery in their first year of life, were eligible for participation if they were fluent in written English and had internet access. Recruitment through several CHD-specific nonprofit organizations produced a national sample of parents (N\u2009=\u2009108). Of the 73 who had non-bereaved heart-healthy children, 59 (81%) provided sibling-relevant data for this study. Most parents were non-Hispanic White (n\u2009=\u200954; 91.5%) mothers (n\u2009=\u200941; 69.5%; Mage\u2009=\u200936.10; SDage\u2009=\u20095.0) reporting on siblings older than the child with CHD (n\u2009=\u200944; 74.6%). Data were qualitative, collected through crowdsourcing, and coded to distill themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Three themes emerged: (1) CHD directly affects siblings\u2019 psychosocial functioning and daily activities, (2) CHD alters roles and relationships within the family, with impacts to siblings, and (3) families seek and appreciate support for heart-healthy siblings from extended family and friends, the healthcare team, and the community, but resources are variable.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Parents described specific ways that CHD impacts their heart-healthy children, including their psychosocial functioning, role in the family, and support from the community. Findings highlight the need for family-centered care in CHD, including screening to identify siblings at risk for psychosocial difficulties and provision of appropriate supports to meet sibling and family needs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/jpepsy\/jsaf089","type":"journal-article","created":{"date-parts":[[2025,9,16]],"date-time":"2025-09-16T11:39:58Z","timestamp":1758022798000},"page":"44-54","source":"Crossref","is-referenced-by-count":3,"title":["Siblings of young children with congenital heart disease: parent perspectives from a crowdsourcing study"],"prefix":"10.1093","volume":"51","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2194-111X","authenticated-orcid":false,"given":"Christina M","family":"Amaro","sequence":"first","affiliation":[{"name":"Center for Healthcare Delivery Science, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0508-1693","authenticated-orcid":false,"given":"Melissa A","family":"Alderfer","sequence":"additional","affiliation":[{"name":"Center for Healthcare Delivery Science, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]},{"name":"Sidney Kimmel Medical College, Thomas Jefferson University , Philadelphia, PA,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2756-2583","authenticated-orcid":false,"given":"Sarah E","family":"Wawrzynski","sequence":"additional","affiliation":[{"name":"Center for Healthcare Delivery Science, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3892-9424","authenticated-orcid":false,"given":"Jennifer","family":"Christofferson","sequence":"additional","affiliation":[{"name":"Center for Healthcare Delivery Science, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4546-0591","authenticated-orcid":false,"given":"Linda G","family":"McWhorter","sequence":"additional","affiliation":[{"name":"Division of Behavioral Health, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abigail C","family":"Demianczyk","sequence":"additional","affiliation":[{"name":"Cardiac Center, Children\u2019s Hospital of Philadelphia , Philadelphia, PA,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0553-0855","authenticated-orcid":false,"given":"Anne E","family":"Kazak","sequence":"additional","affiliation":[{"name":"Center for Healthcare Delivery Science, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]},{"name":"Sidney Kimmel Medical College, Thomas Jefferson University , Philadelphia, PA,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8817-4213","authenticated-orcid":false,"given":"Erica","family":"Sood","sequence":"additional","affiliation":[{"name":"Sidney Kimmel Medical College, Thomas Jefferson University , Philadelphia, PA,","place":["United States"]},{"name":"Nemours Cardiac Center, Nemours Children\u2019s Health , Wilmington, DE,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2025,9,30]]},"reference":[{"key":"2026022613411694500_jsaf089-B1","doi-asserted-by":"publisher","first-page":"688","DOI":"10.1093\/jpepsy\/jsad033","article-title":"Trajectories of traumatic stress symptoms among siblings of children with cancer: The first two years post-diagnosis","volume":"48","author":"Alderfer","year":"2023","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B2","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1177\/27527530221121727","article-title":"Bringing together a transdisciplinary team to create and advance a shared vision for research and support for siblings of youth with cancer","volume":"40","author":"Amaro","year":"2023","journal-title":"Journal of Pediatric Hematology\/Oncology Nursing"},{"key":"2026022613411694500_jsaf089-B3","doi-asserted-by":"publisher","first-page":"90","DOI":"10.3978\/j.issn.2224-4336.2013.06.02","article-title":"Long term psychosocial outcomes of congenital heart disease (CHD) in adolescents and young adults","volume":"2","author":"Areias","year":"2013","journal-title":"Translational Pediatrics"},{"key":"2026022613411694500_jsaf089-B4","doi-asserted-by":"publisher","first-page":"392","DOI":"10.15537\/smj.2016.4.13626","article-title":"The impact of congenital heart diseases on the quality of life of patients and their families in Saudi Arabia: Biological, psychological, and social dimensions","volume":"37","author":"Azhar","year":"2016","journal-title":"Saudi Medical Journal"},{"key":"2026022613411694500_jsaf089-B5","doi-asserted-by":"crossref","first-page":"189","DOI":"10.1007\/s11883-023-01093-3","article-title":"Brief review: Racial and ethnic disparities in cardiovascular care with a focus on congenital heart disease and precision medicine","volume":"25","author":"Bayne","year":"2023","journal-title":"Current Atherosclerosis Reports"},{"key":"2026022613411694500_jsaf089-B6","doi-asserted-by":"publisher","first-page":"686","DOI":"10.1111\/j.1365-2214.2010.01085.x","article-title":"Impact of a family-oriented rehabilitation programme on behavioural and emotional problems in healthy siblings of chronically ill children","volume":"36","author":"Besier","year":"2010","journal-title":"Child: Care, Health, and Development"},{"key":"2026022613411694500_jsaf089-B7","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1080\/02739615.2024.2433967","article-title":"\u201cI am worried she won\u2019t live that long:\u201d Voices of adolescent well-siblings of individuals living with complex congenital heart defects","author":"Bernardino","year":"2024","journal-title":"Children\u2019s Health Care"},{"key":"2026022613411694500_jsaf089-B8","doi-asserted-by":"publisher","first-page":"S369","DOI":"10.21037\/cdt.2019.07.07","article-title":"Current research status on the psychological situation of parents of children with congenital heart disease","volume":"9","author":"Biber","year":"2019","journal-title":"Cardiovascular Diagnosis and Therapy"},{"key":"2026022613411694500_jsaf089-B9","doi-asserted-by":"publisher","first-page":"96","DOI":"10.1016\/j.pedn.2021.12.019","article-title":"Experiences of siblings of children with congenital heart disease during coronavirus disease 2019: A qualitative interview study","volume":"63","author":"Bichard","year":"2022","journal-title":"Journal of Pediatric Nursing"},{"key":"2026022613411694500_jsaf089-B10","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"key":"2026022613411694500_jsaf089-B11","doi-asserted-by":"publisher","first-page":"255","DOI":"10.1007\/s00246-006-0013-4","article-title":"Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease","volume":"28","author":"Brosig","year":"2007","journal-title":"Pediatric Cardiology"},{"key":"2026022613411694500_jsaf089-B12","doi-asserted-by":"publisher","first-page":"Article e29418","DOI":"10.1002\/pbc.29418","article-title":"Psychosocial care providers\u2019 perspectives: Barriers to implementing services for siblings of children with cancer","volume":"69","author":"Brosnan","year":"2022","journal-title":"Pediatric Blood & Cancer"},{"key":"2026022613411694500_jsaf089-B13","doi-asserted-by":"publisher","first-page":"528","DOI":"10.1111\/chd.12619","article-title":"Perception scores of siblings and parents of children with hypoplastic left heart syndrome","volume":"13","author":"Caris","year":"2018","journal-title":"Congenital Heart Disease"},{"key":"2026022613411694500_jsaf089-B14","author":"Centers for Disease Control and Prevention","year":"2024"},{"key":"2026022613411694500_jsaf089-B15","doi-asserted-by":"publisher","first-page":"318","DOI":"10.1016\/j.pedhc.2009.09.002","article-title":"The meaning of cost for families of children with congenital heart disease","volume":"24","author":"Connor","year":"2010","journal-title":"Journal of Pediatric Health Care"},{"key":"2026022613411694500_jsaf089-B16","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1016\/j.jpeds.2018.09.037","article-title":"Need for routine screening of health-related quality of life in families of young children with complex congenital heart disease","volume":"205","author":"Denniss","year":"2019","journal-title":"The Journal of Pediatrics"},{"key":"2026022613411694500_jsaf089-B17","doi-asserted-by":"publisher","first-page":"901","DOI":"10.1097\/PCC.0000000000003293","article-title":"A psychosocial care model for families affected by congenital heart disease","volume":"24","author":"Driscoll","year":"2023","journal-title":"Pediatric Critical Care Medicine"},{"key":"2026022613411694500_jsaf089-B18","doi-asserted-by":"publisher","first-page":"79","DOI":"10.1007\/s00246-017-1730-6","article-title":"Biopsychosocial predictors of quality of life outcomes in pediatric congenital heart disease","volume":"39","author":"Ernst","year":"2018","journal-title":"Pediatric Cardiology"},{"key":"2026022613411694500_jsaf089-B19","doi-asserted-by":"crossref","first-page":"242","DOI":"10.1037\/cpp0000504","article-title":"Managing sibling referrals: Ethical considerations for integrated pediatric primary care","volume":"12","author":"Forcino","year":"2024","journal-title":"Clinical Practice in Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B20","doi-asserted-by":"publisher","first-page":"877","DOI":"10.1093\/jpepsy\/jsaa044","article-title":"Mothers\u2019 adjustment to autism: Exploring the roles of autism knowledge and culture","volume":"45","author":"Gordillo","year":"2020","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B21","doi-asserted-by":"publisher","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap)\u2014A metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"Journal of Biomedical Informatics"},{"key":"2026022613411694500_jsaf089-B22","doi-asserted-by":"publisher","first-page":"154","DOI":"10.1177\/1367493513503582","article-title":"Belgian siblings of children with a chronic illness: Is their quality of life different from their peers?","volume":"19","author":"Havermans","year":"2015","journal-title":"Journal of Child Health Care"},{"key":"2026022613411694500_jsaf089-B23","doi-asserted-by":"publisher","first-page":"381","DOI":"10.1037\/1091-7527.24.4.381","article-title":"Pediatric psychosocial preventative health model (PPPHM): Research, practice, and collaboration in pediatric family systems medicine","volume":"24","author":"Kazak","year":"2006","journal-title":"Families, Systems, & Health"},{"key":"2026022613411694500_jsaf089-B24","doi-asserted-by":"publisher","DOI":"10.55591\/001c.84322","article-title":"Child life services for siblings of chronically ill children","volume":"4","author":"Keller","year":"2023","journal-title":"Journal of Child Life: Psychosocial Theory and Practice"},{"key":"2026022613411694500_jsaf089-B25","doi-asserted-by":"publisher","first-page":"Article 102","DOI":"10.3389\/fped.2017.00102","article-title":"Mental health problems in parents of children with congenital heart disease","volume":"5","author":"Kolaitis","year":"2017","journal-title":"Frontiers in Pediatrics"},{"key":"2026022613411694500_jsaf089-B26","doi-asserted-by":"publisher","first-page":"Article e20172607","DOI":"10.1542\/peds.2017-2607","article-title":"The care of children with congenital heart disease in their primary medical home","volume":"140","author":"Lantin-Hermoso","year":"2017","journal-title":"Pediatrics"},{"key":"2026022613411694500_jsaf089-B27","doi-asserted-by":"publisher","first-page":"1142","DOI":"10.1017\/S10479511180000963","article-title":"Parental stress and resilience in CHD: A new frontier for health disparities research","volume":"28","author":"Lisanti","year":"2018","journal-title":"Cardiology in the Young"},{"key":"2026022613411694500_jsaf089-B28","doi-asserted-by":"publisher","first-page":"85","DOI":"10.1097\/JCN.0000000000000546","article-title":"Individualized family-centered developmental care: An essential model to address the unique needs of infants with congenital heart disease","volume":"34","author":"Lisanti","year":"2019","journal-title":"Journal of Cardiovascular Nursing"},{"key":"2026022613411694500_jsaf089-B29","doi-asserted-by":"publisher","first-page":"61","DOI":"10.1037\/fsh0000084","article-title":"Major lessons learned from a nationally-based community-academic partnership: Addressing sibling adjustment to childhood cancer","volume":"33","author":"Long","year":"2015","journal-title":"Families, Systems, & Health"},{"key":"2026022613411694500_jsaf089-B30","doi-asserted-by":"publisher","first-page":"145","DOI":"10.1352\/1944-7558-120.2.145","article-title":"Cultural and child-related predictors of distress among Latina caregivers of children with intellectual disabilities","volume":"120","author":"Long","year":"2015","journal-title":"American Journal on Intellectual & Developmental Disabilities"},{"key":"2026022613411694500_jsaf089-B31","doi-asserted-by":"publisher","first-page":"1467","DOI":"10.1002\/pon.4669","article-title":"Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review","volume":"27","author":"Long","year":"2018","journal-title":"Psychooncology"},{"key":"2026022613411694500_jsaf089-B32","first-page":"5","article-title":"Where are siblings of children with specific health care needs in family-centered care?","volume":"73","author":"Long","year":"2020","journal-title":"The Clinical Psychologist"},{"key":"2026022613411694500_jsaf089-B33","doi-asserted-by":"publisher","first-page":"4100","DOI":"10.1007\/s10803-021-05287-z","article-title":"Cultural influences on sibling relationships, roles, and self-concept in the context of autism: Perspectives of Latino\/a\/x and non-Latino\/a\/x siblings","volume":"52","author":"Long","year":"2022","journal-title":"Journal of Autism and Developmental Disorders"},{"key":"2026022613411694500_jsaf089-B34","doi-asserted-by":"publisher","first-page":"331","DOI":"10.1097\/DBP.0000000000000902","article-title":"Creating a pathway for psychosocial support in siblings of youth with a chronic illness: Findings from an international summit","volume":"42","author":"Long","year":"2021","journal-title":"Journal of Developmental & Behavioral Pediatrics"},{"key":"2026022613411694500_jsaf089-B35","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1016\/j.jpeds.2022.07.002","article-title":"Clinical health outcomes of siblings of children with chronic conditions: A systematic review and meta-analysis","volume":"250","author":"Martinez","year":"2022","journal-title":"The Journal of Pediatrics"},{"key":"2026022613411694500_jsaf089-B36","doi-asserted-by":"publisher","first-page":"738","DOI":"10.1017\/S1047951121002912","article-title":"Parental post-traumatic stress, overprotective parenting, and emotional and behavioural problems for children with critical congenital heart disease","volume":"32","author":"McWhorter","year":"2022","journal-title":"Cardiology in the Young"},{"key":"2026022613411694500_jsaf089-B37","doi-asserted-by":"crossref","first-page":"371","DOI":"10.1037\/cpp0000280","article-title":"Improving support to siblings of children with cancer through a community-academic partnership","volume":"7","author":"Oberoi","year":"2019","journal-title":"Clinical Practice in Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B38","doi-asserted-by":"publisher","first-page":"115","DOI":"10.1037\/cpp0000324","article-title":"Parent decision-making about support for siblings of children with cancer: Sociodemographic influences","volume":"8","author":"Oberoi","year":"2020","journal-title":"Clinical Practice in Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B39","doi-asserted-by":"publisher","first-page":"1245","DOI":"10.1097\/ACM.0000000000000388","article-title":"Standards for Reporting Qualitative Research: A synthesis of recommendations","volume":"89","author":"O\u2019Brien","year":"2014","journal-title":"Academic Medicine"},{"key":"2026022613411694500_jsaf089-B40","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1177\/1367493520914738","article-title":"Impact of congenital heart disease on siblings: A review","volume":"24","author":"Parker","year":"2020","journal-title":"Journal of Child Health Care"},{"key":"2026022613411694500_jsaf089-B41","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1093\/jpepsy\/jsac066","article-title":"Behavioral problems, self-esteem, and prosocial behavior in siblings of children with chronic physical health conditions: An updated meta-analysis","volume":"48","author":"Pinquart","year":"2023","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B42","doi-asserted-by":"publisher","first-page":"631","DOI":"10.1093\/jpepsy\/jsi050","article-title":"Are fathers involved in pediatric psychology research and treatment?","volume":"30","author":"Phares","year":"2005","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B43","doi-asserted-by":"crossref","first-page":"542","DOI":"10.1093\/jpepsy\/jsz003","article-title":"A systematic review of therapeutic recreation camp impact on families of children with chronic health conditions","volume":"44","author":"Rea","year":"2019","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B44","doi-asserted-by":"publisher","first-page":"948","DOI":"10.1080\/13854046.2021.1896037","article-title":"The association between parental stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease","volume":"35","author":"Roberts","year":"2021","journal-title":"The Clinical Neuropsychologist"},{"key":"2026022613411694500_jsaf089-B45","doi-asserted-by":"publisher","first-page":"Article 13674935241273982","DOI":"10.1177\/13674935241273982","article-title":"Experiences of siblings and parents of children with congenital heart disease and exploration of siblings\u2019 support needs","volume":"14","author":"Schamong","year":"2024","journal-title":"Journal of Child Health Care"},{"key":"2026022613411694500_jsaf089-B46","doi-asserted-by":"publisher","first-page":"Article 848052","DOI":"10.3389\/fdgth.2022.848052","article-title":"A call to action: Using and extending human-centered design methodologies to improve mental and behavioral health equity","volume":"4","author":"Stiles-Shields","year":"2022","journal-title":"Frontiers in Digital Health"},{"key":"2026022613411694500_jsaf089-B47","doi-asserted-by":"publisher","first-page":"Article 23743735221092488","DOI":"10.1177\/23743735221092488","article-title":"Partnering with stakeholders to inform the co-design of a psychosocial intervention for prenatally diagnosed congenital heart disease","volume":"9","author":"Sood","year":"2022","journal-title":"Journal of Patient Experience"},{"key":"2026022613411694500_jsaf089-B48","doi-asserted-by":"publisher","first-page":"900","DOI":"10.1017\/S1047951121002134","article-title":"Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative","volume":"31","author":"Sood","year":"2021","journal-title":"Cardiology in the Young"},{"key":"2026022613411694500_jsaf089-B49","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1093\/jpepsy\/jsaa096","article-title":"Topical review: Crowdsourcing as a novel approach to qualitative research","volume":"46","author":"Sood","year":"2021","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B50","doi-asserted-by":"publisher","first-page":"151","DOI":"10.1037\/hea0000704","article-title":"Psychological interventions for people affected by childhood-onset heart disease: A systematic review","volume":"38","author":"Tesson","year":"2019","journal-title":"Health Psychology"},{"key":"2026022613411694500_jsaf089-B51","doi-asserted-by":"publisher","first-page":"192","DOI":"10.1017\/S1047951117001378","article-title":"Multidisciplinary family-centered psychosocial care for patients with CHD: Consensus recommendations from the AEPC Psychosocial Working Group","volume":"28","author":"Utens","year":"2018","journal-title":"Cardiology in the Young"},{"key":"2026022613411694500_jsaf089-B52","doi-asserted-by":"publisher","first-page":"1172","DOI":"10.1017\/S1047951119001732","article-title":"CHIP-family intervention to improve psychosocial well-being of young children with congenital heart disease and their families: Results from a randomized controlled trial","volume":"29","author":"van der Mheen","year":"2019","journal-title":"Cardiology in the Young"},{"key":"2026022613411694500_jsaf089-B53","first-page":"111","article-title":"Pediatric chronic illness: Effects on siblings and mothers","volume":"21","author":"Williams","year":"1993","journal-title":"Maternal-Child Nursing Journal"},{"key":"2026022613411694500_jsaf089-B54","doi-asserted-by":"publisher","first-page":"924","DOI":"10.1093\/jpepsy\/jsz055","article-title":"From diagnosis to ongoing journey: Parent experiences following congenital heart disease diagnoses","volume":"44","author":"Williams","year":"2019","journal-title":"Journal of Pediatric Psychology"},{"key":"2026022613411694500_jsaf089-B55","doi-asserted-by":"publisher","first-page":"Article e004862","DOI":"10.1161\/jaha.116.004862","article-title":"Mental health among parents of children with critical congenital heart defects: A systematic review","volume":"6","author":"Woolf-King","year":"2017","journal-title":"Journal of the American Heart Association"},{"key":"2026022613411694500_jsaf089-B56","doi-asserted-by":"publisher","first-page":"1811","DOI":"10.1007\/s00431-018-3250-7","article-title":"Psychosocial functioning of parents of children with heart disease\u2014describing the landscape","volume":"177","author":"Wray","year":"2018","journal-title":"European Journal of Pediatrics"},{"key":"2026022613411694500_jsaf089-B57","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1017\/S1047951105000302","article-title":"Living with congenital or acquired cardiac disease in childhood: Maternal perceptions of the impact on the child and family","volume":"15","author":"Wray","year":"2005","journal-title":"Cardiology in the Young"}],"container-title":["Journal of Pediatric Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/jpepsy\/article-pdf\/51\/1\/44\/64455787\/jsaf089.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/jpepsy\/article-pdf\/51\/1\/44\/64455787\/jsaf089.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,26]],"date-time":"2026-02-26T18:41:29Z","timestamp":1772131289000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/jpepsy\/article\/51\/1\/44\/8269323"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,9,30]]},"references-count":57,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,9,30]]},"published-print":{"date-parts":[[2026,1,1]]}},"URL":"https:\/\/doi.org\/10.1093\/jpepsy\/jsaf089","relation":{},"ISSN":["0146-8693","1465-735X"],"issn-type":[{"value":"0146-8693","type":"print"},{"value":"1465-735X","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2026,1]]},"published":{"date-parts":[[2025,9,30]]}}}