{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T00:21:54Z","timestamp":1790036514898,"version":"4.0.1"},"reference-count":33,"publisher":"Oxford University Press (OUP)","issue":"7","license":[{"start":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T00:00:00Z","timestamp":1771977600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To systematically review the literature on the implementation and effectiveness of story-based interventions for youth with chronic conditions to improve health-related outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The protocol for this review was registered with PROSPERO: CRD42024550328. A comprehensive search was conducted across PubMed, CINHAL, EMBASE, and Web of Science. Databases were searched from inception to June 2024. Studies were included if the intervention was story-based, the sample had a mean or median age between 11 and 25, and participants had a chronic condition. Studies were limited to quantitative and mixed methods. Three reviewers independently screened abstracts and full text for eligibility. Risk of bias was assessed using the Mixed Methods Appraisal Tool. Effect sizes were extracted or calculated. Reported qualitative findings were narratively synthesized.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Of the 3,797 articles screened, 7 articles met the inclusion criteria. Considerable variation existed across studies in intervention goals, components, and outcomes assessed. Notable impacts were related to improvement in distress and depressive symptoms. Intervention strategies ranged from autobiographical writing to digital formats such as video narratives and online participatory community sites. Interventions demonstrated mixed impact in improving health-related outcomes with effect sizes ranging from \u22120.54 to 5.50.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Story-based interventions focused on youth with chronic illness provide promising means to elicit relevant experiences and impact health outcomes. The knowledge base is in a formative stage and characterized by multicomponent interventions with research designs that do not support strong causal inference. Further research is warranted to replicate outcomes and understand active intervention components.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/jpepsy\/jsag014","type":"journal-article","created":{"date-parts":[[2026,2,3]],"date-time":"2026-02-03T12:39:14Z","timestamp":1770122354000},"page":"579-592","source":"Crossref","is-referenced-by-count":1,"title":["Story-based interventions for chronic health conditions in youth: a systematic review and narrative synthesis"],"prefix":"10.1093","volume":"51","author":[{"given":"Emily L","family":"Rappolt","sequence":"first","affiliation":[{"name":"Vanderbilt University, School of Nursing , Nashville, TN,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eunji","family":"Cho","sequence":"additional","affiliation":[{"name":"Boston College, Connell School of Nursing , Chestnut Hill, MA,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4222-4224","authenticated-orcid":false,"given":"Molly L","family":"Tanenbaum","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Stanford University School of Medicine , Stanford, CA,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allison","family":"Myers","sequence":"additional","affiliation":[{"name":"StoryCollab, East Tennessee State University , Johnson City, TN,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shelagh A","family":"Mulvaney","sequence":"additional","affiliation":[{"name":"Vanderbilt University, School of Nursing , Nashville, TN,","place":["United States"]},{"name":"Department of Biomedical Informatics, Vanderbilt University Medical Center , Nashville, TN,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2026,2,25]]},"reference":[{"key":"2026071605263378800_jsag014-B1","doi-asserted-by":"publisher","first-page":"350","DOI":"10.1016\/j.eatbeh.2014.04.003","article-title":"Internet and patient empowerment in individuals with symptoms of an eating disorder: A cross-sectional investigation of a pro-recovery focused e-community","volume":"15","author":"Aardoom","year":"2014","journal-title":"Eating Behaviors"},{"key":"2026071605263378800_jsag014-B2","doi-asserted-by":"publisher","first-page":"658","DOI":"10.1002\/pbc.25337","article-title":"Digital storytelling: An innovative legacy-making intervention for children with cancer","volume":"62","author":"Akard","year":"2015","journal-title":"Pediatric Blood & Cancer"},{"key":"2026071605263378800_jsag014-B4","doi-asserted-by":"publisher","first-page":"49","DOI":"10.1097\/01.NAJ.0000446779.99522.f6","article-title":"Systematic reviews: Constructing a search strategy and searching for evidence","volume":"114","author":"Aromataris","year":"2014","journal-title":"The American Journal of Nursing"},{"key":"2026071605263378800_jsag014-B5","doi-asserted-by":"publisher","first-page":"143","DOI":"10.1177\/1090198104263660","article-title":"Health promotion by social cognitive means","volume":"31","author":"Bandura","year":"2004","journal-title":"Health Education & Behavior: The Official Publication of the Society for Public Health Education"},{"key":"2026071605263378800_jsag014-B6","doi-asserted-by":"publisher","first-page":"263","DOI":"10.1111\/1467-9566.00252","article-title":"Illness narratives: fact or fiction?","volume":"23","author":"Bury","year":"2001","journal-title":"Sociology of Health & Illness"},{"key":"2026071605263378800_jsag014-B7","author":"Centers for Disease Control and Prevention","year":"2024"},{"key":"2026071605263378800_jsag014-B8","author":"Centers for Disease Control and Prevention","year":"2024"},{"key":"2026071605263378800_jsag014-B10","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1186\/s12913-016-1474-7","article-title":"Designing and delivering facilitated storytelling interventions for chronic disease self-management: A scoping review","volume":"16","author":"Gucciardi","year":"2016","journal-title":"BMC Health Services Research"},{"key":"2026071605263378800_jsag014-B11","doi-asserted-by":"publisher","first-page":"408","DOI":"10.1016\/j.nedt.2010.08.001","article-title":"Tell me a story\u2014A conceptual exploration of storytelling in healthcare education","volume":"31","author":"Haigh","year":"2011","journal-title":"Nurse Education Today"},{"key":"2026071605263378800_jsag014-B12","doi-asserted-by":"publisher","first-page":"886","DOI":"10.1037\/hea0001512","article-title":"A randomized controlled trial testing the benefits of prosocial writing in young adult survivors of adolescent and young adult cancer","volume":"44","author":"Haydon","year":"2025","journal-title":"Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association"},{"key":"2026071605263378800_jsag014-B13","author":"Hong","year":"2018"},{"key":"2026071605263378800_jsag014-B14","doi-asserted-by":"publisher","first-page":"272","DOI":"10.1177\/1043454216688639","article-title":"Stories that heal: Understanding the effects of creating digital stories with pediatric and adolescent\/young adult oncology patients","volume":"34","author":"Laing","year":"2017","journal-title":"Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses"},{"key":"2026071605263378800_jsag014-B15","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare10101979","article-title":"Storytelling of young adults with chronic rheumatologic illnesses: A pilot study","volume":"10","author":"Lanis","year":"2022","journal-title":"Healthcare (Basel, Switzerland)"},{"key":"2026071605263378800_jsag014-B16","doi-asserted-by":"publisher","first-page":"58","DOI":"10.1016\/j.apnr.2015.09.004","article-title":"Storytelling\/narrative theory to address health communication with minority populations","volume":"30","author":"Lee","year":"2016","journal-title":"Applied Nursing Research: ANR"},{"key":"2026071605263378800_jsag014-B8388286","author":"Lenhard"},{"key":"2026071605263378800_jsag014-B17","doi-asserted-by":"publisher","first-page":"152","DOI":"10.1016\/j.adolescence.2019.02.010","article-title":"Adolescents with chronic illness and the transition to self-management: A systematic review","volume":"72","author":"Lerch","year":"2019","journal-title":"Journal of Adolescence"},{"key":"2026071605263378800_jsag014-B18","doi-asserted-by":"publisher","first-page":"287","DOI":"10.1016\/j.pec.2010.02.010","article-title":"Optimizing patient education for people with obesity: Possible use of the autobiographical approach","volume":"79","author":"Maldonato","year":"2010","journal-title":"Patient Education and Counseling"},{"key":"2026071605263378800_jsag014-B4959294","doi-asserted-by":"publisher","first-page":"e1000097","DOI":"10.1371\/journal.pmed.1000097","article-title":"Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement","volume":"6","author":"Moher","year":"2009","journal-title":"PLoS Medicine"},{"key":"2026071605263378800_jsag014-B19","doi-asserted-by":"publisher","first-page":"140","DOI":"10.1016\/j.pec.2010.09.018","article-title":"Self-management problem solving for adolescents with type 1 diabetes: Intervention processes associated with an Internet program","volume":"85","author":"Mulvaney","year":"2011","journal-title":"Patient Education and Counseling"},{"key":"2026071605263378800_jsag014-B20","doi-asserted-by":"publisher","first-page":"217","DOI":"10.1007\/s10942-020-00366-z","article-title":"Effect of rational digital storytelling intervention on depression among adolescent-athletes with special educational needs","volume":"39","author":"Ofoegbu","year":"2021","journal-title":"Journal of Rational-Emotive & Cognitive-Behavior Therapy"},{"key":"2026071605263378800_jsag014-B21","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1016\/j.pec.2009.10.020","article-title":"The narrative-autobiographical approach in the group education of adolescents with diabetes: A qualitative research on its effects","volume":"80","author":"Piana","year":"2010","journal-title":"Patient Education and Counseling"},{"key":"2026071605263378800_jsag014-B22","doi-asserted-by":"publisher","first-page":"196","DOI":"10.1186\/1471-244X-12-196","article-title":"Mechanisms underpinning effective peer support: A qualitative analysis of interactions between expert peers and patients newly-diagnosed with bipolar disorder","volume":"12","author":"Proudfoot","year":"2012","journal-title":"BMC Psychiatry"},{"key":"2026071605263378800_jsag014-B23","doi-asserted-by":"publisher","first-page":"748","DOI":"10.1016\/j.jadohealth.2005.08.007","article-title":"Effects of creating visual illness narratives on quality of life with asthma: A pilot intervention study","volume":"38","author":"Rich","year":"2006","journal-title":"The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine"},{"key":"2026071605263378800_jsag014-B25","doi-asserted-by":"publisher","first-page":"1541","DOI":"10.1037\/hea0000024","article-title":"Harnessing benefits of helping others: A randomized controlled trial testing expressive helping to address survivorship problems after hematopoietic stem cell transplant","volume":"33","author":"Rini","year":"2014","journal-title":"Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association"},{"key":"2026071605263378800_jsag014-B26","doi-asserted-by":"publisher","first-page":"137","DOI":"10.1016\/j.seizure.2017.06.014","article-title":"Evaluation of a self-regulation based psycho-educational pilot intervention targeting children and adolescents with epilepsy in Greece","volume":"50","author":"Rizou","year":"2017","journal-title":"Seizure"},{"key":"2026071605263378800_jsag014-B27","doi-asserted-by":"publisher","first-page":"747","DOI":"10.1146\/annurev-psych-010418-102803","article-title":"How to do a systematic review: Abest practice guide for conducting and reporting narrative reviews, meta-analyses, and meta-syntheses","volume":"70","author":"Siddaway","year":"2019","journal-title":"Annual Review of Psychology"},{"key":"2026071605263378800_jsag014-B28","doi-asserted-by":"publisher","first-page":"2901","DOI":"10.1001\/jama.294.22.2901","article-title":"The use of stories in clinical research and health policy","volume":"294","author":"Steiner","year":"2005","journal-title":"JAMA"},{"key":"2026071605263378800_jsag014-B29","doi-asserted-by":"publisher","first-page":"135","DOI":"10.1093\/jamia\/ocx051","article-title":"Sharing and helping: Predictors of adolescents\u2019 willingness to share diabetes personal health information with peers","volume":"25","author":"Vaala","year":"2018","journal-title":"Journal of the American Medical Informatics Association: JAMIA"},{"key":"2026071605263378800_jsag014-B30","doi-asserted-by":"publisher","first-page":"61","DOI":"10.1016\/j.pec.2008.07.044","article-title":"Participation in online patient support groups endorses patients\u2019 empowerment","volume":"74","author":"van Uden-Kraan","year":"2009","journal-title":"Patient Education and Counseling"},{"key":"2026071605263378800_jsag014-B31","doi-asserted-by":"publisher","first-page":"369","DOI":"10.1177\/109019819702400309","article-title":"Photovoice: Concept, methodology, and use for participatory needs assessment","volume":"24","author":"Wang","year":"1997","journal-title":"Health Education & Behavior: The Official Publication of the Society for Public Health Education"},{"key":"2026071605263378800_jsag014-B32","doi-asserted-by":"publisher","first-page":"16094069221111118","DOI":"10.1177\/16094069221111118","article-title":"Digital storytelling as a method in health research: A systematic review","volume":"21","author":"West","year":"2022","journal-title":"International Journal of Qualitative Methods"},{"key":"2026071605263378800_jsag014-B33","doi-asserted-by":"publisher","first-page":"2158244015572099","DOI":"10.1177\/2158244015572099","article-title":"Exploring the role of digital storytelling in pediatric oncology patients\u2019 perspectives regarding diagnosis: A literature review","volume":"5","author":"Wilson","year":"2015","journal-title":"Sage Open"},{"key":"2026071605263378800_jsag014-B34","doi-asserted-by":"publisher","first-page":"74","DOI":"10.1186\/s12902-022-00988-7","article-title":"Promoting self-management behaviors in adolescents with type 1 diabetes, using digital storytelling: a pilot randomized controlled trial","volume":"22","author":"Zarifsaniey","year":"2022","journal-title":"BMC Endocrine Disorders"}],"container-title":["Journal of Pediatric Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/jpepsy\/article-pdf\/51\/7\/579\/67111255\/jsag014.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/jpepsy\/article-pdf\/51\/7\/579\/67111255\/jsag014.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T09:26:37Z","timestamp":1784193997000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/jpepsy\/article\/51\/7\/579\/8497492"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,25]]},"references-count":33,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2026,2,25]]},"published-print":{"date-parts":[[2026,7,1]]}},"URL":"https:\/\/doi.org\/10.1093\/jpepsy\/jsag014","relation":{},"ISSN":["0146-8693","1465-735X"],"issn-type":[{"value":"0146-8693","type":"print"},{"value":"1465-735X","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2026,7]]},"published":{"date-parts":[[2026,2,25]]}}}