{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,20]],"date-time":"2026-09-20T01:58:37Z","timestamp":1789869517462,"version":"4.0.1"},"reference-count":34,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2022,2,9]],"date-time":"2022-02-09T00:00:00Z","timestamp":1644364800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Kidney Care UK"},{"name":"Renal Association"},{"name":"NHS"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,7,26]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>Patient experience is a recognized aspect of quality of care for people with chronic kidney disease (CKD), but current patient-reported experience measures (PREMs) only focus on dialysis care. We developed and validated the Kidney PREM to assess patients\u2019 experience with renal services in secondary care for any CKD stage or treatment (transplant, haemodialysis and peritoneal dialysis).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>We developed the Kidney PREM in two phases, informed by a multidisciplinary expert group to ensure face validity. We organized three national data collections (2016\u20138) to investigate item response profiles and to conduct exploratory and confirmatory analyses to assess internal consistency. We also explored content validity in cognitive interviews and evaluated test\u2013retest reliability. Finally, we developed the Kidney PREM Short Form for more frequent measurement of patient experience to inform local service improvements.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>We analysed 32\u2009959 responses across data collections, with the 2018 collection covering all 71 UK renal centres. The Kidney PREM final version consisted of 38 items grouped into 13 themes, all pertaining to one underlying dimension reflecting the construct of \u2018patient experience\u2019 with high internal consistency (Cronbach's \u03b1 = 0.94). The Kidney PREM Short Form consisted of 15 items across the same 13 themes.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>The Kidney PREM supports the collection of reliable information on patient experience that people with CKD consider relevant, regardless of CKD stage or treatment modality. Kidney PREM data have the potential to guide local and national initiatives to improve patients\u2019 experiences with renal services in the UK and other countries.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/ndt\/gfac030","type":"journal-article","created":{"date-parts":[[2022,2,4]],"date-time":"2022-02-04T20:11:48Z","timestamp":1644005508000},"page":"1507-1519","source":"Crossref","is-referenced-by-count":20,"title":["Measuring patients\u2019 experience with renal services in the UK: development and validation of the Kidney PREM"],"prefix":"10.1093","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7646-2821","authenticated-orcid":false,"given":"Janine","family":"Hawkins","sequence":"first","affiliation":[{"name":"Centre for Health Services and Clinical Research, School of Life and Medical Sciences, University of Hertfordshire , Hatfield , 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