{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,26]],"date-time":"2026-05-26T08:07:17Z","timestamp":1779782837022,"version":"3.53.1"},"reference-count":21,"publisher":"Oxford University Press (OUP)","license":[{"start":{"date-parts":[[2026,5,9]],"date-time":"2026-05-09T00:00:00Z","timestamp":1778284800000},"content-version":"am","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["CRE-PACT APP207026"],"award-info":[{"award-number":["CRE-PACT APP207026"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1197324"],"award-info":[{"award-number":["APP1197324"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1126256"],"award-info":[{"award-number":["APP1126256"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1197337"],"award-info":[{"award-number":["APP1197337"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1194485"],"award-info":[{"award-number":["APP1194485"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP2014024"],"award-info":[{"award-number":["APP2014024"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1173941"],"award-info":[{"award-number":["APP1173941"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Children and young people with chronic kidney disease (CKD) experience impaired life participation, which has been identified as a critically important outcome for them. However, little remains known about strategies to improve life participation in children with CKD. The aim of this report was to identify strategies to improve life participation in children with CKD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Four workshops [one in-person (English language) and three online (two English and one Spanish language)] were held with 79 patients and caregivers and 92 health professionals from 16 countries to discuss strategies and interventions to improve life participation in children with CKD. Transcripts were thematically analysed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four themes were identified. \u2018Emphasizing life priorities\u2019 involved identifying and addressing patient values, focussing on freedom not restrictions, routinely assessing and monitoring life participation, and establishing and achieving goals. \u2018Minimizing treatment burden\u2019 included allowing flexibility in scheduling appointments, enabling better management of medications, and controlling debilitating side effects. \u2018Facilitating opportunities in community settings\u2019 encompassed providing ways to engage in education, encouraging engagement in social activities, promoting physical activity, and supporting work and career aspirations. \u2018Fortifying mental health, self-esteem, and motivation\u2019 included building confidence and addressing depression and anxiety.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Patients with CKD, caregivers, and health professionals identified a need for strategies for life participation to address the domains of personalized life priorities, minimizing treatment burden, facilitating access to opportunities, and strengthening wellbeing. Further development and evaluation of interventions that address these are needed to improve life participation in children with CKD.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/ndt\/gfag099","type":"journal-article","created":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T12:15:13Z","timestamp":1777637713000},"source":"Crossref","is-referenced-by-count":0,"title":["Identifying strategies to improve life participation in children with chronic kidney disease: report from multinational SONG workshops"],"prefix":"10.1093","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-5512-0333","authenticated-orcid":false,"given":"Anastasia","family":"Hughes","sequence":"first","affiliation":[{"name":"Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney , Sydney ,","place":["Australia"]},{"name":"Centre for Kidney Research, The Children\u2019s Hospital at Westmead , Westmead 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