{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T06:42:58Z","timestamp":1790232178551,"version":"4.1.0"},"reference-count":80,"publisher":"Oxford University Press (OUP)","issue":"4","license":[{"start":{"date-parts":[[2017,12,22]],"date-time":"2017-12-22T00:00:00Z","timestamp":1513900800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2018,4,1]]},"DOI":"10.1093\/ndt\/gfx327","type":"journal-article","created":{"date-parts":[[2017,11,14]],"date-time":"2017-11-14T20:18:33Z","timestamp":1510690713000},"page":"563-573","source":"Crossref","is-referenced-by-count":35,"title":["European ADPKD Forum multidisciplinary position statement on autosomal dominant polycystic kidney disease care"],"prefix":"10.1093","volume":"33","author":[{"name":"EAF co-chairs","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tess","family":"Harris","sequence":"additional","affiliation":[{"name":"PKD International, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Sandford","sequence":"additional","affiliation":[{"name":"Academic Department of Medical Genetics, University of Cambridge School of Clinical Medicine, Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"EAF members","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brenda","family":"de Coninck","sequence":"additional","affiliation":[{"name":"Dutch Kidney Patient Association (NVN), Bussum, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olivier","family":"Devuyst","sequence":"additional","affiliation":[{"name":"Mechanisms of Inherited Kidney Disorders Group, Institute of Physiology, Zurich Center for Integrative Human Physiology, University of Zurich, Zurich, Switzerland\u2014representing the European Renal Association-European Dialysis and Transplant Association (ERA-EDTA)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joost P H","family":"Drenth","sequence":"additional","affiliation":[{"name":"Department of Gastroenterology and Hepatology, Radboud University, Nijmegen Medical Centre, Nijmegen, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tevfik","family":"Ecder","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine, Division of Nephrology, Faculty of Medicine, Istanbul Bilim University, Istanbul, Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alastair","family":"Kent","sequence":"additional","affiliation":[{"name":"Genetics Alliance and Patients Network for Medical Research and Health (EGAN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ron T","family":"Gansevoort","sequence":"additional","affiliation":[{"name":"Department of Nephrology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jos\u00e9 Luis","family":"G\u00f3rriz","sequence":"additional","affiliation":[{"name":"Department of Nephrology, Hospital Cl\u00ednico Universitario, INCLIVA. Departamento de Medicina, Universitat de Val\u00e8ncia, Val\u00e8ncia, Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Albert C M","family":"Ong","sequence":"additional","affiliation":[{"name":"Academic Nephrology Unit, University of Sheffield Medical School, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yves","family":"Pirson","sequence":"additional","affiliation":[{"name":"Division of Nephrology, Cliniques Universitaires Saint-Luc, Universit\u00e9 catholique de Louvain, Brussels, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vicente E","family":"Torres","sequence":"additional","affiliation":[{"name":"Division of Nephrology and Hypertension, Department of Internal Medicine, Mayo Clinic, Rochester, MN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Roundtable participants","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Klemens","family":"Budde","sequence":"additional","affiliation":[{"name":"European Kidney Transplant Association (EKITA), Department of Nephrology, Charit\u00e9 University, Berlin, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denis","family":"Cl\u00e9ment","sequence":"additional","affiliation":[{"name":"European Society of Hypertension (ESH), Department of the Dean, Ghent University Hospital, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lorenzo E","family":"Derchi","sequence":"additional","affiliation":[{"name":"European Society of Radiology (ESR), Department of Health Sciences \u2013 Radiology Section, University of Genoa, Genoa, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marianna","family":"Eleftheroudi","sequence":"additional","affiliation":[{"name":"Formerly European Dialysis and Transplant Nurses Association\/European Renal Care Association (EDTNA-ERCA)Department of Nephrology, \u201cPapageorgiou\u201d General Hospital, Thessaloniki, Greece"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elena","family":"Levtchenko","sequence":"additional","affiliation":[{"name":"European Society of Paediatric Nephrology (ESPN), Department of Pediatric Nephrology, University Hospitals Leuven, Leuven and Laboratory of Pediatrics, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorien","family":"Peters","sequence":"additional","affiliation":[{"name":"European Society of Human Genetics (ESHG), Department of Human Genetics, Leiden University Medical Center, Leiden, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hendrik","family":"Van Poppel","sequence":"additional","affiliation":[{"name":"European Association of Urology (EAU), Department of Urology, University Hospitals of KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raymond","family":"Vanholder","sequence":"additional","affiliation":[{"name":"European Kidney Health Alliance (EKHA), Emeritus Professor of Nephrology, Department of Nephrology, University Hospital Ghent, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2017,12,22]]},"reference":[{"key":"key\n\t\t\t\t20180626083747_gfx327-B1","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1038\/ki.2015.59","article-title":"Autosomal dominant polycystic kidney disease (ADPKD): executive summary from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference (with http:\/\/www.kidney-international.com\/cms\/attachment\/2043453066\/2056082832\/mmc1.pdf; 15 November 2017, date last accessed)","volume":"88","author":"Chapman","year":"2015","journal-title":"Kidney Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B2","doi-asserted-by":"crossref","first-page":"1244","DOI":"10.1038\/ki.2014.120","article-title":"Analysis of data from the ERA-EDTA Registry indicates that conventional treatments for chronic kidney disease do not reduce the need for renal replacement therapy in autosomal dominant polycystic kidney disease","volume":"86","author":"Spithoven","year":"2014","journal-title":"Kidney Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B3","doi-asserted-by":"crossref","first-page":"iv15","DOI":"10.1093\/ndt\/gfu017","article-title":"Renal replacement therapy for autosomal dominant polycystic kidney disease (ADPKD) in Europe: prevalence and survival-an analysis of data from the ERA-EDTA Registry","volume":"29","author":"Spithoven","year":"2014","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B4","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1016\/j.cgh.2014.07.051","article-title":"Liver involvement in early autosomal-dominant polycystic kidney disease","volume":"13","author":"Hogan","year":"2015","journal-title":"Clin Gastroenterol Hepatol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B5","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1038\/nrneph.2015.128","article-title":"Vascular complications in autosomal dominant polycystic kidney disease","volume":"11","author":"Perrone","year":"2015","journal-title":"Nat Rev Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B6","doi-asserted-by":"crossref","first-page":"362","DOI":"10.1159\/000343281","article-title":"Prevalence of cardiovascular events in patients with autosomal dominant polycystic kidney disease","volume":"36","author":"Helal","year":"2012","journal-title":"Am J Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B7","doi-asserted-by":"crossref","DOI":"10.1053\/j.ajkd.2013.08.017","article-title":"Health-related quality of life in patients with autosomal dominant polycystic kidney disease and CKD Stages 1\u20134: a cross-sectional study","volume":"63","author":"Miskulin","year":"2014","journal-title":"Am J Kidney Dis"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B8","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1186\/1471-2369-14-179","article-title":"Quality of life of patients with ADPKD-Toranomon PKD QOL study: cross-sectional study","volume":"14","author":"Suwabe","year":"2013","journal-title":"BMC Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B9","doi-asserted-by":"crossref","first-page":"531","DOI":"10.1093\/ckj\/sfv060","article-title":"Understanding the physical and emotional impact of early-stage ADPKD: experiences and perspectives of patients and physicians","volume":"8","author":"Baker","year":"2015","journal-title":"Clin Kidney J"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B10","doi-asserted-by":"crossref","first-page":"1130","DOI":"10.1093\/ndt\/gfv299","article-title":"Increased psychosocial risk, depression and reduced quality of life living with autosomal dominant polycystic kidney disease","volume":"31","author":"Simms","year":"2016","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B11","doi-asserted-by":"crossref","first-page":"169","DOI":"10.1186\/s12882-017-0578-6","article-title":"The effect of disease severity markers on quality of life in autosomal dominant polycystic kidneydisease: a systematic review, meta-analysis and meta-regression","volume":"18","author":"Neijenhuis","year":"2017","journal-title":"BMC Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B12","doi-asserted-by":"crossref","first-page":"i2957","DOI":"10.1136\/bmj.i2957","article-title":"Autosomal polycystic kidney disease in children","volume":"253","author":"Polubothu","year":"2016","journal-title":"BMJ"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B13","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1007\/s00467-016-3364-y","article-title":"The spectrum of autosomal dominant polycystic kidney disease in children and adolescents","volume":"32","author":"Reddy","year":"2017","journal-title":"Pediatr Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B14","doi-asserted-by":"crossref","first-page":"iv95","DOI":"10.1093\/ndt\/gfu186","article-title":"Spanish guidelines for the management of autosomal dominant polycystic kidney disease","volume":"29","author":"Ars","year":"2014","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B15","author":"Rangan"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B16","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1093\/ndt\/gfv456","article-title":"Recommendations for the use of tolvaptan in autosomal dominant polycystic kidney disease: a position statement on behalf of the ERA-EDTA Working Groups on Inherited Kidney Disorders and European Renal Best Practice","volume":"31","author":"Gansevoort","year":"2016","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B17","author":"European ADPKD Forum","year":"2015"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B18","doi-asserted-by":"crossref","first-page":"693","DOI":"10.1093\/ndt\/gfv058","article-title":"More than a kidney disease: a patient-centred approach to improving care in autosomal dominant polycystic kidney disease","volume":"30","author":"Youssouf","year":"2015","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B19","doi-asserted-by":"crossref","first-page":"iii86","DOI":"10.1093\/ndt\/gfv167.23","article-title":"ADPKD diagnosis in Europe: patient reports of symptoms at recognition and post diagnosis support","volume":"30","author":"de Coninck","year":"2015","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B20","doi-asserted-by":"crossref","first-page":"122","DOI":"10.1111\/nep.12579","article-title":"Identifying and integrating consumer perspectives in clinical practice guidelines on autosomal-dominant polycystic kidney disease","volume":"21","author":"Tong","year":"2016","journal-title":"Nephrology (Carlton)"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B21","first-page":"144","article-title":"Management of renal cyst infection in patients with autosomal dominant polycystic kidney disease: a systematic review","volume":"32","author":"Lantinga","year":"2017","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B22","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1159\/000446664","article-title":"International multi-specialty Delphi survey: Identification of diagnostic criteria for hepatic and renal cyst infection","volume":"134","author":"Lantinga","year":"2016","journal-title":"Nephron"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B23","doi-asserted-by":"crossref","first-page":"233","DOI":"10.2147\/CEOR.S130995","article-title":"Healthcare resource consumption and cost of care among patients with polycystic kidney disease in Italy","volume":"9","author":"Degli Esposti","year":"2017","journal-title":"Clinicoecon Outcomes Res"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B24","doi-asserted-by":"crossref","first-page":"560","DOI":"10.1186\/s12913-017-2513-8","article-title":"Real-world costs of autosomal dominant polycystic kidney disease in the Nordics","volume":"17","author":"Eriksson","year":"2017","journal-title":"BMC Health Services Research"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B25","author":"European Rare Kidney Disease Reference Network"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B26","author":"European Reference Network on Hepatological Diseases"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B27","doi-asserted-by":"crossref","first-page":"e241","DOI":"10.2196\/jmir.3371","article-title":"Patients\u2019 continuing use of an online health record: a quantitative evaluation of 14, 000 patient years of access data","volume":"16","author":"Phelps","year":"2014","journal-title":"J Med Internet Res"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B28","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1016\/j.ijmedinf.2015.12.004","article-title":"Barriers to patient participation in a self-management and education website Renal PatientView: A questionnaire-based study of inactive users","volume":"87","author":"Hazara","year":"2016","journal-title":"Int J Med Inform"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B29","author":"Arthritis Research UK"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B30","author":"Spinal Muscular Atrophy Support UK","year":"15 2017"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B31","first-page":"764A","article-title":"Adult polycystic kidney disease patients show a very similar cardiovascular comorbidity profile to CKD patients with other etiologies. Most cardiovascular and renal risk factors are not controlled in the majority of patients (Abs SA-PO558)","volume":"25","author":"G\u00f3rriz","year":"2014","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B32","doi-asserted-by":"crossref","first-page":"1142","DOI":"10.1136\/archdischild-2015-310221","article-title":"Hypertension in autosomal dominant polycystic kidney disease: a meta-analysis","volume":"101","author":"Marlais","year":"2016","journal-title":"Arch Dis Child"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B33","doi-asserted-by":"crossref","first-page":"2037","DOI":"10.1681\/ASN.V5122037","article-title":"Dietary protein restriction, blood pressure control, and the progression of polycystic kidney disease. Modification of Diet in Renal Disease Study Group","volume":"5","author":"Klahr","year":"1995","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B34","doi-asserted-by":"crossref","first-page":"572","DOI":"10.1016\/j.semnephrol.2015.10.008","article-title":"KHA-CARI autosomal dominant polycystic kidney disease guideline: diet and lifestyle management","volume":"35","author":"Campbell","year":"2015","journal-title":"Semin Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B35","first-page":"1","article-title":"KDIGO 2012 Clinical Practice Guideline for the Evaluation and Management of Chronic Kidney Disease","volume":"3","author":"Kidney Disease: Improving Global Outcomes (KDIGO) CKD Work Group","year":"2013","journal-title":"Kidney Int Suppl"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B36","first-page":"CD011998","article-title":"Dietary interventions for adults with chronic kidney disease","volume":"4","author":"Palmer","year":"2017","journal-title":"Cochrane Database Syst Rev"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B37","doi-asserted-by":"crossref","first-page":"2255","DOI":"10.1056\/NEJMoa1402685","article-title":"Blood pressure in early autosomal dominant polycystic kidney disease","volume":"371","author":"Schrier","year":"2014","journal-title":"N Engl J Med"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B38","doi-asserted-by":"crossref","first-page":"2738","DOI":"10.1681\/ASN.2017010084","article-title":"Biliary tract and liver complications in polycystic kidney disease","volume":"28","author":"Judge","year":"2017","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B39","doi-asserted-by":"crossref","first-page":"1578","DOI":"10.1111\/liv.12430","article-title":"Evaluating health-related quality of life in patients with polycystic liver disease and determining the impact of symptoms and liver volume","volume":"34","author":"Wijnands","year":"2014","journal-title":"Liver Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B40","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1002\/hep.28545","article-title":"Development and validation of a disease-specific questionnaire to assess patient-reported symptoms in polycystic liver disease","volume":"64","author":"Neijenhuis","year":"2016","journal-title":"Hepatology"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B41","first-page":"i90","article-title":"The association of combined total kidney and liver volume with gastrointestinal symptoms and pain in patients with later stage ADPKD [Abstract SP018]","volume":"31","author":"D\u2019Agnolo","year":"2016","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B42","doi-asserted-by":"crossref","first-page":"618","DOI":"10.1016\/j.semnephrol.2015.10.015","article-title":"KHA-CARI Autosomal Dominant Polycystic Kidney Disease Guideline: management of polycystic liver disease","volume":"35","author":"Savige","year":"2015","journal-title":"Semin Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B43","first-page":"1282","article-title":"Postmenopausal estrogen therapy selectively stimulates hepatic enlargement in women with autosomal dominant polycystic kidney disease","volume":"26","author":"Sherstha","year":"1997","journal-title":"Hepatology"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B44","doi-asserted-by":"crossref","first-page":"811","DOI":"10.1007\/s00701-017-3142-z","article-title":"Intracranial aneurysms in patients with autosomal dominant polycystic kidney disease: prevalence, risk of rupture, and management. A systematic review","volume":"159","author":"Cagnazzo","year":"2017","journal-title":"Acta Neurochir (Wien)"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B45","doi-asserted-by":"crossref","first-page":"626","DOI":"10.1016\/S1474-4422(11)70109-0","article-title":"Prevalence of unruptured intracranial aneurysms, with emphasis on sex, age, comorbidity, country, and time period: a systematic review and meta-analysis","volume":"10","author":"Vlak","year":"2011","journal-title":"Lancet Neurol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B46","doi-asserted-by":"crossref","first-page":"612","DOI":"10.1016\/j.semnephrol.2015.10.014","article-title":"KHA-CARI Autosomal Dominant Polycystic Kidney Disease Guideline: management of intracranial aneurysms","volume":"35","author":"Lee","year":"2015","journal-title":"Semin Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B47","doi-asserted-by":"crossref","first-page":"790","DOI":"10.1093\/ndt\/gfv010","article-title":"A painful inheritance-patient perspectives on living with polycystic kidney disease: thematic synthesis of qualitative research","volume":"30","author":"Tong","year":"2015","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B48","doi-asserted-by":"crossref","first-page":"972","DOI":"10.1016\/j.kint.2016.12.007","article-title":"Novel treatment protocol for ameliorating refractory, chronic pain in patients with autosomal dominant polycystic kidney disease","volume":"9","author":"Casteleijn","year":"2017","journal-title":"Kidney Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B49","doi-asserted-by":"crossref","first-page":"590","DOI":"10.1016\/j.semnephrol.2015.10.010","article-title":"KHA-CARI Autosomal Dominant Polycystic Kidney Disease Guideline: psychosocial care","volume":"35","author":"Tong","year":"2015","journal-title":"Semin Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B50","doi-asserted-by":"crossref","first-page":"A512","DOI":"10.1016\/j.jval.2015.09.1479","article-title":"Health-related quality of life (HrQoL) measures in autosomal dominant polycystic kidney disease (ADPKD)","volume":"18","author":"Oberdhan","year":"2015","journal-title":"Value Health"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B51","author":"UK Renal Registry"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B52","doi-asserted-by":"crossref","first-page":"1913","DOI":"10.1016\/S0140-6736(15)60907-2","article-title":"Autosomal dominant polycystic kidney disease: the changing face of clinical management","volume":"385","author":"Ong","year":"2015","journal-title":"Lancet"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B53","doi-asserted-by":"crossref","first-page":"479","DOI":"10.2215\/CJN.09500911","article-title":"Kidney volume and functional outcomes in autosomal dominant polycystic kidney disease","volume":"7","author":"Chapman","year":"2012","journal-title":"Clin J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B54","doi-asserted-by":"crossref","first-page":"576","DOI":"10.2215\/CJN.08300815","article-title":"Automated segmentation of kidneys from MR images in patients with autosomal dominant polycystic kidney disease","volume":"11","author":"Kim","year":"2016","journal-title":"Clin J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B55","first-page":"241","article-title":"Automatic total kidney volume measurement on follow-up magnetic resonance images to facilitate monitoring of autosomal dominant polycystic kidney disease progression","volume":"31","author":"Kline","year":"2016","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B56","doi-asserted-by":"crossref","first-page":"792","DOI":"10.1053\/j.ajkd.2015.06.017","article-title":"Estimation of total kidney volume in autosomal dominant polycystic kidney disease","volume":"66","author":"Spithoven","year":"2015","journal-title":"Am J Kidney Dis"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B57","doi-asserted-by":"crossref","first-page":"160","DOI":"10.1681\/ASN.2013101138","article-title":"Imaging classification of autosomal dominant polycystic kidney disease: a simple model for selecting patients for clinical trials","volume":"26","author":"Irazabal","year":"2015","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B58","doi-asserted-by":"crossref","first-page":"942","DOI":"10.1681\/ASN.2015010016","article-title":"The PROPKD Score: a new algorithm to predict renal survival in autosomal dominant polycystic kidney disease","volume":"27","author":"Cornec-Le Gall","year":"2016","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B59","doi-asserted-by":"crossref","first-page":"1592","DOI":"10.1681\/ASN.2016040448","article-title":"Urine osmolality, response to tolvaptan, and outcome in autosomal dominant polycystic kidney disease: results from the TEMPO 3:4 trial","volume":"28","author":"Devuyst","year":"2017","journal-title":"J Am Soc Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B60","author":"European Commission Expert Group on Rare Diseases"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B61","doi-asserted-by":"crossref","first-page":"e0116680","DOI":"10.1371\/journal.pone.0116680","article-title":"An efficient and comprehensive strategy for genetic diagnostics of polycystic kidney disease","volume":"10","author":"Eisenberger","year":"2015","journal-title":"PLoS One"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B62","author":"Swift"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B63","doi-asserted-by":"crossref","first-page":"1603","DOI":"10.1093\/humrep\/deu130","article-title":"Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policy","volume":"29","author":"Harper","year":"2014","journal-title":"Hum Reprod"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B64","author":"Otsuka Pharmaceutical Europe Ltd"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B65","author":"Renal Association Working Group on Tolvaptan"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B66","doi-asserted-by":"crossref","first-page":"2029","DOI":"10.12688\/f1000research.9045.1","article-title":"Autosomal dominant polycystic kidney disease","volume":"5","author":"Mao","year":"2016","journal-title":"F1000Res"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B67","doi-asserted-by":"crossref","first-page":"1103","DOI":"10.1007\/s40264-015-0327-3","article-title":"Clinical pattern of tolvaptan-associated liver injury in subjects with autosomal dominant polycystic kidney disease: analysis of clinical trials database","volume":"38","author":"Watkins","year":"2015","journal-title":"Drug Saf"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B68","doi-asserted-by":"crossref","first-page":"455","DOI":"10.1038\/nrneph.2014.104","article-title":"Renal transplantation in autosomal dominant polycystic kidney disease","volume":"10","author":"Kanaan","year":"2014","journal-title":"Nat Rev Nephrol"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B69","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1093\/ndt\/11.supp6.24","article-title":"Outcome of renal replacement therapy in autosomal dominant polycystic kidney disease","volume":"11","author":"Pirson","year":"1996","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B70","doi-asserted-by":"crossref","first-page":"582","DOI":"10.1111\/j.1432-2277.2011.01237.x","article-title":"Outcomes of renal transplantation in patients with autosomal dominant polycystic kidney disease: a nationwide longitudinal study","volume":"24","author":"Jacquet","year":"2011","journal-title":"Transpl Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B71","doi-asserted-by":"crossref","first-page":"2635","DOI":"10.1016\/j.transproceed.2013.07.016","article-title":"Renal transplant in patients with polycystic disease: the Italian experience","volume":"45","author":"Mosconi","year":"2013","journal-title":"Transplant Proc"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B72","doi-asserted-by":"crossref","first-page":"691","DOI":"10.1093\/ndt\/gfv378","article-title":"Does pre-emptive transplantation versus post start of dialysis transplantation with a kidney from a living donor improve outcomes after transplantation? A systematic literature review and position statement by the Descartes Working Group and ERBP","volume":"31","author":"Abramowicz","year":"2016","journal-title":"Nephrol Dial Transplant"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B73"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B74"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B75","doi-asserted-by":"crossref","first-page":"946","DOI":"10.1038\/ki.2008.352","article-title":"Long-term outcome of patients with autosomal dominant polycystic kidney diseases receiving peritoneal dialysis","volume":"74","author":"Kumar","year":"2008","journal-title":"Kidney Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B76","doi-asserted-by":"crossref","first-page":"903","DOI":"10.1053\/j.ajkd.2011.01.019","article-title":"Peritoneal dialysis as the first-line renal replacement therapy in patients with autosomal dominant polycystic kidney disease","volume":"57","author":"Li","year":"2011","journal-title":"Am J Kidney Dis"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B77","doi-asserted-by":"crossref","first-page":"530","DOI":"10.3747\/pdi.2014.00029","article-title":"Peritoneal dialysis can be an option for dominant polycystic kidney disease: an observational study","volume":"35","author":"Janeiro","year":"2015","journal-title":"Perit Dial Int"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B78","doi-asserted-by":"crossref","first-page":"e103914","DOI":"10.1371\/journal.pone.0103914","article-title":"Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy","volume":"9","author":"Van Biesen","year":"2014","journal-title":"PLoS One"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B79","doi-asserted-by":"crossref","first-page":"901","DOI":"10.1053\/j.ajkd.2016.05.010","article-title":"Patient perspectives on the choice of dialysis modality: results from the empowering patients on choices for renal replacement therapy (EPOCH-RRT) Study","volume":"68","author":"Dahlerus","year":"2016","journal-title":"Am J Kidney Dis"},{"key":"key\n\t\t\t\t20180626083747_gfx327-B80"}],"container-title":["Nephrology Dialysis Transplantation"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/academic.oup.com\/ndt\/article-pdf\/33\/4\/563\/25091496\/gfx327.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,8,7]],"date-time":"2022-08-07T09:14:25Z","timestamp":1659863665000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/ndt\/article\/33\/4\/563\/4772168"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,12,22]]},"references-count":80,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2017,12,22]]},"published-print":{"date-parts":[[2018,4,1]]}},"URL":"https:\/\/doi.org\/10.1093\/ndt\/gfx327","relation":{},"ISSN":["0931-0509","1460-2385"],"issn-type":[{"value":"0931-0509","type":"print"},{"value":"1460-2385","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2018,4]]},"published":{"date-parts":[[2017,12,22]]}}}