{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T02:33:37Z","timestamp":1787884417719,"version":"build-2784847793"},"reference-count":17,"publisher":"Oxford University Press (OUP)","issue":"1","license":[{"start":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T00:00:00Z","timestamp":1728000000000},"content-version":"vor","delay-in-days":277,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100012524","name":"American Lebanese Syrian Associated Charities","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100012524","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,1,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>To enhance the quality of care available for children with central nervous system (CNS) tumors across the world, a systematic evaluation of capacity is needed to identify gaps and prioritize interventions. To that end, we created the pediatric neuro-oncology (PNO) resource assessment aid (PANORAMA) tool.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>The development of PANORAMA encompassed 3 phases: operationalization, consensus building, and piloting. PANORAMA aimed to capture the elements of the PNO care continuum through domains with weighted assessments reflecting their importance. Responses were ordinally scored to reflect the level of satisfaction. PANORAMA was revised based on feedback at various phases to improve its relevance, usability, and clarity.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>The operationalization phase identified 14 domains by using 252 questions. The consensus phase involved 15 experts (6 pediatric oncologists, 3 radiation oncologists, 2 neurosurgeons, 2 radiologists, and 2 pathologists). The consensus phase validated the identified domains, questions, and scoring methodology. The PANORAMA domains included national context, hospital infrastructure, organization and service integration, human resources, financing, laboratory, neurosurgery, diagnostic imaging, pathology, chemotherapy, radiotherapy, supportive care, and patient outcomes. PANORAMA was piloted at 13 institutions in 12 countries, representing diverse patient care contexts. Face validity was assessed by examining the correlation between the estimated score by respondents and calculated PANORAMA scores for each domain (r\u2005=\u20050.67, P\u2005&amp;lt;\u2005.0001).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>PANORAMA was developed through a systematic, collaborative approach, ensuring its relevance to evaluate core elements of PNO service capacity. Distribution of PANORAMA will enable quantitative service evaluations across institutions, facilitating benchmarking and the prioritization of interventions.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/noajnl\/vdae171","type":"journal-article","created":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T13:07:12Z","timestamp":1728047232000},"source":"Crossref","is-referenced-by-count":3,"title":["Development of the pediatric neuro-oncology services assessment aid: An assessment tool for pediatric neuro-oncology service delivery capacity"],"prefix":"10.1093","volume":"6","author":[{"given":"Revathi","family":"Rajagopal","sequence":"first","affiliation":[{"name":"Department of Global Pediatric Medicine, St Jude Children\u2019s Research Hospital , Memphis, Tennessee ,","place":["USA"]},{"name":"Department of Pediatric and Adolescent Oncology & Hematology, Perth Children\u2019s Hospital , Nedlands, Western Australia ,","place":["Australia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosdali","family":"Diaz Coronado","sequence":"additional","affiliation":[{"name":"Pediatric Oncology Department, Instituto Nacional de Enfermedades Neoplasicas , Lima ,","place":["Peru"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Syed Ahmer","family":"Hamid","sequence":"additional","affiliation":[{"name":"Department of Pediatric Hematology & Oncology, Indus Hospital & Health Network , Karachi ,","place":["Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Regina","family":"Navarro Martin del Campo","sequence":"additional","affiliation":[{"name":"Pediatric Hematology and Oncology Service, Hospital Civil de Guadalajara Dr Juan I Menchaca , Guadalajara ,","place":["Mexico"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Frederick","family":"Boop","sequence":"additional","affiliation":[{"name":"Department of Global Pediatric Medicine, St Jude Children\u2019s Research Hospital , Memphis, Tennessee ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Asim","family":"Bag","sequence":"additional","affiliation":[{"name":"Department of Diagnostic Imaging, St Jude Children\u2019s Research Hospital , Memphis, Tennessee ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alma Edith","family":"Benito Res\u00e9ndiz","sequence":"additional","affiliation":[{"name":"Department of Pediatric Oncology, National Medical Center \u201c20 de Noviembre,\u201d ISSSTE , Mexico City ,","place":["Mexico"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vasudeva","family":"Bhat K","sequence":"additional","affiliation":[{"name":"Division of Pediatric Hematology and Oncology, Kasturba Medical College, Manipal Manipa Academy of Higher Education , Manipal ,","place":["India"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Danny","family":"Campos","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, Hospital del Ni\u00f1o San Borja , Lima ,","place":["Peru"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kenneth","family":"Chang","sequence":"additional","affiliation":[{"name":"Department of Pathology, KK Women\u2019s and Children\u2019s Hospital , Singapore,","place":["Singapore"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ramona","family":"Cirt","sequence":"additional","affiliation":[{"name":"Department of Pediatric Oncology, \u201cMarie S. Curie\u201d Children\u2019s Hospital , Bucharest ,","place":["Romania"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ludi","family":"Dhyani Rahmartani","sequence":"additional","affiliation":[{"name":"Pediatric Hematology-Oncology Division, Department of Child Health, Universitas Indonesia - Dr. Cipto Mangunkusumo National Hospital , Jakarta ,","place":["Indonesia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jen Chun","family":"Foo","sequence":"additional","affiliation":[{"name":"Department of Pediatric Hematology & Oncology, University Malaya Medical Center , Kuala Lumpur ,","place":["Malaysia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julieta","family":"Hoveyan","sequence":"additional","affiliation":[{"name":"Immune Oncology Research Institute , Yerevan ,","place":["Armenia"]},{"name":"Pediatric Cancer and Blood Disorders Center of Armenia, Yeolyan Hematology and Oncology Center , Yerevan ,","place":["Armenia"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4139-4160","authenticated-orcid":false,"given":"John T","family":"Lucas Jr","sequence":"additional","affiliation":[{"name":"Department of Radiation Oncology, St Jude Children\u2019s Research Hospital , Memphis, Tennessee ,","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thandeka","family":"Ngcana","sequence":"additional","affiliation":[{"name":"Department Pediatric Oncology, Chris Hani Baragwanath Academic Hospital , Soweto Johannesburg ,","place":["South Africa"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rahat","family":"Ul Ain","sequence":"additional","affiliation":[{"name":"Department of Pediatric Hematology & Oncology, University of Child Health Sciences, The Children\u2019s Hospital Lahore , Lahore 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