{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,16]],"date-time":"2026-06-16T20:08:32Z","timestamp":1781640512838,"version":"3.54.5"},"reference-count":49,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2024,10,14]],"date-time":"2024-10-14T00:00:00Z","timestamp":1728864000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100002203","name":"Brain Tumour Charity","doi-asserted-by":"publisher","award":["GN-000435"],"award-info":[{"award-number":["GN-000435"]}],"id":[{"id":"10.13039\/501100002203","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,3,17]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>People with lower-grade gliomas (LGG) often require long-term support with a condition that causes substantial symptom burden and is likely to progress. Partners, family, and friends often become informal caregivers (IC), but the types of support they provide, and their experiences of this, have not been well investigated. We aimed to understand how ICs experience the role and responsibilities of supporting people with LGG.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>This descriptive qualitative study used semistructured interviews to explore the role and responsibilities of a purposive sample of ICs across the United Kingdom, who currently, or in the past 5 years, support(ed) someone with an LGG. Interviews were audio-recorded and transcribed, and an inductive thematic analysis was conducted.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Nineteen ICs were interviewed (mean age 54.6 years; 5 males\/14 females). While most participants spoke about \u201cBeing a \u2018carer\u2019,\u201d the level of care provided varied. Participants conveyed their experiences with \u201cAdjusting for cognitive difficulties,\u201d \u201cEmotional protection,\u201d \u201cSupporting participation in daily life,\u201d and \u201cHealthcare advocacy.\u201d ICs often felt \u201cabandoned\u201d by healthcare services to provide required care themselves, and reported experiences with \u201cBalancing the challenges of caregiving,\u201d including conflict with work\/childcare. Issues around \u201cMaintaining the care recipient\u2019s independence\u201d were interwoven throughout.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>ICs of people with LGG provide wide-ranging support to help manage the consequences of the illness. Consideration of ways to help ICs with the challenges of fulfilling this role, particularly, balancing support provision without inhibiting the care recipient\u2019s independence, could help improve outcomes for ICs and people with LGG.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/nop\/npae096","type":"journal-article","created":{"date-parts":[[2024,10,14]],"date-time":"2024-10-14T13:47:28Z","timestamp":1728913648000},"page":"340-350","source":"Crossref","is-referenced-by-count":2,"title":["\u201cIt\u2019s a delicate dance\u201d: How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma"],"prefix":"10.1093","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4110-0588","authenticated-orcid":false,"given":"Ben","family":"Rimmer","sequence":"first","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University, Newcastle University Centre for Cancer , Newcastle upon Tyne, 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,","place":["Ireland"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vera","family":"Ara\u00fajo-Soares","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University, Newcastle University Centre for Cancer , Newcastle upon Tyne, England"},{"name":"Centre for Preventive Medicine and Digital Health, Department for Prevention of Cardiovascular and Metabolic Disease, Medical Faculty Mannheim, Heidelberg University , Heidelberg ,","place":["Germany"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracy","family":"Finch","sequence":"additional","affiliation":[{"name":"Department of Nursing, Midwifery and Health, Northumbria University , Newcastle upon Tyne, England"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8035-4420","authenticated-orcid":false,"given":"Joanne","family":"Lewis","sequence":"additional","affiliation":[{"name":"Newcastle upon Tyne Hospitals NHS 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