{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T20:12:59Z","timestamp":1778271179119,"version":"3.51.4"},"reference-count":45,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2025,8,30]],"date-time":"2025-08-30T00:00:00Z","timestamp":1756512000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Brain Cancer Rehabilitation, Assessment, Intervention of Survivor Needs"},{"DOI":"10.13039\/501100025520","name":"Medical Research Future Fund","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100025520","id-type":"DOI","asserted-by":"publisher"}]},{"name":"2019 Brain Cancer Survivorship","award":["MRFBC000016"],"award-info":[{"award-number":["MRFBC000016"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,4,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The Telehealth Making Sense of Brain Tumour program (Tele-MAST) was adapted for caregivers (cTele-MAST) to address the lack of caregiver-specific psychological support interventions in the context of high-grade glioma. This study aimed to explore current and bereaved caregivers\u2019 reasons for seeking psychological support, experiences of participating in cTele-MAST, and impacts on mental health and quality of life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A longitudinal multi-methods design was employed, capturing qualitative and quantitative data prior to cTele-MAST (Time 1), 1-week (Time 2), and 3-month post-intervention (Time 3). Qualitative data were analyzed using reflexive thematic analysis and quantitative data using repeated measures ANOVA. Participants were offered individual cTele-MAST sessions via videoconferencing and completed semi-structured interviews and measures of mental health and quality of life (QoL). Eighteen caregivers (15 female, M age\u2005=\u200547.27, SD\u2005=\u20059.37) of people with high-grade glioma were recruited, and 15 completed cTele-MAST (M\u2005=\u20059.5 sessions).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Three themes were identified. \u201cCaregiver expectations of the self\u201d reflected a desire to become stronger, more resilient, and quickly adapt their lives around caregiving. \u201cEnabling, connecting and reframing\u201d represented perceived benefits of cTele-MAST in terms of accessibility, brain tumor-specific expertise, and support to reset self-expectations. \u201cFinding one\u2019s self\u201d reflected caregivers better acknowledging their own needs and understanding themselves in grief. Significant post-intervention reductions in distress and stress were evident, but not for depression, anxiety or QoL.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Caregivers found participating in a psychological support program tailored to their needs beneficial. Early referral to cTele-MAST and flexible ongoing access to psychological support is recommended.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/nop\/npaf091","type":"journal-article","created":{"date-parts":[[2025,8,28]],"date-time":"2025-08-28T11:45:31Z","timestamp":1756381531000},"page":"342-353","source":"Crossref","is-referenced-by-count":0,"title":["Current and bereaved caregivers\u2019 experiences of participating in the adapted Telehealth Making Sense of Brain Tumour program in the context of high-grade glioma"],"prefix":"10.1093","volume":"13","author":[{"given":"Abigail","family":"Billin","sequence":"first","affiliation":[{"name":"The Hopkins Centre, Griffith University , Queensland ,","place":["Australia"]},{"name":"School of Applied Psychology, Griffith University , Queensland ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3699-6896","authenticated-orcid":false,"given":"Katarzyna M","family":"Lion","sequence":"additional","affiliation":[{"name":"The Hopkins Centre, Griffith University , Queensland ,","place":["Australia"]},{"name":"School of Applied Psychology, Griffith University , Queensland ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephanie","family":"Jones","sequence":"additional","affiliation":[{"name":"The Hopkins Centre, Griffith University , Queensland ,","place":["Australia"]},{"name":"School of Applied Psychology, Griffith University , Queensland ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8886-728X","authenticated-orcid":false,"given":"Mark B","family":"Pinkham","sequence":"additional","affiliation":[{"name":"Department of Radiation Oncology, Princess Alexandra Hospital , Queensland ,","place":["Australia"]},{"name":"School of Medicine, University of Queensland , Queensland ,","place":["Saint Lucia Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4065-4044","authenticated-orcid":false,"given":"Georgia K B","family":"Halkett","sequence":"additional","affiliation":[{"name":"School of Nursing, Faculty of Health Sciences, Curtin University , Perth, Western Australia ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4039-5169","authenticated-orcid":false,"given":"Haryana M","family":"Dhillon","sequence":"additional","affiliation":[{"name":"Psycho-Oncology Cooperative Research Group, School of Psychology, Faculty of Science, University of Sydney , Sydney, New South Wales ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1835-7094","authenticated-orcid":false,"given":"Tamara","family":"Ownsworth","sequence":"additional","affiliation":[{"name":"The Hopkins Centre, Griffith University , Queensland ,","place":["Australia"]},{"name":"School of Applied Psychology, Griffith University , Queensland ,","place":["Australia"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2025,8,30]]},"reference":[{"issue":"8","key":"2026050815283914000_CIT0001","doi-asserted-by":"crossref","first-page":"1231","DOI":"10.1093\/neuonc\/noab106","article-title":"The 2021 WHO Classification of Tumors of the Central Nervous System: a summary","volume":"23","author":"Louis","year":"2021","journal-title":"Neuro Oncol"},{"issue":"12 Suppl 2","key":"2026050815283914000_CIT0002","doi-asserted-by":"crossref","first-page":"iii1","DOI":"10.1093\/neuonc\/noab200","article-title":"CBTRUS statistical report: primary brain and other central nervous system tumors diagnosed in the United States in 2014\u20132018","volume":"23","author":"Ostrom","year":"2021","journal-title":"Neuro 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